LA31: We have a son who was diagnosed with Paget Schroetter Syndrome. I was wondering what your condition was, What surgery in Denver you had done, and who performed it. Thanks so much - we are trying to figure out what to do!

Hi there! My daughter has had rib-resections on both sides by Dr. Freischlag. First time was such a dramatic improvement that we readily had her do the second. She is doing well. Still requires some PT and continuing exercises, but that is standard. Her blood flow is remarkably improved. We too had seen many docs before going to Dr. Freischlag. The sooner the resection is done (after a thrombosis appears) the more effective the surgery.

Hi pdomingu-

My girlfriend will be having surgery soon with Dr. Freischlag for arterial TOS on her right side. Her left side has pain symptoms that have increased until lately the symptoms are as bad as her right side, but the test result only show vascular/arterial compression on her right side (so far?).

I wanted to ask what your decision process was like with Dr. Freischlag about whether to go ahead with the second surgery? I think we will be in that position before too long and I am interested in your experience.

Thanks very much,
Dave

Just curious what diagnostic tests your girlfriend has had so far. I have bilateral arterial and venous TOS (will be getting partial rib resections on both sides soon). I know Dr. F is outstanding, so I'm sure this isn't the case here, but I know an arteriogram and/or venogram yield much more detailed (and earlier) results than ultrasounds, so I'm wondering if Dr. F ordered these tests for her. I'm on the East coast in the Washington, DC metro area (also near Johns Hopkins), but I found a thoracic surgeon at George Washington University who does the surgery robotically-assisted. I feel that his experience and credentials actually exceed those of Dr. F, so I will be having my surgery with him. I see so many people getting surgery in either California or at Johns Hopkins. There is an outstanding TOS center at Barnes/Jewish-Washington University Hospital in St. Louis, Missouri. Has anyone been there? Yes, I'm biased as it's my hometown, but it's a stellar hospital, and if I still lived in the Midwest, I would go there--just curious.

Hi jmax-

Dr. Freischlag ordered ultrasound vascular blood flow velocity tests. My girlfriend has not had an arteriogram or venogram.

She is planning surgery for only the right side at the moment, but looking at the test results again I am concerned about that. The left side doesn't look any better as far as my untrained eye can tell.

Dave

Hi jmax-

My girlfriend had ultrasound with multiple arm positions. abduction on both sides produced complete loss of blood flow in both axillary arteries.

Dr. Freischlag is planning only right side surgery, and I'm a little concerned that if the problem is bilateral then this will just drag out the process.

Who is your doc at GWU?

Dave

Hi Dave, I am planning surgery with Freishlag. How did your girlfriend do with the surgery and post-surgery? Has her TOS improved? Thanks.

Hi pdomingu, how has your daughter continued to do since the surgery? I am planning to have with Freishlag. I have nuerogenic TOS. What did your daughter have? Thanks so much.

Let us know how everything ended up!