Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 10-26-2012, 04:36 PM #1
TellerMomof3 TellerMomof3 is offline
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TellerMomof3 TellerMomof3 is offline
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Join Date: Aug 2012
Location: King City, MO
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10 yr Member
Default Not so "Funny" Doctors Visit

So many, of you know I have been experiencing some major flareups this last week. I went to bed with a severe migraine finally got to sleep around midnight, then was woke up at 3:30 with severe spasms in my neck and migraine.

So this morning I decided enough was enough and after a few tears broke down and called my Primary doctor to see if I could see him and get some meds for the migraine and muscle spasms.

Of course my primary was gone, so I had to see the 20 something doctor they had to fill in. After explaining all my syptoms and all the tests I had been thru and they were suspecting TOS he responds " You know most people that think they have TOS actually have lung cancer". Seriously, are you kidding me. I think my mouth dropped to the floor. He then proceeded to ask if I had blood testing done for autoimmune, or vitamin defecencies. (Which we have already ruled that stuff out a year ago). So my response was "Honestly, not trying to get you to "figure out" what you think I have. I just need you to help me get thru the next month until I can see a doctor that actually knows what TOS is and deals with it every day. No I do not have cancer, No I do not have an autoimmune disease, and if you stopped and listened to what I have been telling you, then you might learn a thing or two."

It was so frustrating, he did give me some muscle relaxers and some migraine medicine so I guess he was good for that. I got to my car and didn't know wether to laugh or to cry.

I am just ready to go to a Dr. that has a clue about what is going on. Can't wait to see Dr. Thompson, as I am sure many of you have had these experiences with Dr's
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Old 10-26-2012, 07:05 PM #2
LosingHope LosingHope is offline
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LosingHope LosingHope is offline
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Ho. Lee. Crap! That's awful! Thanks goodness you are levelheaded. A friend of mine that developed a thyroid problem had a doctor tell her she probably had MS. Naturally she was in a complete panic until she saw a second doctor who was able to correctly diagnose her almost immediately, and said that the first doctor never should have terrified her like that, as, with her particular presentation of symptoms MS was "looking for zebras instead of horses when you hear hoofbeats." I wonder if the doctor you saw just didn't know what TOS actually is, but since he'd heard of lung cancer, he went with that explanation. LOL.

I mean, good grief, TOS is pretty much a diagnosis of exclusion, and I never had a doctor tell me (nor have I come across it in the research that I've done), that a common thing to rule out is lung cancer - and I had a solid three years of doctors coming up with every out-of-left-field possible diagnosis they possibly could. Then again, by the time you start talking TOS, you've probably already had chest x-rays, CT, MRI, etc. that should have turned up lung cancer if it was present - maybe my docs just ruled it out before giving me the test results. ;-)

I'm sorry you had to deal with that nonsense on top of your pain and migraine. I hope the meds help you feel better!
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