I hope that clears up soon Linda..

Well, Linda at least if they are changing the antibiotic on the basis of a culture w/ sensitivity you should have that knocked out in no time!!! I mentioned yesterday about really feeling the results of the pump, well.. I do not know if I like it, and last night was the first time in nearly 3 years I was able to sleep over 6 hours and final bit prior to awakening were filled with strange dreams which I can do without... I am starting to feel I made a mistake being talked into getting the pump. I should have waited and just went out to Colorado and let Dr Sanders do his stuff!!! I am glad for Peachmom that she has found a Dr that she has full trust in as well as her PT and wish her well with surgery!!! Please let us know further details as to when you surgery is gong to be!!! By the way who is this PT that you are seeing... is it someone in the Wilkes-Barre area, afilliated with a hospital or independant?

Mark

I'm glad the pump helps with pain but sorry about the side effects. I have been taking pamelor and I have been having really weird dreams. I understand you are getting some straight sleep, but if you are having crazy dreams, that isn't good.

Actually, my arm is hurting worse right now but I thing the antibiotics need to take effect. The doctor said if this doesn't work I need surgery so everyone keep your fingers, and toes, crossed! Thanks, Linda

Linda.... I hope the antibiotics knock out that infection!

Mark... I'm sorry the pump is giving you side effects, but I am glad that you're getting some relief from it.

So, I went to the ortho today to go over my MRI of my knee. The doc found a quarter to half-dollar sized cyst in the back of my knee. However, the good news is that the MRI didn't show anything torn. After finding the cyst tho, the doc was kinda surprised that he didn't see anything torn. SO, I had a cortisone shot in the knee today, and hopefully that will calm things down enough and the cyst will go away. If it doesn't, then it looks like surgery. boooo.

everyone - take care...

Dabbo Sorry about your knee. But at least you found the cyst and can treat it. It's a good thing nothing was torn. Could the cyst be causing the trouble or is it a sprain? Best of luck and hopefully the cortizone will help. Linda

Today I...cried. I got caught crying. I hate that. I try to be so dam strong and tough. My motto is..don't let them catch me in tears. I can beat this...can't let it stress me out...don't get worked up....BUT DAM!

I had so much pain this morning I couldn't breathe. I was so dizzy today I couldn't walk straight. I tried a hot shower, I tried laying down, I tried breathing exercises...you name it I tried it....didn't work. I kept dropping things all day. My hand is so cold and numb with tingling. I have been though a lot in my life...been dealt the bad hand many many times...I somehow got through it. I had many surgeries...got through it...had pain...it went away.....THIS DOESN"T GO AWAY! I can't sleep...can't do anything! I hate it...I hate everything about this awful TOS! it's horrible and it destroys your life. People without pain have no clue how bad this pain is. They just have no clue. It's also very scary not knowing what my future holds. I'm angry! My life will never be the same! I guess all this venting doesn't do anything for me either but I needed to let it out. I'm sorry.

Good night all. Hope some of you are pain free this cold, damp sunday evening.

Momz This is one place you do not need to apologize for venting or being angry. We all at sometime, or, all the time feel this way. That's why this site is here. I went through so many surgeries, pain, etc., and I thought it would never get better. There is hope and there can be some relief. Have you had surgery recently for TOS?? After my last surgery it took one year before I felt relief. There is nothing wrong with crying. Sometimes it can just be a good release. When my son broke his leg, that night when I drove home from the hospital I was crying so loudly I had to turn up the radio so no one else could hear me. Having him break his leg was 1,000 times worse than I thought I could feel. Pain plainly sucks. Do you go to therapy? or a hot bath. Somethings help me but not others. It's hard to find the right thing. Sometimes just spending the day in bed helps. I hope you can get some relief so you can enjoy the holidays. Please vent anytime and it might make you feel better. Linda

Momz - Dont be sorry, its quite alright to be angry and even to cry! I did. Sure you're tough, so am I, but we are also human and it is beyond frustrating to feel that you have no control over your body! You're having surgery this week arent you?

DDay - Would insurance cover your treatment in Colorado?

LinJane - hope the arm is doing better!

MtnMom... have to see what comes about with the bills with the pump... right now they are saying I owe $65,000 along with assorted other doctor bills which come to a total of $10,000 so you can say my insurance company is really messed up!!! Almost time to declare chapter 11!!! I would like to come back out to let Dr Sanders do his stuff, I was impressed by his consult he set me at ease and I have been in contact with him several times, when I am ready he says let him know!

Lin&Dabbo... it is only a start in releaving the pain and between myself and my friends here I do not know if the side effects are truly worth it! I told my wife I am only going up one or 2 mg more and calling it quits and telling the doctors what they want to hear!

PeachMom... Please do feel free to vent we all go through bad times and sounds like you need to ask your doctor for some better pain releif till you under go your procedure!!! I know exactly what you are talking about I live in the same damp, cold area you do and this week is going to be filled with snow, sleet and freezing rain and I can see a lot of time rocking back and forth in my chair walking the hall or curled up in a ball!!! What stinks worse is throw in some RSD the cold causes my skin to feel like it is on fire, but that is another thread....

Has anybody heard from Barbara, Victoria, DiMarie, Dawn, Laura oh heck the list could go on forever and please free to add to it or answer it if you heard from thes persons be nice to know they are doing OK!!!

Well hope all are warm and pain free... Mark~n~Goober

Mark I haven't seen any posts from anyone yu mentioned. I just hope all are ok and busy doing other things. I am sorry you are having such a hard time. I reember being in that horrible place and not knowing what to do. I am doing better with that pain just tryng to get through the other with the arm. I feel like such a looser. I don't even tell my friends when they ask how I am. "Oh by the way, I have a staph infection in my arm!!" I have TOS, my son broke his leg, yada, yada, yada". I know you all feel the same way. I want to concentrate on Christmas. I haven't started shopping but I am going to try tomorrow. Alittle spirit is needed for all of us! We have had Mary Poppins on TV and I hope everyone has a good night! Linda