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Old 11-20-2009, 03:31 PM #1
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Default Getting used to it

This isn't a whine...or maybe it is, I don't know.

I was just wondering if I'll EVER get my mind around the concept of having a shorter day than most of the rest of the world? I'm talking about "usable" hours.

It takes me an hour or two to pull it together physically in the morning, between MS and arthritis mostly, and then I have anywhere from three to five "good" hours (relatively speaking) before things start going downhill.

Somewhere along the line I started thinking of 3 p.m. as the end of the day, even though I'm still technically up for another five or six hours. By 5:00, I'm circling the drain.

Even though I made/make the conscious choice to accept life as it is and adapt to it as graciously as I can, almost every day I catch myself thinking, "What? I'm STILL broken??"
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Old 11-20-2009, 03:57 PM #2
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My days are shorter. It takes me more time to do less. Very frustrating. I need a nap 1-3. By 7:30 I'm in bed watching TV. Going out is tough. I told DH, out for lunch is better for me than out to dinner.
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Old 11-20-2009, 04:19 PM #3
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yep, that sounds just like me too.
by 2-3 i'm ready for a nap. by 5 i'm done. i almost never go out in the evg.

i could be your twin.
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Old 11-20-2009, 05:31 PM #4
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I hardly ever go out in the evenings unless someone else is driving. Like Kicker, I'd much rather do lunch.

Since I've been at home my schedule has changed drastically. I no longer worry about getting my sleep at night because I know I can nap.

It takes me longer to get ready to go anywhere now. Gone are the days of "spur of the moment" outings. There's too much to consider.

But, I find that I enjoy the outings that I do plan for and know about ahead of time. It's something to look forward to.
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Old 11-20-2009, 06:02 PM #5
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One more reason I love to come here. When somebody says "I know what you mean", you really DO know what I mean.
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Old 11-20-2009, 10:17 PM #6
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I remember when I was first having my MS problems, so long ago, I started to feel tired early - around 11 pm or so - or found that shopping for the entire day and into the evening was getting to be tiring. Years later 7 pm was when I started to get wiped out, then 5 pm, and now if I can make it to 3 pm I consider myself lucky. My biggest problem is my DD gets off the bus at 3 and comes into the house like a whirlwind while I'm trying to figure out just how the heck I'm going to make it through the rest of the day and get her to her activites at night.
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Old 11-20-2009, 10:26 PM #7
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I'm with you 100%, Blessings!
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Old 11-21-2009, 10:16 AM #8
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It really hits home when you compare apples to apples. I used to be able to steam clean the 3 main rooms downstairs in a day. Easily. I'm working on that this week. Two rooms down, one to go. I started Monday. Now it'll have to wait till Thursday, because the grandbaby is coming.



Circling the drain. So well said.
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Old 11-21-2009, 02:18 PM #9
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I must be the weirdo in our bunch . It takes me a couple of hours to "wake up" in the morning then I feel ok for an hour or so. I come crashing down after that. BUT I feel ten times better at around 7 pm until about 11 pm?! I can't figure myself out at all. It doesn't matter what my routine is on any given day. This is just how my body/mind seems to work, at least for now.

What really stinks about this is that my night vision stinks so I won't drive when I have the most energy. There's always a Catch 22 when it comes to this disease.
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Old 11-21-2009, 06:38 PM #10
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I have kind of a second wind from 7 to 11pm, too, most days. I must have my 3 to 6pm nap every day, though.
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