Social Chat This is a place for daily chit-chat and other discussions that are not directly related to a neurological or mental health issue.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-03-2009, 10:52 AM #1
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default I'm Scared - What am I getting into??

I am bringing my Grandma home with hospice on Monday.

Many of you know the story, but for those that don't...

In January, she was dx'd with small cell lung cancer AND she also fell and broke her hip and wrist. We did a trial of chemo for one course and she did not respond well. In fact, she really went downhill. She has been in the hospital for over 30 days since January, then went to a long term acute care hospital for 21 days and has been in skilled nursing for the rest of the time.

She cannot walk and is not even strong enough to sit for very long. She has lost the ability to swallow and now has a PEG tube for enteral feeding. Her electrolytes and hemoglobin continually go out of whack.

We made the decision together a couple weeks ago while meeting with the oncologist to discontinue chemo. She said she doesn't want to live like this. I can't say I blame her. She hates being in the nursing home so it's time to bring her home.

I am terrified about how I'm going to handle this and how my kids will take it, but I really feel like this is the right thing to do.

I am excited in one way to be home. I have been running non-stop for 2-1/2 months between work, kids, the house, and trying to see her in whatever facility at least once a day. Now, we will just be home. Maybe I can even get my house clean again (I can at least hope)!

I don't know how much longer she will be with me, but I really hope this can be a positive experience (as much as that is possible).
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barbo (04-12-2009), braingonebad (04-07-2009), Dejibo (05-19-2009), DiMarie (04-25-2009), DM (04-03-2009), gardengrl (04-07-2009), Jodylee (05-06-2009), KarenMarie (04-13-2009), kimmie (04-07-2009), SandyC (04-03-2009), Taffy (04-13-2009), Twinkletoes (04-05-2009), who moi (04-16-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
help i am scared suziq Aneurysm 16 01-29-2009 05:29 AM
I Am Scared azoyizes The Stumble Inn 41 01-25-2009 04:02 PM
Scared!!! over0protected Reflex Sympathetic Dystrophy (RSD and CRPS) 6 07-08-2008 02:04 PM
I am scared Mrs. Bear Bipolar Disorder 16 02-05-2008 04:22 PM
New and scared daisy mae New Member Introductions 5 01-18-2008 05:21 PM


All times are GMT -5. The time now is 01:09 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.