This forum goes on and on about how great it is with supporting and reaching out to help each other

Well like other boards I've 'tried' joining, all of them including this group is a clique!

Yes I know many of you have been on the board for years and years. That's who many of you only respond to - each other.

Also, since the majority of you are American it seems you discriminate. Yes Yes I know there are a few people from Australia (only one I can think of) maybe one from S Africa. But most of you behave like a 6th grade school yard. The popular kids and the unpopular.

I live in a different time zone 7 hours ahead.
I am quite aware that chatting live with someone is near to impossible. But a nudge, an acknowledgment, more than a 'thanks' would be nice.

The only time I get a real response is if I PM someone directly - to those folks thanks you've been great.
But what is the point of posting and hoping to get a response 'ANY RESPONSE' but only get 3 responses to 10 posts you put up?

Isn't it bad enough we struggle with our own health and we come here hoping for indiscriminate help, we have to wait and hope someone greets you, responds to your post or simply reaches out.

I know this sounds like I'm whining - I'd rather say something now then disappear and not share my feelings on this 'support' board.

Maybe its summer, maybe the board needs to revamp their style and inclusion clause, maybe some are too sensitive to be here.

Well, it's been fun at times, but mostly lonely for me.

I'm gonna take a break and regroup.

Thanks

We are not, in the least, a clique and have always tried hard not to seem so. You are right, things are very slow now and it hurts me too, but it may get better, in time.

Yes, you are a bit touchy....most of us with MS are.

You have misjudged those of us who are here, but thanks, for giving us such a fair chance.

I'm sorry you feel this way.

My only advise on this is that sometimes people aren't sure what to say or don't have any advise so they just click "thanks". They do that so you know they are reading your posts and trying to show you they're there.

I don't post often but I say "thanks" a lot.

I hope you stay and keep posting but please don't feel you are being ignored.

Have a great day!

Kristie

um, wow. I am sorry you feel unheard. I dont believe anyone here would intentionally ignore you, or pass by your post and not comment based on who you are, or where you live.

I know I personally am quite busy with a sick cat. An aunt who died, a family behaving badly, and I am trying to readjust to life off of copaxone, while trying to keep up to my marriage, and ....im busy.

There are some post that I read, and find I dont have anything to add, or contribute, so I tend to shut my mouth. There are some posts that I see the title and I skip past thinking I will get back to it after the dishes, or laundry, or ...

Im sorry that you feel this way. please accept my hugs.

NeuroTalk is a wonderful site and is a source of great support to a great number of people.

Our MS community is quite large....and has many members who have been here for years. We were all new at one point in time.

Those of us with MS know what it's like to have only enough energy to read the posts and/or click on the "thanks" button just to let the author know their post was read. Sometimes we just don't have the energy to type a reply. Or it's a bad cog fog day and we can't formulate a sentence much less an entire post.

I've taken a look at all the threads you've started and there are many responses. It's unrealistic to expect a huge number of responses to every post you make. Heck, I've started threads that have gotten no responses. That's just the way it is some days. Everyone has stuff going on in their personal lives and doesn't always have time to personally respond to every single post that's made. That's what the "thanks" button is for. It acknowledges that your post has been read.

To accuse the other members here of being discrimanatory is simply not true. I'm not sure how that conclusion can even be made???? Yes, there are many different nationalities represented here but we take great strides to keep everything fair and unbiased.

I'm really sorry you feel the way you do. I hope you'll take another look around here and give it another chance to work for you.

Oh MMW. don't go. I am probably guilty of not responding and you have my sincere apology.

Wow...I was taken aback by your thread, quite honestly. This, in my opinion, is the LEAST cliquey group on the internet. We all are ill...and as was said in previous posts, occasionally only lurk, clicking a "thanks" to let you know we've read your thread/post.

There are people here from down under and across the pond...many of the posters who were here when I came on here are gone, and others are newer.

Do what you feel you need to do...but we are not a clique.

MMW,
I can't believe you can't read my mind!!! I always enjoy your threads, think about my response IF I had the energy. If I'd posted my joke (IF), think you would have laughed. I used to think I was a "thread-killer." Once I responded, no one else did. The years go by, I've got some who will talk to me in PMs once in awhile, but not a lot. None of the cool kids (who are they anyway?) sit at my table but that's OK. The reality is we're all just sitting at a computer, with "virtual" friends. My friend in the UK says his kids told him "All your friends are virtual." I belonged to a board I thought was really clique-y, someone "flamed" (and cursed me!!) at one of my responses and I deleted that board from my bookmarks!!!! (they hurt my feelings) Sometimes I make me be part of the real life around me here at home. I leave the peaceful virtual world. Everyone is out now, so I'm on-line. Sometimes DH. kids, animals, etc. get messy.
Don't go. View and participate when you want. Like your voice.
Some I avoid. Never read their threads. Yours I read.

There's cliques and popular people??!! Why wasn't I invited!!??




mrkmyword,

I remember posting on my very first message board, I felt out of place and awkward...just like many new people feel. As you post more and interact with other members the more comfortable you can feel.

Certain times of the year forums can slow down as everyone is off doing different things. The MS forum has it's peaks and valleys - sometimes slow moving other times a little busier.

Kicker? There's cool kids??!!

Snoopy. I thought you were cool so I tried to be friends with you. Let's start our own clique. Vampires or cool or something. You get the jackets, I'll work on a secret handshake.