Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-26-2013, 07:57 PM #11
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Quote:
Originally Posted by starlight17 View Post
I'm a musician and have taken the last 7 months completely off. Since my surgery, I've tried some OT (mostly massage) but can't strengthen or exercise much because it sets the nerves off. I've also done Alexander Technique (helped a little), pilates (very modified), meditation/visualization, and have tried stationary bike (up to 15 minutes before nerves get set off), swimming (just kicking with flippers- initially ok but not anymore), and elliptical (only backwards for 5 minutes works.) I have been making progress but it is very slow and not consistent. Ativan or Zanaflex help a little but the results don't last; normal pain meds don't help. I haven't found a good PT yet and my surgeon says to stick with range of motion.
Do your legs get hurt & get tired or does exercise just cause your TOS symptoms to flare? Valium works better than Ativan or Zanaflex for me (although I had some awesome dreams with Zanaflex!)...Valium and Gabapentin have been the only thing that have worked consistently for me.
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Old 03-29-2013, 12:49 PM #12
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Default Pec minor study

I posted the article on Dr thompson and pec minor study on a new thread also

http://www.science20.com/news_articl...eatment-103207
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Old 04-16-2013, 04:25 PM #13
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Thanks- I'll ask about Valium. Met with new PT today and have many trigger points. Strength testing caused a major flare. PT also wants me to start light cardio (I tried to explain it worsens both my pain and compression)- she said pain OK as long as it doesn't make it worse and that I can't expect not to have any pain (safe anyway??)- potentially aqua therapy, and will try and see what I can do. Got gentle exercises for shoulder stability and neck with goal of not engaging my SCM. I have started work on diaphragmatic breathing too, and healing visualizations. My plan is to try the PT for 4-6 weeks to see if it makes any difference before doing the surgery...

Interesting you should ask about my legs- it's mostly the TOS that's the problem, but my hips also seem to be off (right hip rotates in, feels like one leg is shorter than the other) and my whole left side is much stronger than my right all the way from my toes to my head.

The new study was encouraging...

Forgive my ignorance, what is Egoscue?
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Old 04-16-2013, 04:58 PM #14
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Egoscue is a PT who has written some books on chronic pain, alignment, etc.

You can check the web and Amazon:
https://www.google.com/search?q=egoscue+pain+free

I used the "Pain Free at the PC" book to good effect though it didn't cure my TOS (but then nothing has).
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