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Old 07-31-2008, 10:45 PM #2
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Join Date: May 2007
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Natalie

Don't let the news get the better of you. The risk is no different now than when you started on Tysabri. The label has always said the risk was there. These people are still alive, they have not died. I know it's scary. We all went through this when Tysabri was pulled off the market before.

I had two infusions when it was pulled off the market. I was scheduled for my 3rd infusion the day after it was pulled. Then I fought with many other people to have to put back on the market.

The media was on a feeding frenzy. They didn't report the facts right, they skewed the data, they made it sound like we were all crazy for wanting this deadly drug back on the market.

When in fact, the statistics were mostly media hype.

I testified in front of the FDA, along with 45 others, to bring this drug back on the market so we could have a choice.

It's closely watched and monitored. Nothing is absolute. But I do understand your concern. Been there done that.

Relax and let all this hype die down. I am not trying to minimize what's happened, just letting you know that the risks are there for every drug on the market. EVERY drug.

PM me if you want to...

Natalie. It's tough being alone. I know.
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Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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