Yes it will horribly but I have no other choice.

Renee .. hope you find something that will work out for you and the kids ...
btw: PM me your new address, okay??

I'd go down to Sandy & Jim's or Frank & Deb's or Wiz's ... but, it's going to be hot and HUMID there too ...

Hey all! Nothing much going on today except waiting for our friend to come by to fix the bed. Other than that, nada. Oh wait, we're also waiting for the doctor to call back with ideas.

I have to explain a little more on the doc we saw yesterday. I was tired when I wrote that and need to further explain. He was a very nice and professional doctor. Jim's condition cannot be cured, it is what it is. Our reason for going was to see the reason behind the UTI's and find an answer to how to prevent them from coming every month.

This doctor explained more than any other doctor that it is the ileum that is causing the bacteria, it always will. He said that just because it causes bacteria doesn't mean it's a bad thing. Some bacteria lives normally in our bodies and they would expect to see bacteria in Jim's urine to be colonized. The problem lies in the bottom of the bladder. The sediment tends to lay down there and this is what can cause the problems.

We are currently flushing Jim's bladder with saline every other day to get it out. But, some still remains. The idea of using betadine seems logical since it would not sit in the bladder for long and it is an antibacterial substance. It would be diluted with the saline. Jim's spinal cord doctor never heard of this and is looking into if it's ok and to see if there is something else to try. The medicine that is discontinued is also an antibacterial but no longer available. So, Dr Babu is looking into another possible pill. These pills are not antibiotics and will not cause resistance so that is attractive to us for sure.

So, we are waiting to hear from Dr Babu, the spinal cord doctor to see if this doctor yesterday wasn't off his rocker. To Jim and I he seemed intelligent but you never know. lol Personalities aside, it is frustrating, but at some point Jim and I have to accept that this is our 3-4th opinion and so far everyone has said the same thing. All we can do now is look at alternative medicine and basic therapies to see if that helps.

Hope that makes sense. We are NOT giving up, we're just shifting our thinking and expectations.

Happy Birthday Sarah!!! Hope you have a wonderful day today.

Kelly - That sounds yummy! What time is dinner? Just give me about 6 hours to fly out there. LOL I hope your baby has a wonderful birthday today. Is lasagna his favorite? When we were little and even now for those of us that live close to my parents, my Mom would always make our favorite meal for dinner as well as our favorite desert. One of my brothers always picked hot dogs. lol Mine was actually lasagna or manicotti (sp??). Anyhow, hope he enjoys his birthday.

Vonn & Renee - I hear your dilemma. It's a catch-22 and a difficult decision to make. In my own case, it was easier as I wasn't really walking, etc., etc. and the serial flares kept coming. I will keep both of you in my prayers during this trying time.

Sox - Enjoy your alone time. I agree with Fin - get the chick flicks lined up, comfy clothes on, and plop on the couch for uninterrupted movie/me time.

Weave - Yahoooo!!!! You must be so excited to have DD come home tomorrow. I am sure she will have lots of wonderful stories to share with you once she gets some rest. Saying prayers that she has a safe trip home.

Kay & Kelly - I don't feel old enough to have an 18-year old starting college in a few weeks. Sometimes, I think DD16 is more grown up than I am. lol j/k She is very mature and wise young lady. Amazes me.

Hi Everyone else. Hope your doing well this morning and that everyone has a great day!

Good morning all! You guys are soooo fast ! I already can't keep up! I made something for a board buddy with my glue gun . Not gonna say what coz that would ruin it .

I'm gonna go back and try to read everyone's posts from yesterday and catch up. I don't think I'll EVER keep up LOL!

Hope everyone's doing well .

The darn roof repair guys were here three times this morning trying to collect payment from my LANDLORD! I told them to call her because she doesn't LIVE here. Somewhat of a language barrier involved, but they finally got the message. I even called my landlord and got her voicemail. She hasn't called back....hmmm, very interesting. I hope she isn't going broke !

HAPPY BIRTHDAY, SARAH 's

Tricia- I wasn't walking ...much...used the scooter.....had tons of support from my docs etc and have still been denied repeatedly been going on 3 years now....the ALJ judges decision is now under appeal but my working will eff that all up, but what can I do? They said it could take up to another 3 years!

Sandy- u explained it perfectly, the betadine thing seems sensible to me.

I have a job interview at a local mental health clinic tomorrow wish me luck!

Renee, Wishing ya luck at the interview!

Sandy, Thanks for explaining a little more. Hope this new approach really helps Jim out.

~~~~~~

I did forget to give you guys some good news, LOL! I was posting on a thread I started and realized I didn't tell you my d'oh! moment.

I've limited my coffee intake to only two cups in the morning. My fatigue has been manageable the past couple of days.

You'd think I would've had enough common sense to realize having too much of a hot breverage would not help with the overheating.

sorry I've been remiss in responding to y'all... it's just that on this borrowed computer, I don't get much time.

seems I read slowly these days...



Sarah, happy happy birthday, Lady !! congrats for making it through another year, with grace, love, and hugssssssssssssssss... lol !

Spitfire, good on ya, glad this doc takes time to explain... many don't bother, and when they do, they either go too fast, or use words we aren't familiar with.

NaeNae, prayers for the job hunting to go well, and yield you employment that is fiscally rewarding, not stressful, and satisfying to your mind and heart.

that's a lot to ask, but it's *everything* you deserve, so I put it in the prayers.



Weaver, Joelle, Julie, Angel, Kelly, and DiM, glad to "see" you around, and hope to see MUCH more of yas !!

Finny, we cut back on the coffee too... one small mug each morning, with a big dollop of milk, and off we go... for me, it's not the heated beverage, as we have our cups at dawn, when it's cool, and the milk cools it to "drink in four gulps" level...

my problem was the false burst of energy given by 2 or more cups, which led me to trying to MOVE too fast (good way to get injured!) or overdoing things under the wrong impression that I've got loads of ooomph.

so, 2 cups leads to CRASH 'n' BURN by 10 am, flat on my face in bed.



Vonn, peek a boo, I see you !!

Barb, keep it up, you can DO it... and remember, "Slow and steady wins the race."

*******************

my update-thing-a-ma-jigger-dealie-bopper:

the capacitors arrived from California, DD used hideously expensive international airmail... and my beloved eMac is now THOROUGHLY disassembled on the kitchen table.

mi esposo soldered in the caps, but ALAS, there's three MORE bad caps, in the power supply, and they're HUGE ones...

so, he just left for a little tienda he recently discovered, a dude who repairs VCRs and TVs and stuff... seems the guy has a big ol' JUNK pile of pieces and parts, so my honey is gonna spend a bunch of time searching through for matching, and hopefully FUNCTIONING parts.

this is good for two reasons, first, it means *I* get to use his computer (in peace) while he's gone, and secondly, maybe this will fix my computer, as the withdrawals are agonizing, lol !!

oh the agony, acme pc repair on the way

good day everyone how yall doing,

just a wee bit warm out more humid than anything

everyone be careful dont over do it today

Went for a walk then made my to do list. The list doesn't look too bad but it will keep me moving. How much progress I make and energy I have left will help determine if I go to a lecture tonight.

Off to ask a bunch of gardening questions on that thread.

Oh yes. Prayers for DD's safe return from her trip are greatly appreciated. I'm only a tiny bit excited about her return. Is it Friday night yet?