Hi everyone! Sorry I have not been on much. School gets crazy at this time of the year. Just two more days and I get a week off. I did just read many of your posts. I have been pretty busy with classes, meeting with desperate students who suddenly realize that their research papers are due soon, and attending meetings.

Kelly, I have found that ice sometimes help me too. I just put an ice pack on my head/forehead. I imagine I look quite comical.::o I am also taking neurontin for the burning pain. If I remember right you quit taking it? I am still dealing with the burning, but it is down to a more manageable level. And the icepick pain has vanished. Yeah!

Frank, I enjoyed the nativity scene. You guys are really into decorating. I am going to put up my tree and other decorations next week during my week off from school. I used to outline my garage and duplex, plus shubbery with lights, but can't do that anymore. I don't think I should get up on a ladder.:eek: I do decorate the door and front porch.

Sandy, I am sorry to hear about your brother. I have one brother (he is the oldest sibling) who is sort of the black sheep of the family. He has been married 4 times, and well, he is a bit or alot crazy, and has a problem with alcohol. He called me yesterday to see how I was and spent the whole time telling me about his health problems and how he knows he has lymes. Last year he was sure that he had ms too. A few years ago he said he was bipolar. Who knows? I do not know how wife # 4 stays with him. My other brother and two sisters will usually screen his calls and will not return them, but I occasionally feel bad for him. However, when he told me that he could not make it back to Ohio at Christmas because the trip is just too hard on him (about a 6 hour drive), I started laughing. I drive 9 hours home by myself. Sorry, I did not mean to turn this post into a diatribe about the "Bob" -- my brother.

Hope everyone else is doing ok.

Soxlady, I love pierogis. They remind me of Pittsburgh.

hello everyone well i leaned the wrong way and pop went my back, I am laying down, took a couple of these and a few of those and well I'm buzzed, back hurts but i am buzzed, ice is cold, Sooooo how yall doing,

Jim hope your back gets better, Sandy yeah Deb was thrilled

Soxie whats a rogie?

Kelly I am sorry about the pain I have been there I get ON it sucketh mucheth, hope you feel better soon remember to let doc know in a day or so, if it doesnt go away:hug:

everyone have a safe fun day


peace

Hmmm. I think your buzzed. ;)

Hope your back feels better soon, Frank. :hug:

aw, it's okay, honey.... that's what we're here for!

Bob sounds a LOT like my brother Dano.

*yeah, as in "Book him, Dano!"*

;)

that's why I hardly ever talk about him, if I got started, I'd just go on and on.

:hug:

after many years, nobody was ever sure when he was telling the truth,

if we five other siblings compared stories, they NEVER matched.

Dan only had 3 wives though.

Barb, my oldest is on his 5th and my youngest, if this last, is on his third. lol

Frank, buzzed can be a good thing. lol

Sorry you're in pain, Frank. Take it easy....were you overdoing it again?? :rolleyes:

My pain has gone elsewhere so that's fine with me!! It sure was bad this morning, though. Woke me up!! I'll never complain about the cat waking me again!! I'm not sure what it was or even if it was TN but it's gone so I'm not gonna worry about it.

I made a medication boo-boo this morning. Instead of taking just 1/2 of a Provigil pill I popped the whole thing before I knew it!! I have cleaned my entire house, done several loads of laundry, washed all the bathroom rugs, cleaned the front storm door glass, and swept the front porch. And ran a couple of errands in between to take several bags of clothes to the shelter. :D It's so nice to have energy.....and I seem to have plenty even without the Provigil but I'll take 1/2 of a pill 2 to 3 times per week if I have things to do.

Oh.....and I had a 2 hour phone fest with Joelle this morning, too!! :D :D If you all could hear our conversations you'd never think of us the same way again!! :p Joelle, you know what I mean....you know more about me than I do now!! :cool:

Well, I have no idea what's for supper and I'm not even hungry. Matt is going to his g/f's and it will be just me and Kevin. He goes to the gym right after supper each night so maybe I'll just ask him to stop at Zaxby's and pick himself up something. :o

Sox, I love perogies. I have to settle for the frozen ones, though.

Vonn, yeah....you're pretty goofy!! :D

Kay, I'll ask Matt if it would be OK if his Momma smokes MJ for her health!! :p I'm sure they have quite a stash of it up at HQ!

Fin, good luck with your cards.

Barb, sorry about "Bob"....I think quite a few here have a brother that's more of a hindrance than a help.

Thank you for the support and kind words!

I do have a list, Kelly, and I keep adding to it! :D

Frank, most of my customers know I have MS, and most of my colleagues. I'm just pretty emotional about it, and want the fewest days possible talking about it. I didn't think you were being harsh at all. And nope, no word yet on the disability. They just got my application at OPM about a month ago, so I'm looking at probably at least a couple of months, but miracles can happen, even in the government! :D

I'm so tired and SO COLD!!!

ahhhhh, no, babygirl.

ya wanna EAT it, not smoke it...

besides, the smoke stinks up the drapes and carpets!

and it works better in food, for TN and leg spazzes.

I have experience in this dept. so you'll have to trust me on this one,

:D

oh, and they weigh that stuff, ya don't want to get Matt in trouble for pilfering from the evidence room, LOL !!

more better some should disappear BEFORE it gets logged in as evidence, perhaps?

not that I would ever suggest anything against the law mind you, this is ALL said in jest!

:D

Kay, you must provide us with several recipes. I may have to sneak it from Jim though. He doesn't like to part with his precious stash. lol

um, I thought OPM stood for "Other People's Money" ??

I understand the angst of leaving work, it took me a *long* time to decide, and many accommodations were made so I could stay...

but finally, I just couldn't hack it anymore... I was using up *all* my reserves, and even future reserves, and coming home so tired, I'd fall asleep on the FLOOR, just petting the dog by the fire...

'm talking *before* dinner, and in my work clothes, like, four steps inside the front door, and ZZZZZZZZZZZZZZZZZZ...

B2Y, I'm holding you in my thoughts and prayers to get through this transition easily,

:grouphug::hug::grouphug:

I hear you, CK, except instead of coming home and sleeping, I come home and cry.

B2Y... I saved the tears for weekends!

:o:p:o

I was simply too TIRED to cry...

:hug:

I cry and then nap. I am a multitasker.

They have a trailer behind the HQ building where they keep all the confiscated drugs locked up...mostly MJ. Matt took me back there once....and there was alot of it and other stuff in there! :eek:

You know, that's where Matt found Gracie (my mini-hippo)...she was soooo tiny and he carried her around in the pocket of his shirt till he came home with her. There was a litter of four kittens and he said he and three other officers all took one each. Can't you just see them pulling someone over for a ticket, getting out and walking up to the car with a kitten in their pocket?! :D

She was just a teeny ball of fur...and scared to death. Now, she weighs over 20 pounds and thinks she rules the roost here.

so is *Gracie* an accessory??? or innocent bystander??? ;)

Ok, Kelly I forgot your cat was named Gracie and was sitting here trying to figure out what drug paraphernalia would resemble a hippo. LOL. You story is really cute though.

Additionally, I was watching the weather report this evening and it is abnormally cold where you are. Hope you are staying warm. I'll try to blow some warm air about due east. It was hot today. I still have my ac on.:o I think the high today was 86 and it was sunny.

Both DDs are out this evening - DD18 at school and DD17 helping at church. It is nice to have some quiet around here. LOL.

Oh, homeless boy won't be coming back here. He came last night, said he wasn't feeling well, and laid down on the couch. He was acting really odd and I was so tired I just assume it was because he was feeling sick. However, when I got up this morning I starting thinking . . .his whole story isn't adding up just right, call it intuition, I don't know.

So this morning I started questioning a little bit more about his family, his dad that apparently moved out of the country and didn't tell him or his sister, his mom, his grandparents, etc. I also told him what he needed to get help (SS card, photo ID and birth certificate). He said his dad has it and he can't get a hold of him. I told him to call his grandparents and he said he couldn't do that. So I told him I would call. The kid turned white and then said he didn't have the number. The whole conversation was odd.

I gave him $2 for an all day bus pass and sent him on his way with addresses and phone numbers of where he needed to go downtown to get help.

DD18 got up and was telling me about a strange mark that he had on his arm. She said it was weird looking, kind of like a mark when you get blood taken.:eek: (Good news - DD18 doesn't know what track marks look like).

Sorry I'm ranting. Long story short - I won't be helping him anymore.

Oh good lord Trish! Does he know not to come back to your house tonight?

Trish, Sorry to hear about that regarding the kid. It's never easy when you find out about these things. :(

He won't be coming by tonight. The 1st night he came I was straight forward with him - a night or 2 was fine but that was all I could do. He used up his last night. LOL. No, today I told him that he needed to leave, gave him bus money, and told him good luck. No offers for another night or even to give us a call if he needed anything.

Well Fin, he had a shaky past but pulled through all of it and had been doing well for a few years. I think the stress of being out on his own and feeling like he had no one there for him pushed him to go off again. DD 18 said he had been acting strange and not like himself.

EDIT: By the way, thanks you guys for your support. It is really hard on me as I tried to help him but had to draw the line when I started getting suspicious. You all are great!

Trish...wow...glad you were kind enough to help, but I am even gladder that you made sure to take care of yourself in that situation...:hug:

Kelly, hope your facial pain is not giving you problems...the hippo thing confused me too:confused:

I had my first IVSM yesterday afternoon...after about 10 minutes, I experienced a metallic taste in my mouth...later in the evening my stomach was burning, and my headache came back, off and on. I slept about 4 hours but as you see now I'm wide awake. I am hopeful that some of the stiffness I've been experiencing dissipates...I have the next two IVs scheduled already, and need to pick up my script for oral prednisone, as I'm scheduled to start them Saturday...
I was in denial all day yesterday...sat in my car in a parking lot telling myself, "I'm not that bad...I don't have MS...I don't need these drugs."

Now tell me, please, after almost 4 years of dealing with sxs, and wishing I could get an answer as to what was going on, why am I now not believing the doc? Is it fear? Or do I really believe I've overblown these sxs?:confused:

Good Morning everyone!

Tricia, please don't be sending any warm air my way!!! I love the cold and if I could have this climate year round it'd be just fine with me!! :D I'm glad that you got your "tenant" to move on...sounds like bad news to me.

Vonn, Gracie was at first a victim!!! Then she was an innocent bystander who became an accessory! :p

DebbieD, I think we've all questioned ourselves at one time of another...especially when the treatment seems worse than the sx we're having. That's one reason I don't do steroids any more. The side effects for me were just too much.

Frank, how's the back this morning? You better slow down...your body is trying to give you a hint.

B2Y, hope today is a better day for you! :hug:

I've got a few things to do today....run to the store, stop at the post office and oh, make enough macaroni and cheese for 25 people!! Kevin's work is having a pot luck lunch tomorrow and he signed up for macaroni and cheese. He knows just how to get me to do it, too....the little sneak!! He said "Mom, your macaroni and cheese is the best....can you make it for me so I can take it to work on Friday for the lunch?" How can I say no? :D I don't mind....I love to cook!

My TN pain (if that's what it was) is gone. Must have just been a temporary thing....but it sure did hurt while it was here!! Other than that I've been feeling great....energetic and the only sx is my numb hand which I have gotten used to...no big deal. At least I can still use it.

Everyone have a great day....:hug:'s to everyone.

Kelly, when I had TN, oh, maybe eight years ago, I thought it was something dental, like a wisdom tooth infection thingy or whatever, but the dentist couldn't find anything. The PCP finally diagnosed it as "mild trigeminal neuralgia". I remember thinking, "If this is MILD, I don't ever want the other kind." It only last a few days, intermittently, and haven't had it since. Hope you don't have it anymore either.

If I don't drive Bob nuts in the next two weeks, it will be a miracle. I'm right back and forth between euphoric and sobbing. At work, one minute I'll be saying "Bwaaahahaha, I only have to wrestle with this frozen lock nine more times!" and the next minute I'll have my cheek on my desk, almost in tears, thinking "This won't be my desk anymore!" I am so pathetic.

B2U - I am sorry you have to get done for the reasons you are but I am glad you are! :hug:

I haven't been on in a few days so please accept these hugs :grouphug: for all who need them and for those of you who don't you get it anyway! :D

I went to MIL yesterday so she could color my hair - so much easier! :) I drove back home and then went to a MS Seminar sponsored by Bayer. Got some neat new cool stuff and learned a little. If anyone is interested please PM me and I will give you the info. They are close to a pill form that you take daily.

Need to get my butt moving to head to school! Have a great day everyone.

Oh I have a terrible tooth ache but I think it is my sinus's again :( I am going to call the PCP this morning.

B2Y - :hug::hug::hug:

DebbieD - I can total understand where you are coming from. I was the same way when I was 1st diagnosed. Remember that we are here to help you through it.:hug:

Frank - I hope your back is feeling better this morning.

Kelly - Glad the TN (if that is what it was) is doing better today. You must be so relieved.

Char - I hope it's not your sinuses again. Also, glad you had a good time at the MS seminar yesterday.

Hi Vonn, Kay, Sandy, Renee, Sox, Sarah, Barb, Deb, Weave, DM, and anyone else I may have missed. Hope you all have a good day today.:grouphug:

good morning good people!!!!:hug:

Im off to do some christmas shopping. not much as legs are very sore.
could it be from standing and making pierogi for two hours??? will
be back soon.

much love and hugs to all who needs them.:hug::hug::hug: just love
for the rest of you!!!!!

B2Y, Nah, you're not pathetic. You're normal. :hug::hug: I remember my last two weeks of work being the same for me.

Char, hope you feel better soon. :hug:

Kelli, Mac 'n Cheese is yummy. LOL, maybe I'll have some for lunch today. Glad you're feeling better.

Debbie D, :hug: I think that's a normal response, as wacky as it can be. I was in denial from the moment they said "might be" up until I saw the diagnosis number on the top of one of my forms. Seeing that number rammed it home for me more than anything else. (Can you tell I'm a math person since it took that to get me out of denial, lol)

Hang in there, and I hope the med helps some.

Frank, hoping your back is feeling better. :hug:

Weave, :hug:

Everyone, :grouphug::grouphug:

~~~~~~~~

Morning all. Sitting here with my usual cup of coffee, trying to kickstart the day. Though I think it might be a slug day ahead.

Doc called. Xray looked fine, so they have me taking a med for about a week to see if things improve. Just in time for the Holiday, lol.

Hmm. I think I need another cup of coffee, lol.

howdy all,

As the weave turns or is like sands through the weave, dont you fret none, we are all here for support, and you have debbies and my prayers and positive vibrations:hug:

Kelly hope it stays away last two times I had it, it lasted 23 days and 17 days joy joy, like I said I get ON, so it is probably a bit diff then TN, glad you feel better:hug:

Bty I agreee with Char yeah it sucks but Im a thinking in the long run you will be happier:hug: and one for our Yabbit:hug:

Fin Trish Vonnie Soxie Debd Jim Sandy and our pixie dust shooting gal:hug: I hope yall have a wonderful day its snowing and as soon as I run debs glasses to her I am taking a couple of those and a few of these, good news its not a disc its just a muscle, at least I am pretty sure, either way coughing hurts like a dickens

My friends,:hug:

peace

Kelly ... oh, I meant 'victim' ... ;)

well, the wind blew enough and pushed the ice into the shore .. pretty neat how the waves were rolling under the ice and the ice was like jello!!

having a tough time typing .. my right hand (the one I write with too) ... the middle finger - knuckles are hurting so bad that I can't bend the hand into a fist ... so if it looks like I'm flying 'the bird' .. I'm not ... (not on purpose!) ...LOL

hope everyone has a great day!

Weave - stay strong .. the prayers are working because you are seeing the whole picture!!

Jenn - what type of med is suppose to WORK in just a week?? usually they tell me that it will take at least a week to see if it's working (that's why I haven't tried the Lyrica)

Char - you have me in suspense ... what color??? :p

p.s. no snow here!!! where is it?? :santa: Santa?? :hissyfit::hissyfit::hissyfit:

Bombshell Blonde, you silly. Didn't you get the memo and the attached pictures. She was doing this whole Marilyn Monroe pose. :D

Carp ... I missed that memo! :Doh:

HUGSSSSSSSSS all...funny I just typed I would be here less, then last night, hubby was like hey you love the neurotalk place..and he put page right on desktop..hehe for easier access!! hehehhe

anyhow, not doing too well, fell yesterday, got out of bed from a nap, numb feet and weakness, and fell ...my arm is hurting..but I am ok.

I am now feeling numb blahhh but on a clean house mission...it hasnt been decluttered in sooo long...need to get at it....thinking if I dont I wont want to decorate for holidays...I called my younger sister teasing her that I need her to help me declutter...although teasing...I think I do need some help....hard to clean regular areas with closets full of stuff....need that Clean House show....hehehe well you can see my floors...but still..would love someone to come in and take over..hehe

well going to do a bit at a time, so not to overwork self...gotta head back to work work tomorrow....I did clean the fridge out some...and scrubbed the door...as a munchkin around here thought the fridge door was a mural area to crayon and pencil up!!

hugssss all, sarah:) oh by the way 5in of SNOW fell over night....and more is falling now...very pretty...but makes me very numb (due to humidity) but the snow fall is a pretty site..maybe I will try to take a short walk in a bit.

Sarah, :hug::hug: Sorry to hear about the fall. Hope you feel better soon.

you all do know those "bimbo blonde bombshells " marily and jane mansfiled both had Iq's over 160

klutz :wink: i mean Sarah :hug: take it slow today, and next time double check your feet and legs I have to look ans see if my feet are on the floor cause i cant feel them, there are times i am numb all the way up my trunk I can walk but cant tell i am on the floor, definitely a weird sensation, be careful girl:hug:

Morning everyone! Not much going on today. Laundry. Blech.

There are so many of you that I am having a hard time keeping up. My copy/paste isn't working either dagnabbit. lol

I don't want to miss anyone so I am saying hugs to those who have fell, hugs to those who are ill, hugs to those that feel down and hugs to those trying to find themselves again. Hugs to those on a mission, hugs to those relaxing, hugs to those shopping and hugs to those helping others. Hugs to those trying to be all they can be and hugs to those who try but can't just yet. :grouphug: :hug:

It's so cold here I can't stand it. Still looking for that place that's 70's year round and cheap to live. lol

Jim's got a small bed bruise I am attending to. It's not open, just bruised looking on his bumm. Me thinks he sits up too much and needs to adjust his weight more often. Maybe he just wants me rubbing his butt more. lmao

Take care and have a good day no matter what your doing. :hug:

Thanks,
Frank, yes I cant feel them under me much....why I worry about my type of job...I am fast fast at work...on my feet..have to be ...fast food...so somedays I wonder how long I can continue my job...or if should be chancing a fall there!!

I should be taking it easy, but been on a cleaning spree...dejunking..washing some walls down..ahhhhhh feels good though...to use some muscles...so out of shape..surely tomorrow I will feel this and say...Sarah..Klutz...slow down means slow down....just on a mission....

Ciara is catching a Barney episode and singing the Barney song..havent heard that since Tony was sooo into that show....13 years ago when he was 2...heheheee

hugss all, sarah;)
(frank thanks, true should always look down make sure I am placed on the floor..especiallly out of bed...all goes quite numb overnt this past two weeks...)

venturing out this afternoon ...

NO SNOW!!! boooo!!

remember the song:

Fresh Air ... (Green Acres is the place for me;
Farm Living ... etc etc)

Frank just told me I am now an elder member. Whoohoo! Dang those years went by fast!

Hello all!! Just trying to get my energy going to give the Olhipie a bathe. I'll just take it slow...so we can both survive.

Hope all is well with all you my friends!!

Would like to wish everyone a happy leading up to the big eating holiday. Hey, aren't all our holiday's eating holidays???
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