Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-19-2013, 12:48 PM #11
stos2 stos2 is offline
Member
 
Join Date: Mar 2011
Location: Bay area, ca
Posts: 190
10 yr Member
stos2 stos2 is offline
Member
 
Join Date: Mar 2011
Location: Bay area, ca
Posts: 190
10 yr Member
Default

Quote:
Originally Posted by heybro View Post
what is that MRA ?
It is an M R Angiogram. Vascular surgeons like to see the vessels and it shows well in an angiogram.
stos2 is offline   Reply With QuoteReply With Quote

advertisement
Old 01-20-2013, 06:11 PM #12
starfish43 starfish43 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 25
10 yr Member
starfish43 starfish43 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 25
10 yr Member
Default Question

I don't have ATOS myself but am curious what symptoms you had leading up to the ATOS, that led to your diagnosis? My understanding based on what little I have read is that ATOS is supposedly quite rare and most people wouldn't likely be diagnosed unless they'd had some acute event, and generally that would lead to a recommendation of surgery, straightaway. But everyone is not the same, I'm sure. I was also surprised by your statement that you are recovering because what I've read about ATOS is that there is a congenital component which presumably doesn't just go away, barring a surgery. Anyhow, I'm not suggesting I know anything about this, because like I said, I don't have it, but just curious.
Quote:
Originally Posted by Seeman View Post
Having ATOS does not guarantee you will need surgery. I was diagnosed with bilateral ATOS in the middle of 2012 w/ complete occlusion of subclavian artery bilaterally.

For me, I was completely unwilling to have surgery. Prior to developing TOS I was VERY active (5+ days per week at gym and/or playing basketball). My desire to eventually return to these activities made surgery a non-option.

Anyways, I'm currently recovering at what I consider a moderate pace. I'm back in the gym with a modified routine as well as playing some light sports. Progress is painfully slow compared to recovering from an injury. Staying positive and progressing at the pace your body allows is important.

Surgery should be a last resort. When an individual reaches that point varies from individual to individual.
starfish43 is offline   Reply With QuoteReply With Quote
Old 01-22-2013, 04:28 PM #13
Seeman Seeman is offline
Junior Member
 
Join Date: May 2012
Location: Chicago, IL
Posts: 30
10 yr Member
Seeman Seeman is offline
Junior Member
 
Join Date: May 2012
Location: Chicago, IL
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by starfish43 View Post
I don't have ATOS myself but am curious what symptoms you had leading up to the ATOS, that led to your diagnosis? My understanding based on what little I have read is that ATOS is supposedly quite rare and most people wouldn't likely be diagnosed unless they'd had some acute event, and generally that would lead to a recommendation of surgery, straightaway. But everyone is not the same, I'm sure. I was also surprised by your statement that you are recovering because what I've read about ATOS is that there is a congenital component which presumably doesn't just go away, barring a surgery. Anyhow, I'm not suggesting I know anything about this, because like I said, I don't have it, but just curious.
My issues were initially neurogenic. Numbness, sensation loss, arm pain. I had been diagnosed with cubital tunnel syndrome in my left elbow, had surgery for that, and after starting exercising in rehab had similar issues with my right side, followed by a re-occurence of symptoms in my left arm. I decided to get a second opinion and saw an orthopedic doctor at NMH (Northwestern Memorial Hospital in Chicago), who referred me to a neurologist.

During my conversation with the neurologist on my third visit, I mentioned that the last exercise I stopped when things first started was Yoga, because my hand would fall asleep and turn white. I had also noticed recently that my hands were ALWAYS cold and very pale. He immediately decided I should be scheduled for a test in which the read the pulse in your arms during different maneuvers (i can't remember the name of the test). Anyways, that came back with a positive indication toward ATOS, and a visit was scheduled with the chief of vascular surgery at the hospital. A CT scan w/ contrast was scheduled right before my visits.

At some point before seeing Dr. Pearce and getting the CT scan, I started getting swelling in my right arm, especially noticeable in my hand. My right hand was probably 1.5x it's normal size, but I was able to stop the swelling with Aspirin.

Anyways, CT scan showed 100% occlusion of artery when my arm was elevated. The doctor would only say I had ATOS & NTOS, not VTOS as well. He never said I didn't have it, but I assume that diagnoses is reserved for situations requiring immediate intervention.

From what I understand, ATOS/VTOS is usually caused by a congenital anomaly, but not always. The only thing the doctor said I had was a very long neck, lol.

Sorry for the long post
Seeman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
starfish43 (01-23-2013)
Old 01-23-2013, 02:44 AM #14
heybro's Avatar
heybro heybro is offline
Member
 
Join Date: May 2012
Location: Minneapolis
Posts: 310
10 yr Member
heybro heybro is offline
Member
heybro's Avatar
 
Join Date: May 2012
Location: Minneapolis
Posts: 310
10 yr Member
Default

that ultrasound test said that i have no blood flow in my arteries or veins when arms above head. no one ever said atos or not though. they just said tos.
heybro is offline   Reply With QuoteReply With Quote
Old 01-23-2013, 07:34 AM #15
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
brmr19 brmr19 is offline
Member
 
Join Date: Dec 2011
Location: cleveland ohio
Posts: 322
10 yr Member
Default

ultrasound and Upper Extremity Arterial Physiology Study were done on me. Not only did my subclavian stop flow, but when it was compressed, my vertebral artery would stop flowing causing me to feel like I was going to pass out.
brmr19 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Diagnosed w/ bilateral ATOS in Chicago, need PT Seeman Thoracic Outlet Syndrome 15 03-04-2013 01:25 AM
Update on atos/vtos surgeons Scaredsilly Thoracic Outlet Syndrome 7 07-26-2012 11:27 PM
ATOS and sleeping issues ElyseHart Thoracic Outlet Syndrome 17 05-24-2012 10:05 AM
Loss of Pulse vs. ATOS 343v343 Thoracic Outlet Syndrome 8 11-05-2011 09:15 AM
Post ATOS surgery -- How Are You Doing? kyoun1e Thoracic Outlet Syndrome 23 07-05-2011 10:48 AM


All times are GMT -5. The time now is 01:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.