Sorry hanabananna to hear how painful your SCS was! Glad to know though that you were able to quit working and have since healed up. Do you plan to return at some point or have you decided not to? Sorry if that is to much of a personal question.. I'm wondering if I'll be able to go back to my job.. and trying to think things through.

.. I don't think it was as painful for me only because of the 11 other BIG BIG surgeries I had during the previous 1.5 years.. surgical pain became sadly normal for a while..

The one thing I am learning quickly is that one minute things feel tolerable and the next WHAM.. out of the blue everything changes. Ugh. I did go in today and got my SCS tweaked and added some new programming. lol.. I wasn't even aware of it's capabilities until today.. happy, happy JOY JOY. Wondering if anyone has used medical marijuana for breakthrough pain and if so, what was your experience? I live in WA so it is not illegal here and although I have been told by many to give it a try, I am still hesitant. On the same hand though I would think it would be better than opiates or higher doses of neurontin to cover the flares? What do you think?

So glad to have this board full of wonderful people!!