Howdy folks!

When dealing with my recent MS relapse, and still on steroids for that matter, I developed a HUGE outbreak of red, raised, hard bumps on my legs, from the knees down to the feet themselves. They were super painful, and for 3 weeks I was virtually unable to walk. The pain was obscene, swelling caused my ankles/feet to swell so badly I couldn't put on my shoes (had to wear my sandals, still painful, and not going to work in the Winter!).

So the E.N. is finally fading away, the spots that had been super inflamed are now dry to flaky skin.

I was sent for blood work, and I thought when I went "Hey, this is good, now they'll find something that explains why I have these spots!".

Wrong! Blood work came back 100% good, no inflammatory process could be detected.

Sigh... in another limbo. Has anyone else developed E.N.? I've found some folks on social media who have this (or had it at one time). Not pleasant!

(my first encounter with E.N. was mid-August of this year, and it was quite mild in comparison with the latest outbreak, which was unbearable)

I wanted to post on this board, as E.N. is completely (to my knowledge) unrelated with MS. It's a flare up, relapsing/remitting skin condition with an underlying cause (although a lot of people can never pin down what's causing it). New to me, I hope none of you have 'experienced' this, but if you have I'd greatly appreciate hearing your feedback/input. My GP had literally no advice to give about managing the condition.

Still waiting on a rheumy appointment...

Good Lord Laura, no, never heard of it. Are you sure it wasn't a reation to meds? Soumds like an allergy or something like that..

Sorry to hear about this, Laura. Like you needed another ...something!

Sally, it looks like it can be a delayed reaction to drugs among many other reasons.

ANN

I had a very severe reaction to a chemo drug 4 weeks ago that sounds similar.

My hands, arms, feet, and legs turned an angry purple red, numb, burning, stinging, swilled beyond belief. I had to have my rings cut off. Then it all turned bright red and blistered under the skin. Started to peel, still is.

Extremely painful, 5 days of steroids and that was it. Med onc called it hand foot syndrome, but it went way beyond that.

Chemo has been stopped until after surgery, he doesn't want me to have more. Depends if the surgeon gets all the cancer.

So yes, I fully understand this pain. I hope neither of us ever get it again.

I forgot to post the link yesterday:

http://www.hopkinsmedicine.org/healt...sum_85,P00283/

ANN

Almost sounds like cellulitis...