Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-05-2012, 11:37 AM #41
mspennyloafer's Avatar
mspennyloafer mspennyloafer is offline
Senior Member
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
mspennyloafer mspennyloafer is offline
Senior Member
mspennyloafer's Avatar
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
Default

Yeah. I know most people wash the mag oil after 30 mnutes

I sit exactly like that too
__________________
last felt my fingertips august 2010
.
mspennyloafer is offline   Reply With QuoteReply With Quote

advertisement
Old 05-05-2012, 04:57 PM #42
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
Default

Chroma, Let me know what you think. I wore it yesterday for like 5 hours and 4 hours today. It does give me some relief.
brmr19 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mspennyloafer (05-06-2012)
Old 05-06-2012, 01:35 PM #43
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

Quote:
Originally Posted by mspennyloafer View Post
Yeah. I know most people wash the mag oil after 30 mnutes

I sit exactly like that too
You have to stop. Today. And forever.
chroma is offline   Reply With QuoteReply With Quote
Old 05-07-2012, 08:49 AM #44
mspennyloafer's Avatar
mspennyloafer mspennyloafer is offline
Senior Member
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
mspennyloafer mspennyloafer is offline
Senior Member
mspennyloafer's Avatar
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
Default

I know I've got kyphotic hump in my back. I can't believe this doc said it was only slight to me its ghastly.

Is the correct way to sit is by pushing your stomach out? I kind of feel like I'm pregnant when I do it...lol
__________________
last felt my fingertips august 2010
.
mspennyloafer is offline   Reply With QuoteReply With Quote
Old 09-05-2012, 03:54 AM #45
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

I haven't been on these forums in a long time. Any breakthroughs in TOS diagnosis or treatment while I was gone?
chroma is offline   Reply With QuoteReply With Quote
Old 09-05-2012, 10:19 AM #46
nospam's Avatar
nospam nospam is offline
Member
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default

Quote:
Originally Posted by chroma View Post
I haven't been on these forums in a long time. Any breakthroughs in TOS diagnosis or treatment while I was gone?
Any updates on your treatment?
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Old 09-06-2012, 12:59 PM #47
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

When I moved out of LA, I dropped both PT and chiro to see how long I could go. I also dropped the diazepam at one point. By 3 months I was in really bad shape with TOS symptoms, dizziness and even vertigo. One day it got bad enough that I could not walk and wasn't sure if I'd pass out. I went to the ER and got checked out, but all tests were negative and I was discharged with some anti-dizziness and anti-nausea meds (vertigo => hurl).

I re-entered PT with Art Ando which improved me substantially in pretty much the same way I had improved with Joyce Wilkinson: manual therapy to relieve muscle spasms, mobilize joints and align the body. Dizziness came way down. TOS symptoms improved over all, but as you know, they can vary day to day.

But I kept reverting. I mentioned this to Ando and he said that was called "recidivism" in PT--when a patient is treatable, but the problem returns. He said, "At least your not recalcitrant." That's when you're untreatable.

Btw I'm a combo case of TOS+TMJD.

I thought more about this and concluded the most fundamental problem was chronic muscle tension. I clench my neck, jaw and intercostals in response to even small stressors. I did some more research on Amazon looking at various books, paying special attention to the people's specific experiences as relayed through their reviews. Consequently, I came across this gem:

The Quieting Reflex by Charles Stroebel
http://www.amazon.com/QR-Quieting-Re...dp/0425058670/

I'm only 3 weeks into this, but it has substantially reduced muscle tension and TMJD symptoms. Even my TOS has improved. This has been a breakthrough/milestone for me.

I also like "The Intelligent Body: TMJ Program by Frank Wildman" which is a Feldenkrais audio.

Getting back to Ando, he is 120 miles round trip for me, so I'm not currently going. I may look for manual therapy down here in Temecula or Murrieta. So my current regime is all home care:

-- stretches, PT and yoga
-- exercises, PT and regular
-- somatics
-- quieting reflex (QR)
-- some diazepam, but less than half what I used before QR
-- some feldenkrais audio

Life is not perfect, but life is much better.

Last edited by chroma; 09-06-2012 at 01:14 PM. Reason: added note about diazepam
chroma is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mspennyloafer (09-11-2012)
Old 09-06-2012, 05:03 PM #48
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

And I should have included:

-- self first rib adjustment
chroma is offline   Reply With QuoteReply With Quote
Old 09-10-2012, 11:50 PM #49
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
chroma chroma is offline
Member
 
Join Date: Aug 2011
Location: Los Angeles, CA
Posts: 972
10 yr Member
Default

So yeah, getting back to that "life is not perfect" part...

I started working out again doing normal work out stuff in addition to PT exercises and therpeutic stretches. You know, push-ups and stuff. You know where this is going...

I then had a vascular compression flare up.

-- strong pulse sensation at the base of the front neck, stronger on the left side
-- undue fatigue
-- heart gulps
-- loss of blood pressure in arms

Scary stuff. I went through this in January 2012 as well for the same reasons. The solution was to simply stop those exercises and rest a lot.

So basically, I cannot build any musculature in the chest or shoulders without flaring up. I thought maybe with recent progress I could get away with it, but I was wrong.

I guess I'm going to have really strong legs then.
chroma is offline   Reply With QuoteReply With Quote
Old 09-11-2012, 07:24 AM #50
astern's Avatar
astern astern is offline
Member
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
astern astern is offline
Member
astern's Avatar
 
Join Date: Sep 2006
Location: ATL
Posts: 720
15 yr Member
Default

Quote:
Originally Posted by chroma View Post
So yeah, getting back to that "life is not perfect" part...

I guess I'm going to have really strong legs then.
Yep, I get the same vascular compression symptoms when doing minor housework with my arms.

My legs seem to be very strong. My Feldenkreis PT told me that the glutes and thigh muscles are the largest on the human body and
l o v e to do the heavy work our other muscles complain about.

Yeay legs!
__________________

.
"It is what it is."
astern is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
chroma (09-12-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
If it walks and talks like PD...is it really only ET? Conductor71 Parkinson's Disease 3 01-10-2010 08:11 PM
TED TALKS -The Magic Brain lou_lou Parkinson's Disease 0 01-24-2009 04:51 AM
Lost Parrot Talks! Alffe Pets & Wildlife 3 05-21-2008 11:19 AM
Shirley Conran talks about her ME dyslimbic Fibromyalgia and Chronic Fatigue 0 10-16-2006 04:55 AM


All times are GMT -5. The time now is 10:04 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.