I had surgery at the end of april 2011 w/ dr. Thompson in stl for neurogenic tos. i had been misdiagnosed for several years-also tried to use the edgelow method/pt for a few years before the pain and my grip strength decreased to the point that I needed to have the surgery. I had pec minor surgery & supraclav decompression w/ 1st rib removal. I also had a lot of scar tissue from a car accident and removal of a fibrous band.

My current concern is that a lot of my symptoms seem to be creeping back in neck pain/some nerve pain down the arm. But now I also am having some pain that radiates around from my back to the mid-rib area. I don’t think that running necessarily irritates my symptoms BUT it probably isn’t helping.

I am just curious how many of you were able to return to a fairly active physical lifestyle post-surgery? running is my sanity saver and i really hate the thought of cutting it out of my life

I am lucky that my PT is wonderful and accommodating, but I think that I need to find a doctor other than my PCP to help me locally. I currently don’t take any meds – only ibprofuen prn.

I also am going through this. I had my surgery on Sept 10. I am trying to get back to what I call a normal life, but it seems anytime I try to do anything that I start having pain problems and numbness where my hands get the red and white spots. Doing anything including minimal cleaning flairs mine up. Doctor put me on steroids, lyrica and anxiety meds which seem to be helping with the pain but not numbness. It seems like it is coming from the muscle at the base of my neck. It feels swollen there, the shoulder blade and back of armpit area. The only thing that I've been able to find that helps with the numbness is heat and the pain cold....so I sit here typing with a heating pad and ice pack! Have you found anything that works for you? Hope you get to feeling better...trying to take it slow my be frustrating but I'm hoping that I will improve as time goes on.


Amber