Lol mark! I too, did not want to return mine!! I'm glad it's working for you. I'm not sure if you're a crps chickie or not, but my perm gives me 85-90 relief in my legs. Very few pain meds!! Bad news is I have it in right arm. They think I have back spread but I am ignoring that theory lol. I'm glad You're doing great. Recovery is worth it!!!

TK

[QUOTE=Hannabananna;935937]loving it!!!

Sad because it was coming out. Sorry for not being clear.

Dean

Approaching the end of Trial removal is definitely a torror eposonde for any who have been served well by the SCS therapy. I felt as though I was travelling to my doom as I was driven that day to the appointment to remove the Trial..... even thorugh the Trial had resulted in puss filled infection at the entry points to my spine.

I am so sorry for the feeling you mention Dean,
Mark56

Hi Colleen,
I'm new on here and wanted to share a few thoughts about my SCS.
I'm 38 and have experienced extremely painful for peripheral neuropathy for some time, going on 12 years. About a year ago I had the spinal cord stimulator installed permanently in my back for the neuropathy. I was very hopeful, especially during the trial. I'm not having luck with the device at this point. I'm following up with the company now. Do you have burning neuropathy, on foot soles? I'm very hopeful for you!!!
Matt

I remember being very sad about trial coming out. When I went in for the 1-week check doc asked, "So how's the trial going?" She barely had the words out of her mouth and I shot back with, "When can we do the implant!!" She's one that believes you must wait 2 weeks but not more than 3 (due to scar tissue beginning to build up from the trial) and we had it scheduled exactly 14 days from trial being removed.

Time goes fast - even when it's painful. I hope you're able to get the implant quickly, Dean, so you don't have to suffer for too long. Once someone finally experiences relief the one thing you don't want to do is go back to feeling all that pain again!

God bless

Actually I told the dr about crying and she was upset and asked why. I stated: because it worked so good!

Hi Matt!

I actually have CRPS/RSD in my L foot which spread to my L leg and R leg... But that does equate to burning neuropathy basically in my foot, just not "peripheral neuropathy" diagnosis. If that makes sense...

I hope your SCS will work for your after some "tweaking" from your company rep! I know that for my trial, after seeing my rep for the second time (the first being during surgery), my pain management increased by approx 50%! So I'm at now at least at 75% pain reduction! Whereas before seeing her to get it adjusted I honestly worried if maybe this wouldn't really work for me... So I hope you have to same great experience when you see your company rep, hopefully they can get yours working well for you!!! I'll be praying for you!

Anyway, I'll keep posting with my updates, but for now things are still great... with the exception of the tape COVERING my entire back, from top to bottom, side to side, and it ITCHES! but I can live with it for the pain relief I'm getting

As always, thank you for all of your prayers, as you all remain in mine!

~Colleen

Believe me, after over 3 decades of dealing with chronic pain I have shed many tears of joy at finally getting not only an accurate diagnosis (something that eluded every doctor that's ever taken a shot at trying to figure it out) but also significant relief. For me it's an answer to a prayer that, quite frankly, I had stopped praying for relief. I had truly accepted that this was my 'cross to carry' and I was in good spirits about it. In fact very few around me that knew me in a casual way (e.g. coworkers) knew I was dealing with pain...I hid it quite well most of the time.

OH PLEASE DO continue with regular updates and sharing regarding your walk, for in the sharing the knowledge base here becomes more so enhanced and we ALL Learn. Thank you Colleen for your bravery and steadfast resolve to help all find best solutions through what you learn personally.
YOU ROCK
Uh huh,
Yup,
Prayin as you follow the path,
Mark56