[pooh_ac]

Seems when one part of the body revolts the rest seems to follow one place at a time until your mind gets in with the rest, then there is no rest. Just the" what its" and the" why me" thought I had done this long, long ago. Guess it goes to show it's never really done

[eva5667faliure]

Originally Posted by pooh_ac

Seems when one part of the body revolts the rest seems to follow one place at a time until your mind gets in with the rest, then there is no rest. Just the" what its" and the" why me" thought I had done this long, long ago. Guess it goes to show it's never really done

dear pooh
i understand
i learned a long time ago
never say never
you do it one day at a time
and so many to lean on including myself

someone that cars

[Mark56]

Pulling for you in all things, and hope sleep, restful comforting sleep will not elude you.

Hugz,

[ger715]

Originally Posted by pooh_ac

Seems when one part of the body revolts the rest seems to follow one place at a time until your mind gets in with the rest, then there is no rest. Just the" what its" and the" why me" thought I had done this long, long ago. Guess it goes to show it's never really done

Unfortunately it's always lurking. Caring and sharing are so important.


Gerry

[MDinpain]

Mine is totally messed up!!! I usually pass out with boys for 30-60 minutes. Awake at 9:20. Back to sleep at 12:30-1. Awake 4-5 hours later. I am getting used to it. Back sore - nerve root referred pain from what I've read. Goes away when I get moving.

I drink caffeine like nuts then a couple beers before bedtime. I'm just surviving!!!!

Today i had the day off. Dropped kids at school. Drove to northern Marin county and took longest bike ride of my life - 50 miles. Scs at high power. That's the beauty of the bike. I am clipped in. I have good core strength. At that setting my walking would be zombie like. On a bike- no prob!!!!! Picked kids up played fort in the woods. My 7 yo finally loving reading.

My life was awesome. Then terrible. It's closer to awesome than terrible now. Each day is a battle. Today the enemy, my CRPS, crushed. He will be back tomorrow to mess with me. I'll fight that rat bastard.

[MDinpain]

On call Sunday - saw a rn i have known for years with a sub dural hematoma (blood smashing her brain) and she had gotten clumsy. When I saw her , she said "hug me" - you bet your *** i hugged her.

Neurological disease - scary stuff we all know. She'll be ok i think, but i know her fear. I live it. I felt a real sense of purpose - for her nobody could do a better job that day. That really meant something to me.

I should try to go to sleep - I'm off topic!

[Mark56]

SLEEP
SLEEP
SLEEP
SLEEP
SLEEP
SLEEP
Ahhh......sleep

[Mark56]

ZZZZZZZZZZZZZZZZZZZZZZZZZZZZZ

[Rrae]

...............................

.........I can't seem to find my bed.......... ?

[eva5667faliure]

Originally Posted by MDinpain

Mine is totally messed up!!! I usually pass out with boys for 30-60 minutes. Awake at 9:20. Back to sleep at 12:30-1. Awake 4-5 hours later. I am getting used to it. Back sore - nerve root referred pain from what I've read. Goes away when I get moving.

I drink caffeine like nuts then a couple beers before bedtime. I'm just surviving!!!!

Today i had the day off. Dropped kids at school. Drove to northern Marin county and took longest bike ride of my life - 50 miles. Scs at high power. That's the beauty of the bike. I am clipped in. I have good core strength. At that setting my walking would be zombie like. On a bike- no prob!!!!! Picked kids up played fort in the woods. My 7 yo finally loving reading.

My life was awesome. Then terrible. It's closer to awesome than terrible now. Each day is a battle. Today the enemy, my CRPS, crushed. He will be back tomorrow to mess with me. I'll fight that rat bastard.

dear MD
i love you upbeat attitude
i a 52 year young woman
was beaten down
i a active woman
love volleyball
a mother of four
divorced young
stayed single to date
waitressed 5 nights a week 9-10 hour
did that so i could be available
for my family need be
only by the grace of God and
my will to be responsible
for my children
i am not boasting
about my struggles
i had no clue how
at this point of my life
working as a city employee
and a chance to then begin
things like a pension, benefits
paid time off paid vacation
but most importantly a break
on my body
as i was all by choice alone
with my babies
now a mimma (grandmother)
it brings me to my not having the strength
to hold her when she was born
to pick up a knife and cook
my passion taken
i served many people in my time
and to be stagnant in most everything
and to the point of having to change my
clothing i wear bras that i could slip my feet into
pulling it up even that is without pain
to read you kick butt squashing that monster
is a persona i once harbored like nothing could
take me down with all i had to go through in
my lifetime don't know if i would change anything
but my mind is like your body crushing that monster
are the meds i'm forced to be on
i so enjoy reading your kicking butt
may it prevail in your life and never stop
i lay in depression
pardon my expression have put some men to shame
as i am a doer doer doer may have taken me down
i wish your world and family a strength of loving
each other with just the simple things in life
such as taking your children to school
i have minimal ability to drive and cannot
drive my daughter to school since seventh grade
it made a big difference not for the better
PEACE BE WITH YOU AND YOUR FAMILY
AND STRENGTH TO BATTLE THAT MONSTER
YOU GO MAN KICK THAT BASTARDS BUTT

someone who cares