I didn't see this post before I posted. Sandy, I am so sorry and heartbroken for you. I am sure you have every possible emotion going on right now. I truly wish there was something I could do to help you guys. Right now, the only thing I can do is support you and say lots of prayers for you.:hug:

Tk thanks for the info...so protein and lots of water huh...I dont mind a feeling of few beers..but the feeling I first got with lyrica was wooooo a few more than a few beers.....

not sure maybe it is starting me at 300mg a day..split into three times...like 100,100,100....sounds more like a start amount..thought she meant three times a day and each being 300....I will see soon when i get out to get the meds....thanks for the info..hun....

maybe the lots of water too..which I already do drink...but will curb any weight gain too.....I keep reading about weight gain with these meds hehehee...hugsss and thanks, sarah

who is hoping for pain relief as you said...dont really want to feel hooked but hey if need something for pain and tingling and stiffness and all....I gotta...so first I iwll try the neurontin..see how it is working...then when see her in sept....see how the stiffness is in case I need other meds for that part..not sure....either way still will ask to see yet the other new neuro that I want to see....they probably think I am a nut job with my file.....with all the neuros...oh well...sarah

The hooked feeling was more like a this stuff works great feeling. It does take a bit to work through the side effects of loopiness and what not. Once your body gets used to it you don't have that feeling as much if at all.

We originally tried Neurontin to figure out if the pain was nerve related. I was undiagnosed at the time but would periodically get these intense pains in my rib cage and stomach. My PCP wanted me to try 3 different classes of drugs to determine what kind of pain it was. The 1st one, Bentyl, did nothing. The 2nd was the Neurontin and the 3rd I never even tried cause the Neurontin worked. I have since learned that this pain is actually the MS Hug. I had been having it for years.

Good luck Sarah! PM me if you have any questions or I can help you out.

Sandy ... so sorry you had to even "deal" with such a doorknob ... I felt (feel at times) like that dealing with the insurance/disability people from my past employer! .... thanks for sharing ... hugs from me too!

Wiz .. so good to see you ... that's so great about Ty working for you!!

Sarah - sorry to hear about your pain and issue-ordeal ... it would be so nice to get a straight answer ... and relieve some of your anxiety ... when I was first dx'd ... I had ZIPPO clue as to what MS was or even what RRMS was ... and no one could help me or give me an answer ... just "listen to your body" .. and it was 'kicking my butt!' especially with the heat and stress ..

I still don't have all the answers ... the only thing I know is to stay calm - keeps the sx at a minimum .. but walking and standing has taken their toll these last 6 months ... so, I'm a bit fidgety ... because any one position - SOMETHING is going to sleep on me - then the *tingle* comes in!!

hope the Rx works for you!!

Hey Kay .. you got *doo-doo* control??? 81 little fuzzies running around has got to be a blast to watch ... had 4 ducks out on the lake - named them Fred, Barney, Wilma and Betty ... LOL

Sandy, :hug: Totally understand where you're coming from with the docs. I would do the same thing as you in that situation, but maybe a little noiser. :D I agree that when the nursing staff starts suggesting other docs, it's a BIG red flag. Hope the new doc is a better one and can help Jim out.

Sarah, My neuro had me wean onto the neurotin. One pill for three days, then two for three days, and then finally up to the three. I agree with TK, it made me loopy for a week or two - but goes away once your bod is used to it. Being pain-free is so worth it.

yes, and it wasn't good.

I'm one of those rare people that reacted *badly* to Neurontin.

I only took two doses (one at lunchtime, and one at bedtime), and I woke up the next morning totally DERANGED.

it was like I was binge-drunk, wandering around the house buck-nekkid, SINGING at the top of my lungs, bouncing off the walls, going up and down the hall, up and down...

and eating peanut butter with my FINGERS, right from the JAR, at, like, 5 in the morning.

that reaction is supposed to be RARE, but nobody WARNED me, and it wasn't in the info that the pharmacy gives out with a new med, so whenever anyone asks about Neurontin, I have to share that charming story.

luckily my daughter woke up, and was old enough (17-ish) to take the situation responsibly in hand, call the doc and pharmacy, and HIDE the meds, so I didn't accidentally take more... in my delirious state.

I've read here, and elsewhere, that Neurontin works WELL for MOST people, so you should be okay, but just be forewarned, and I sincerely hope it works for you, dear !

Sandy glad the guy at Rush was able to get you in after what you were telling me he said to you all on the phone I agree, I'd have slapped him too! BTW Walmart has Hannah Montana giftwrap.

The neurontin helps me when it is nerve pain....sucky part is I have 3 -5 different types of pain GRRRRR

Wiz glad the Tysabri seems to make you feel better, it definitely gives me more energy and I don't feel as weak.

Fin- sorry about the fatigue, I hear ya and it blows, I can't take any of the meds for it either...the only thing that gave me more energy was the Tysabri.

I was making Olivia an animal cake...but Jennifer is bailing me out, you can look her up at Shelby Lynn's cake shoppe online, we are doing a pink and purple princessy girly cake, of course Olivia will LOVE that!

And now for the news....truth....scoop whatever, since I have told Sandy about it and she had to be the first to know....and I know I am going to get lots of advice here and suggestions but I just want everyone to know this is a well thought out thing......

My husband is having our divorce stopped, he is still going to counseling with the minister as well as he has started seeing someone professionally and a doctor, I have spoken with his professional counselor over the phone as he wanted my point of view as well, he has realized he is suffering from depression/anxiety, alot of it related to the fact that he doesn't like, well thats putting it mildly he hates his job, and wants to go back to an overseas post when he can, and I agree because I know he is miserable there. He blamed alot of that on me...not the job but he thought our marriage was what was making him unhappy when in truth it wasn't...most of the time anyway. So we are reconciling and going to counseling together and trying to work it out.

I know some of you are going to think I am crazy, and not be to thrilled with my choices but I have to do what I think is morally right for me and my family in the beliefs I value. So.....there's the news.

I, for one, do not think you are crazy. It is your choice, your life, etc. The heck with what others think. I support your decision 100% and will pray that all will work out for you, DH, and the kids. :hug: I am sure making this decision has taken a huge burden off of you and that is awesome!!!

oh man!

I wish my doc had been as SMART as yours... and started ME out slowly, like that...

it sounds like a GREAT idea... and pain-free would've been really nice at that time, oh, yeah !!

:grouphug:

but this was back in 2002, and maybe they didn't *know* as much then ?

NaeNae, I have always said you should follow your heart, and do whatever YOU think is best, for you and your children.

I don't think you are crazy, and will not judge you.

:hug:

I support you whatever you choose... even if I might (in a big-sisterly way) advise against it, hey, I've been wrong before... AND, my situation back in 1984 may be totally inapplicable to yours.

it was *right* for me to get out, as the abuse mounted... and turned from emotional/mental, to physical.

just promise me that you WILL keep some money stashed securely away, so you don't ever get left in a BIND again, okay babygirl ??

promise ??

and start building up some credit in your own name, and maybe have a few of the bills in your name as well.

I just don't want to see you with limited options, or boxed into a corner again, because I care about you, and worry about you.

:hug: