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Old 02-14-2008, 03:11 PM #1
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HAPPY VALENTINES DAY EVERYONE!!!!!!!

I forgot to say that earlier!

Kayo- I would never tell u to quit posting pics I love them! Except the crawlies! Your little homestead looks so idyllic...but of course u have already warned me about the bugs!

Went to neuro....3 days of IVSM to start like I knew that wasn't coming right? Then did all of my paperwork to enroll me in the TOUCH program as I will be starting Tysabri!! Also have to schedule a mediport placement...I have no veins!

Hubby sounds kind of down in the dumps today...he said it has been a busy hard day at work
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Old 02-14-2008, 03:43 PM #2
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HAPPY VALENTINES DAY EVERYONE!!!!!!!


Went to neuro....3 days of IVSM to start like I knew that wasn't coming right? Then did all of my paperwork to enroll me in the TOUCH program as I will be starting Tysabri!! Also have to schedule a mediport placement...I have no veins!

(
Sorry you are having to go through the roid treatment. HOpe it helps though.
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Old 02-15-2008, 04:20 PM #3
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checkin in....havent read past few pages...as my eye is bugging out on me..think it is just my contact...eyes are tired too....worked today...and work thru weekend as usual.....
hoping this finds all in good spirits and health...I miss being here more often...but trying to catch up around house and sleep...as not feeling well lately....HUGSSS to all, Sarah
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Old 02-16-2008, 07:35 AM #4
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hello Everyone! Sorry I haven't been around but been sick myself, finals are coming up this week and by the time I get home I don't even want to look at a puter.

Sarah - I hope you are feeling better soon - we miss you too!

Renee - OMG I am so sorry I haven't been paying attention. I heard about Sandy's sons so glad they were not involved and glad they are ok. This is not what she need right now with everything else going on. Lots of Sandy

Kayo - I love the pic's - I so wish I could go to your farm on vacation.

PrettyGirl - Valentine's Day must of been good for you?


~~~~~~~

Hope everyone has a good week. Say a little prayer on Wednesday that my final goes good! Today I am heading to meet my daughter and father who had birthday's this week. DD turned 20 & Dad 76.

My legs are really bothering me along with my shoulders and arms which is fairly new for me. I have been dropping stuff and fell last night when my legs just gave out. Glad I was close to the bed and I went that direction.

Have a great day everyone!
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Old 02-16-2008, 08:57 AM #5
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Gee Sandy if you let me know where you're at I could call you! Glad your mom is doing well without the meds that would only make her confusion worse. I hope she clears up soon! And I posted on your other thread I am sending superman to stop your spinning world.

I feel a little better today head doesn't hurt so much anymore thank God! I start the oral steroids today. Going to try going to a glass class later with a girl who is going to teach me all about using the kiln and the firing process.Darn arms don't wanna work for crap today figured I might as well do something! Will be glad when I get to start the Tysabri maybe it will help some of this!! I also have been asked by a local artist friend to create some things that she will take to a show on the outer banks and sell for me!

Hope you all have a great weekend!
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Old 02-16-2008, 09:01 AM #6
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Gee Sandy if you let me know where you're at I could call you! Glad your mom is doing well without the meds that would only make her confusion worse. I hope she clears up soon! And I posted on your other thread I am sending superman to stop your spinning world.

I feel a little better today head doesn't hurt so much anymore thank God! I start the oral steroids today. Going to try going to a glass class later with a girl who is going to teach me all about using the kiln and the firing process.Darn arms don't wanna work for crap today figured I might as well do something! Will be glad when I get to start the Tysabri maybe it will help some of this!! I also have been asked by a local artist friend to create some things that she will take to a show on the outer banks and sell for me!

Hope you all have a great weekend!
I sent you my cell number...lol
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Old 02-16-2008, 09:26 AM #7
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Cog-fogging a bit today, so I'm just a checkin' in. LOL, payment for the running around I did on my day off.

Lunch with my friend went ok. She's doing fine. Went shopping too.

Spent half a day a little shaken up over a strange thing that happened yesterday. Posted it in a different thread.

Hope everyone has a good weekend.
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Old 02-14-2008, 04:01 PM #8
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Also have to schedule a mediport placement...I have no veins!
NaeNae, where do they put it?

is the installation done by surgery?

how big is the thing?

and how long do they last?

is it permanent?

I'm curious, because I too have $#^% for veins...
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Old 02-15-2008, 12:11 AM #9
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Hi Everyone! This is a hit and run hello because I am running around like a chicken with my head cut off, LOL!!! I have been so busy that I can't keep up. I hope everyone here is doing well. I still have to post some pics of the studio when I get a chance. Sorry I'm so behind. I promise I will get them up soon.

Meanwhile, I'm heading for bed, so I maybe can finally clear this dumb cold up and get my voice back some. I'm sounding like the actress who played Momma from "Throw Momma From The Train", or is that "sultry", LOL!!

Carolyn
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Old 02-15-2008, 08:28 AM #10
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In case ya'll didn't know Sandy's boys go to the university in IL where the shooting happened, they are fine but definitely shaken up! Sandy posted it in her moms surgery thread. I wish I were there to help her out!!

I picked up my neckalce I made yesterday at the pleading of the shop owner where my stuff gets sent to..because some man was in there 3 times begging to buy it because he loved it and wanted it for his wife!

Ok, as some of yall know from last time I had roids....I had a horrible itching reaction on the back of my thighs,butt, and ummm girlie parts. So we medicated with loads of benadryl and slowed the rate down to over 3 hours. The rest of the 3 days went fine.....

Well last night the nurse didn't get here to hook me up till about 8:30 I premedicated with the benadryl...we started it over 3 hours....while she is still here my eye stars itching and goes numb....I'm thinking hmmmm...but blow it off. The nurse leaves...all of a sudden eye is really numb and I start itching in the nether regions again and on my sides....I go to the bathroom and took off my glasses.....holy freakin hell I looked like Kermit the Frog my eyes were so swollen!! I call the nurse she says let me call your doctor to see if you can have more Benadryl I'm already so zoned I didn't realize my eyes were bulging! She never could get my neuro and kept calling to check on me...by 11 I had had enough and disconnected the crap. She called me again at midnight to check on me and I told her I was DONE!! I took more bendaryl....and I itched all over all night.

This morning eyes are still swollen but not as bad, my head feels like it is splitting in two,my legs are shaking so bad I can hardly walk and I just left a message for my neuros nurse who lucky me is late for work!

NO MORE ROIDS!!!!


Ok enough ranting!! Sandy I am thinking about you (((((((((HUGS)))))))))

Kayo-it's a little circular port they put under your skin usually above the collarbone you can take them out or leave them but they just stick the port with the needle when you need an infusion instead of a vein in your arm!

Update number two! My neuro just called me and thinks I must be the only person on the panet allergic to Solumedrol...I personally think it is too concentrated and that if they diluted it more I would be ok,but not going to test that theory! I just thought I was getting away from roids...she is putting me on a dose pack orally ( which I have never had problems with and we will try that instead) SHEESH I HATE MS!!! Gonnie sharpie MS sucks! on my forehead today!

I hope yall have a wonderful day though!!
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