"So what happens when you fall apart too young, seems to me you are penalized for getting sick to young."

- I happen, that's what.

I got my paper about how much I get, and it's a whopping 230$ a month. Because I just barely had enough credits to get it in the first place, as I've been disabled since I was 14.

It's bollocks, it is, but I won't look a gift horse in the mouth. I just wish I wasn't being treated like a lazy teenager who isn't -really- sick, just looking for a free ride...

i got my approval letter today. i'm happy but it says approved as of feb 2011. so that means no back pay... which is bs!

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That's rough Lenneth.

Do you qualify for SSI too ?

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Are you on SSDI because of the MS ? If you were only dx'd in August 2010 and became disabled around that time, that's why......SSDI benefits can't start until the 6th full month after the disability began.

I'm glad that you at least have the piece of mind that you have been approved.

yes i was just reading that lol. darn i was hoping for that wad of cash
i really am glad i got approved, its a load off my back

I do need help. I think it has to be with a lawyer to find those statutes however. I am being penalized, for not paying taxes on a home I do not own. I need a statute in writing about that. My home is in trust to me. The money from the trust is gone, only this house remains. My gov. would not let me keep the money in there so I could pay my taxes. I was required to use all monies before help was given, even though the trust said I may not use it for medical. The trust was to keep my in my house by paying for the taxes. Since they made me use it all up, I now have not tax money. Do you see?
The Gov. did not care what my trust said. I was not allowed to have it and when I just had medicare, I was responsible for the 20%. Hence all money was used up. It is a horrible situation. ginnie thank you for this venting space, I am going nuts with this

Again thank you both. I am grateful that you all listen to me, as I woke up in tears this a.m. It just seems so unfair when you do work hard in your life. My parents knew long before they died that I was in trouble. They tried to protect me with a trust. The attorneythat created the trust did not know any of the DCF rules, Medicare rules, Medicaid rules, SSID rules, and a bunch of other rules.. My government did not care one bit about his usless trust words against a government beurocracy. The trust said I could not, The Government said who cares, and said I had to anyway. Why should the trust be valid at all when it works against me with these acencies? I lost my food stamps exactly why? I could not pay my taxes for a home that is not mine but in a trust to me. This home I was given is working against me to receive my benefits. I may have to walk away from this place lock stock and barrel. My mom wanted this home to be a refuge for me, because she knew I was falling apart. I cannot figure out why all this is happening? Distress is somewhat of an understatement. My PB was 225/100 three weeks ago. I was lucky to be in the doctors office when it happened. Litterally an emergency on site. I told my doctor what was happening with the social agencies, and my family. I have to take part of my family to court. I am unable to cope with all of these things. My body is having a hissy fit. If I have understanding from anyone out there, about this situation, I am grateful. Just knowing there are people who can relate to serious issues, helps. I think if I do not find some peace and resolution, that it may cost me my life. I had that big cervical fussion last year, and it has been non stop for medical issues since. You all know about that kind of stuff too. Yep I am deep in the Shat so to speak. I'll be back around. This brings comfort. ginnie

Hello and I hear you. I am sorry this happened to you at a young age. I was 29 when it started, meaning my body started to decline, auto immune problems. After 20 years, I only get $254 for dissability. I didn't pay into the system enough. I was an artist and raised two alone. My CPA during that time knew I had to use every last deduction I could, to be able to have enough money to sustain my family. So from the beginning of my life with children, I set myself up for failure financially. That is when my folks started to put aside money in a trust to me. They knew in my older years I was going to have trouble. The trust worked against me as I have been yaking about. I tried legitimately, to make a good living, doing the best I could as a citizen. My beef is they make you go into poverty before you get help. That no insurance stuff for pre-exsisting conditions cooked my goose good. There were no policies that were affordable to eithor me or my parents. The whole system isn't good to people who genuinly try in life under the hardest of circumstances to do the right thing. I am now pushing 60 and the truth is I could indeed loose the home my mom gave to me, after all that hope and planning, just because some dumb attorney didn't know what he was doing.
I know about not looking a gift horse in the mouth, and I am happy you did get your dissability. I hope that you and your family make the best choices possible, for your future, and not repete for sure what my folks did. ginnie

Not sure yet. I keep getting letters that say, "Even though you have been denied SSI..."

And then like the next day I get a letter saying, "We are trying to determine if you are eligible for SSI."

They can't make up their minds, and yet I know they're holding my backpay because of it.

Sigh.

I have 3 credit cards I've been living off of, and they're all nearly maxed out.

I don't know how much longer I can hold out for these people - I stress myself sick over it!

Hi Finz, My son did not give me the money for my taxes, because medicaid limits the amount I am allowed to have in my possession at any time. $1,000. If I go over that, they reduce my benefits. How am I to receive $2,400 in a gift they don't allow? No, Sean had to pay out of his own pocket. The attorney today hadme get a copy of that check my son wrote. This is way out of my Lawyers expertise, and not many in these social acencies have the education to be able to deal with a complicated trust. They acutally asked me what some of it mean. I had to go to my Church and their lawyer to get help just to receive medicaid. The trust is a horrible document, written with a lawyer who knew nothing about the laws with SSID Medicaid, Medicare and the DCF. I am trapped in this document/ and with the social acencies knowing nothing really about it. They just took food stamps away from me because I did not pay taxes on a home I do not own. Go figure. I think they are the one who are crazy. ginnie, My lawyer is afraid for me too.