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09-15-2016, 07:11 AM | #19 | |||
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Grand Magnate
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Just spoke with Saraeve my eldest child She is 35 This I mentioned already to you I want you to know something very important When my child Saraeve had her first seizure I cannot begin to tell you what the next ten years had in store for us I went through the entire process including all test and the brain surgeries She was in her very early twenties Her first doctor neurologist Dr. Rosenbaum of Teaneck NJ NEVER I MEAN NEVER dismissed what she would express to him how her out of body experience felt like For her she said it was like déjávu She still to this day has many moments feeling that out of body experience Surgeries did not help And she lost vision in right eyepermanently Blind in right eye She has learned to live with it However my point I want to make This doctor never NEVER gave up on my daughter Most every test and I mean sooooo many tests and then the meds It was very frustrating for her doctor knowing what she was going through and it was real NOT IN HER HEAD WHAT AN OXYMORON In the end while hooked up in the hospital and I mean hooked up wires and leads all over the place and then it happened as the doctor was trying to provoke a seizure she had one alright had a grand one passing out Her entire brain seized She was passed out for a short period of time As each time one suffers a seizure brain cells die on a much quicker scale Again my point YOU STICK WITH WHAT "YOU KNOW" "YOUR OWN BODY AND MIND" Don't let anybody tell you what you are feeling Unless they have the same issues as you and my child have gone through She never allowed the few doctors who told her there wasn't any thing wrong Guess what She was diagnosed with "occipital lobe epilepsy" In your faces to the doctors who tried to make her believe there wasn't anything wrong I believe you 110% I'm going off subject for a moment BECAUSE You are such a smart young articulate human being You have much to offer with this horrible feeling it causes you to feel And you help others by expressing your story The reason I changed subject You again are so aware of your own body I so impressed Recognized when missing your dose how your body and mind behaved Chances are you are 100% correct that it is from the missed dose Just to help you understand I get you I want to share something personal I had a double radical mastectomy 1/9/2012 After finding my cancer lump in my right breast Know this as a FYI Men too are to check their breasts as they to are equally susceptible to the same disease as women BREAST CANCER Statistically neck and neck with women I was floored to hear the statistics We hear you loud and clear And I hope and pray there be a better understanding of how it affects our brain and body I speak of medicines I began taking the medicine called tamoxifen This drug shut down my estrogen out put Shut my estrogen down Because my breast cancer is estrogen driven CAN YOU IMAGINE IT HAD TO BE THE FEEL GOOD HORMONE MY BODY PRODUCES NEEDED TO BE SHUT DOWN And what followed wasn't fun My feel good hormone gone Causing me to feel unnatural thoughts and physical changes This just a small example The facial hair much thicker on my face I can still get away with a decent look You know what mean Like under my nose A slight mustache I never liked waxing or any kind of hair removal So I bleach it Like I said I can still get away with it But it's there And it's not my imagination what I feel Depression of another kind added to the other stuff And this new kind of depression that began as a result of my estrogen depletion being on tamoxifen Went through menapause quicker I know my body like nobody else As do you know yours I know my brain and what it feels and thinks And I so understand your frustration If and until this all works itself out with your doctors you MAKE them listen I have such HOPE for you And no fault of your own And certainly not something to be embarrassed about Stand firm Sammy But in the meantime If you can remember You are responsible for your happiness With what you let in and out of YOUR LIFE You matter You are a strong individual who has a good grip on what's happening Making friends isn't easy But you keep fighting this fight Don't let it consume you Make time to give yourself HAPPINESS HOWEVER you may Just get that belly laugh in a day would be an awesome thing Wouldn't you agree Who doesn't like to laugh Glad I dropped bye I will do so every once in a while You matter And so many care about you Have a wonderful day Know you are thought about Enjoy all you can Life goes on by just so quickly Make it count for you Love Me
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someone who cares eva Last edited by eva5667faliure; 09-15-2016 at 10:46 AM. |
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