Update on my mom and everything else

Jodylee · 04-05-2008, 03:23 PM

I know I haven't posted anything lately about my mom and dh so I figured I should update

. I will try to keep it short

.

My mom is not doing well. She is in a skilled nursing facility until Tuesday when she will be released to go home. She had a bout of pneumonia and also had to be taken off of the heavy duty pain meds that were causing her to have dimentia-like symptoms. Now that she's off of those meds she is back to her old, coherent self

. She has another month of chemo and radiation before she gets a realistic prognosis. We do know that she will not survive this cancer

, barring some kind of miracle.

I'll be leaving Florida to go to Pittsburgh again on Wednesday, April 9. I bought a one-way ticket because I really don't know how long I'll be staying this time. My poor dh and sons will have to fend for themselves for who knows how long.

My mom really wants to go on a spa vacation and take my sister, me, my aunt and maybe a couple of others too. We are going to go the Bedford Springs in PA. My dad is footing the bill for all of us because this is what my mom really wants. We would do just about anything for her right now. As soon as she is done with her treatments, the oncologist's office said she can do whatever she wants. They believe, as do I, that keeping her spirits up is half of the battle.

Speaking of dh, he is still not back to work from his butt surgery. He is still having a lot of pain

and he is a pain

in the ****. Tim, dh, goes back to the surgeon on Tuesday for his follow-up. It took him quite a while to get over the fever he had from the infection. He still had a temperature of 101.5 on Thursday! It is gone now, thank goodness!

I officially start on Long Term Disability as of April 23. I've finally come to terms (I think) with the fact that I can't go back to work

. It couldn't have come at a better time because now I get to spend as much time as possible with my mom and dad

. I am a little worried about how this trip is going to take a toll on my health. I feel guilty for thinking about myself at all though. My extended family just does not understand the concept of "exhaustion" when it comes to MS. ARGH!!! You all know about dealing with non ms'ers and their take on what exhaustion is

.

Well, I think I've rambled on long enough

for one post. Oops, one more thing, I'll be missing in action from the boards most of the time when I leave home on the 9th. My parents don't have a computer. I don't drive much so I can't get myself to one very often. I will try to check in every so often because I will be going through board withdrawal for sure

.

to all!!!

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