Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-14-2006, 12:11 PM #201
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The worst of the wind storm went to the south of us - we didn't even lose power.
But the Oregon coast had max wind gusts to 104.
Others had outages - most fixed the next day.
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Old 11-14-2006, 03:36 PM #202
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today I had PT and it is cold and wet, I hurt like heck and had a wierd thought of Pauley Shore saying OK Budd-ddy dont ask I swear it is the weather causing me to flipout
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Old 11-15-2006, 07:45 AM #203
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T O D A Y I......

am glad for Jo that they weathered the storm with little inconvience and hope that soon the sun may shine on her face !!

pass along to flippin, I think we all get weirded out one way or another when the barometer decides to change for the low side.... maybe we should all become weather forcasters... what a job being able to be wrong 50% of the time and collect 100% of their pay !!!

My wish and thoughts go out to those in pain and surely hope that this passes soon.... ~GOOBER-n-MARK~
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Old 11-15-2006, 11:50 AM #204
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Default rain, but staying warm even at night here in Ontario.....

hi all,

hope pain levels low for all today praying and wishing for this for all. it is thankfully nice here in Ontario....Toronto area it is 9-13 deg C and is not bad at night thankfully the whole winter coat thing is a daunting thought and I hate the weight it flares things beyond belief!!!!


So here is to warm weather here for a while ....need to be in a tropical area.....hmmmmmm mayan riverea????????? who knows hopefullly I will be going away soon for a holiday got the bikinis already....can't wait to go......sooon ......second weeek in Dec I think...or third...back JUST before Christmas......oh the beach and sun is just what the Dr ordered.....(me I mean lol !!!)

take care alll,
Victoria
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Old 11-16-2006, 02:26 AM #205
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Default Today I..

want to add some weather informations too: here it is again mild (too warm for the season they say) during the day. In the morning and in the evening it is fresh/cold but the real winter didn`t start already. It is fine but on the other side a lot of people catched a cold.

I am not in a big flare but the whole day my arm gets cold, then hot, then it is like electricity, etc etc etc. I think my arm is going mad but I ignore it as good as possible.

Mark, thank you for the good advice (eins, zwei, trinken!) - I apreciate the humour, it is the best medecine.

Wish you all a good automne day without pain.
Barbara
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Old 11-17-2006, 08:30 AM #206
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TODAY ....
Am wondering if Victoria has a bit of extra room for a big package in her luggage some warm weather and a soak in some warm salt water would do one good... enjoy !!!

Barb, unfortuately, I am sensitive to the cold all-in-all. doc says it has to do with CRPS and aldonyia. My hands actually burn from the cold and causes my chest to tighten that at time think I am having a MI and yes I have had an EKG, CXR and blood work... Troponin, and CK-MB were normal, however my ESR was off the wall So happy you enjoyed my suggestion

Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.

Certainly hope all are well... My hopes to all that they have a great weekend !!!
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Old 11-17-2006, 07:29 PM #207
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Quote:
Originally Posted by DDayMBB View Post
TODAY ....
Am wondering if Victoria has a bit of extra room for a big package in her luggage some warm weather and a soak in some warm salt water would do one good... enjoy !!!

Barb, unfortuately, I am sensitive to the cold all-in-all. doc says it has to do with CRPS and aldonyia. My hands actually burn from the cold and causes my chest to tighten that at time think I am having a MI and yes I have had an EKG, CXR and blood work... Troponin, and CK-MB were normal, however my ESR was off the wall So happy you enjoyed my suggestion

Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.

Certainly hope all are well... My hopes to all that they have a great weekend !!!
Mark, I don't have trouble with my eye(s) twitching but I do have TERRIBLE pain sometimes in the occipital area. The pain travels up around my ears to my temples and around my eyes. If I press on those areas it's very painful- almost feels like those areas are deeply bruised. PM dr. told me it all tied into the the chronically spasmed muscles in my neck (cervical dystonia). Whatever it is, it's very painful and I sympathize with you.
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Old 11-18-2006, 07:59 PM #208
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Default oh my goodness!!!!!!!!!!!!!!!

Mark,
[COLOR=" Red"]
Quote:
Wonder if anybody else gets pain radiating from the shoulder up affecting the Occipital area of my head, however at times my jaws, temple and at times causes my left eye to twitch.
[/COLOR]

This so accurately describes my pain I am amazed that your telepathy can reach that far!!! Can you bend spoons with your mind??? Should I call you Uri G????

My headache starts at back of neck…or shoulder and works its way up the back of my head and is always muscularly hard as a rock (is that a word?? muscularly??) and then goes up and around the front to the side and to my eye it causes vascular spasm in my eye and it sometimes makes my face go numb as well as my ear ringing.....and my face and cheek to go numb. I can't believe it is only me....Oh the horror of the pain you suffer I know your plight.......I can only say I understand 100% and offer condolences as this headache sucks the worst almost as bad as my migraines, but I can usually stop them before they get too bad with the right meds.

oh and by the way.....would if I could in the luggage....hoping to bring back something big...but on my finger not in the luggage and it damn well better sparkle in the sun.....hopeful as always...but not sure it will happen.......

hope all with the bad weather are staying dry and warm around a fire which is just what I am about to do after my super hot bath with a damn lot of epsom salts and lavender oil and a plate of blue cheese and melba toasts.....ok now you all KNOW I am a freak......

take care all...hugs,
Victoria
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Old 11-19-2006, 01:13 AM #209
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Default Today I....

Today I've been married for 1 year - in that year i've had left shoulder surgery, developed (or just noticed) what we think is TOS, had a pilonidal cyst removed, not had a good night sleep, and have become the proud father of a beautiful baby girl! I'd say it was a pretty full 12 months.
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Old 11-19-2006, 05:52 AM #210
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TODAY I.....
....... Victoria, just want to scream when that pain takes over. it seems to originate from GOOOBER(which is a real entity/swelling that I get in my traps the size of a golf ball)! It travels up the left of my neck, back of my head to the temples into my left eye! Like you said if you do not catch it quick enough with meds, it can ruin ones week, as it is tender to touch and laying down is an impossibility. I can not lay on either side, because of shoulder arm pain, which was a hard adjustment as I used to lay on my right side spooning my wife (and get your minds out of the gutter guys ), just being close. Hope you get the sparkles you are looking for, my wife has all the sparkles I can afford now and when I got it... a 1 1/2 kt diamond shaped center stone with 1/4 kt bagets on both sides... can not ever see being able to do that again unless the lottery "GODS" are on my side than again the price I paid was worth every cent for a sweet, caring and special lady who beside my children is my life and am not able to say enough good about her!!!!!

......think Dabbo, that from the sounds of it, you lucked out in the realm of love and that you have a fine woman, that when the going gets tough your bonds get stronger!!! Hope each succeding 12 months/years bring about more joy less any more pain!!!

....... Would like to send out to all of our spouses and signifigant others in our lives a true and heart felt **THANK YOU** for dealing with the roller coaster ride of emotions we go through on a daily basis! I do not know about others, but at times I do become self centered with my TOS/RSD world that I forget about my wife and be consumed with myself and ignore the ones who are there for me day-in-day-out! In short, those of us fortubate to have this support are so darn blessed that words can not express and am thankful to all my fellow TOSers here that remind and humble me in the fact that there is always somebody who has it worse than I and not have the nurturing support at home!!!!

God bless one and all and my true and honest wish that all can be pain free and life may become that prior to this pain we live with on a daily basis.........~MARK-n-GOOBER~
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Then you forget to pull up your zipper.
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Last edited by DDayMBB; 11-19-2006 at 05:55 AM. Reason: did not close my colons on size and color... oops
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