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Old 04-29-2012, 01:02 PM #1
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Oh heavens to betsy, no! Thanks for the suggestion, Doydie, but just the words "hosting an event" gives me palpitations!!
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Old 04-29-2012, 03:55 PM #2
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Does me to! It would have to be a very, very good friend or a relative for me to do it. And I would have to pay lots of money to have my house cleaned beforehand also. But some people do it so they can socialize
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Old 04-29-2012, 04:04 PM #3
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Once in a while I miss socialization--kinda--but when I do, I get on the phone, get online, get groceries (always run into someone I know), or maybe my son, daughter, or granddaughter will drop in. It sounds awful when I hear myself say it, but sometimes being with people is more tiring than it's worth. Not always, but sometimes.

I'm getting more forgiving of people for doing "the wrong thing". They're not REALLY morons. It's just a roll of the dice on any given day whether I'm going to be "fer it" or "agin it".
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Old 04-29-2012, 09:13 PM #4
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Quote:
Originally Posted by Blessings2You View Post
It's just a roll of the dice on any given day whether I'm going to be "fer it" or "agin it".
Perzactly!!!
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Old 04-29-2012, 09:38 PM #5
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A girl that I work with always invites me to exercise with her. I have gone three times in a year and it exhausted me each time. She doesn't ask me anymore. I can't tell her the real reason but just joke that I'm old and tired after standing all day. I totally get what you're saying. I rarely accept social invitations anymore. I can't even get to church since I work on Sunday most weeks. I was prvileged to have today off and I did go.

It's hard for others to understand. Sometimes I'm tempted to tell at work about the MS but I know that would make it near impossible for any promotion in the future.
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Old 04-30-2012, 06:58 AM #6
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I am or was part of a woman's group that meets once a month 9 months out of the year. When I got Dxd with MS I made the announcement that you simply couldnt count on me as "hostess" or the person who brings the food and chose the topic or the speaker for the day. The women were so kind. One volunteered to be my "hostess buddy" so that If it was my turn in the rotation, and I needed help, just call. she would be there. Others allowed me to be pulled out of the rotation for as long as I needed. Just come, enjoy some nice home made cake, and hear a speaker. I heard topics about hospice. the childrens home, the local florist and how to best care for your flowers, a cake maker on tips and tricks. A local woman who does your shopping, preps your meals, and loads them in the freezer. So, it was nice to get out for short visits.

Perhaps if you felt up to one, they could come get you and get you out of the house for an hour. The speeches are short, and enjoyable. the company is lovely, and the food is amazing. I have an agreement with one that anytime I want to end this and go home, she will leave the meeting with me, and take me home.

Im one of those that cry about how lonely I am, yet the phone rings and I blurt out WHAT NOW! Why wont the stop bothering me!?! I cant have it both ways I suppose.
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Old 04-30-2012, 07:24 AM #7
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I enjoy getting an invite, as many have 'forgotten' those who are different/ill, etc. I also try to remember that while I live this everyday and know how hard is is to get to the door, etc, I have to remind myself that others who call on me don't really know - even if I tried to explain it to them. Heck - until I joined the ranks of those with a disability I didn't truly "get it" either.

not telling you your feelings are wrong - just trying to give a different perspective to think about it. I don't think that women meant anything other than trying to be welcoming to you.
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Last edited by jprinz99; 04-30-2012 at 07:26 AM. Reason: type-o
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