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Old 07-31-2008, 08:41 AM #3231
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Yes it will horribly but I have no other choice.
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Originally Posted by Vonn07 View Post
Hi Kelly & DM ... thanks for checking up on us and that we 'amuse' you!! good one!!

Renee ... will getting a job goof up your SSDI?? that's one of the reasons I haven't been applying ...

ended up taking a power nap this afternoon ... the heat got to me! LOL

congrats, Kelly on getting the LTD and SSDI rolling along .... so you can give us pointers in the debt diet!! I don't know what to say on there - with no income to utilize ...

guess I may have to call SS to see 'waz-up'???
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Old 07-31-2008, 09:25 AM #3232
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Renee .. hope you find something that will work out for you and the kids ...
btw: PM me your new address, okay??

I'd go down to Sandy & Jim's or Frank & Deb's or Wiz's ... but, it's going to be hot and HUMID there too ...
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Old 07-31-2008, 09:51 AM #3233
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Hey all! Nothing much going on today except waiting for our friend to come by to fix the bed. Other than that, nada. Oh wait, we're also waiting for the doctor to call back with ideas.

I have to explain a little more on the doc we saw yesterday. I was tired when I wrote that and need to further explain. He was a very nice and professional doctor. Jim's condition cannot be cured, it is what it is. Our reason for going was to see the reason behind the UTI's and find an answer to how to prevent them from coming every month.

This doctor explained more than any other doctor that it is the ileum that is causing the bacteria, it always will. He said that just because it causes bacteria doesn't mean it's a bad thing. Some bacteria lives normally in our bodies and they would expect to see bacteria in Jim's urine to be colonized. The problem lies in the bottom of the bladder. The sediment tends to lay down there and this is what can cause the problems.

We are currently flushing Jim's bladder with saline every other day to get it out. But, some still remains. The idea of using betadine seems logical since it would not sit in the bladder for long and it is an antibacterial substance. It would be diluted with the saline. Jim's spinal cord doctor never heard of this and is looking into if it's ok and to see if there is something else to try. The medicine that is discontinued is also an antibacterial but no longer available. So, Dr Babu is looking into another possible pill. These pills are not antibiotics and will not cause resistance so that is attractive to us for sure.

So, we are waiting to hear from Dr Babu, the spinal cord doctor to see if this doctor yesterday wasn't off his rocker. To Jim and I he seemed intelligent but you never know. lol Personalities aside, it is frustrating, but at some point Jim and I have to accept that this is our 3-4th opinion and so far everyone has said the same thing. All we can do now is look at alternative medicine and basic therapies to see if that helps.

Hope that makes sense. We are NOT giving up, we're just shifting our thinking and expectations.
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Last edited by SandyC; 07-31-2008 at 10:27 AM.
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Old 07-31-2008, 09:55 AM #3234
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Happy Birthday Sarah!!! Hope you have a wonderful day today.

Kelly - That sounds yummy! What time is dinner? Just give me about 6 hours to fly out there. LOL I hope your baby has a wonderful birthday today. Is lasagna his favorite? When we were little and even now for those of us that live close to my parents, my Mom would always make our favorite meal for dinner as well as our favorite desert. One of my brothers always picked hot dogs. lol Mine was actually lasagna or manicotti (sp??). Anyhow, hope he enjoys his birthday.

Vonn & Renee - I hear your dilemma. It's a catch-22 and a difficult decision to make. In my own case, it was easier as I wasn't really walking, etc., etc. and the serial flares kept coming. I will keep both of you in my prayers during this trying time.

Sox - Enjoy your alone time. I agree with Fin - get the chick flicks lined up, comfy clothes on, and plop on the couch for uninterrupted movie/me time.

Weave - Yahoooo!!!! You must be so excited to have DD come home tomorrow. I am sure she will have lots of wonderful stories to share with you once she gets some rest. Saying prayers that she has a safe trip home.

Kay & Kelly - I don't feel old enough to have an 18-year old starting college in a few weeks. Sometimes, I think DD16 is more grown up than I am. lol j/k She is very mature and wise young lady. Amazes me.

Hi Everyone else. Hope your doing well this morning and that everyone has a great day!
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Old 07-31-2008, 10:05 AM #3235
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Good morning all! You guys are soooo fast ! I already can't keep up! I made something for a board buddy with my glue gun . Not gonna say what coz that would ruin it .

I'm gonna go back and try to read everyone's posts from yesterday and catch up. I don't think I'll EVER keep up LOL!

Hope everyone's doing well .

The darn roof repair guys were here three times this morning trying to collect payment from my LANDLORD! I told them to call her because she doesn't LIVE here. Somewhat of a language barrier involved, but they finally got the message. I even called my landlord and got her voicemail. She hasn't called back....hmmm, very interesting. I hope she isn't going broke !

HAPPY BIRTHDAY, SARAH 's
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Old 07-31-2008, 10:06 AM #3236
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Tricia- I wasn't walking ...much...used the scooter.....had tons of support from my docs etc and have still been denied repeatedly been going on 3 years now....the ALJ judges decision is now under appeal but my working will eff that all up, but what can I do? They said it could take up to another 3 years!

Sandy- u explained it perfectly, the betadine thing seems sensible to me.

I have a job interview at a local mental health clinic tomorrow wish me luck!
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Old 07-31-2008, 10:19 AM #3237
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Went for a walk then made my to do list. The list doesn't look too bad but it will keep me moving. How much progress I make and energy I have left will help determine if I go to a lecture tonight.

Off to ask a bunch of gardening questions on that thread.

Oh yes. Prayers for DD's safe return from her trip are greatly appreciated. I'm only a tiny bit excited about her return. Is it Friday night yet?
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Old 07-31-2008, 10:22 AM #3238
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Happy Birthday, Sarah!! (I started a thread at The Stumble Inn, too! )


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Old 07-31-2008, 10:22 AM #3239
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Renee, Wishing ya luck at the interview!

Sandy, Thanks for explaining a little more. Hope this new approach really helps Jim out.

~~~~~~

I did forget to give you guys some good news, LOL! I was posting on a thread I started and realized I didn't tell you my d'oh! moment.

I've limited my coffee intake to only two cups in the morning. My fatigue has been manageable the past couple of days.

You'd think I would've had enough common sense to realize having too much of a hot breverage would not help with the overheating.
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Old 07-31-2008, 10:36 AM #3240
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Wow, you all have been busy this morning!

Sarah -- HAPPY BIRTHDAY!!!

Renee -- Good luck with the interview! Do you think you might have a more cooperative judge in the circuit you are in now instead of South Carolina?

Jenn -- I am glad to hear that you are geting a handle on your fatigue. I rarely drink hot beverages.

Sox -- Have fun this weekend. Alone time can be terrific. You can sleep as much as you want, eat when you feel like it, and have complete control over your remote.

I went to WW this morning and only lost .6 pounds. So my total for the 6 weeks is 7.2. It is hard to stay commited to this with such a slow weight loss. I thought I had gained weight so I did not make the best choices yesterday. I had 2 slices of pizza for lunch and pad thai and crab ragoon for dinner.

It looks like the next several days are going to be really miserable (weather).

Kelly -- What time is dinner? I think you better make an extra pan of lasagna.

Last edited by barb02; 07-31-2008 at 11:40 AM.
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