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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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09-08-2013, 09:41 PM | #1 | ||
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In Remembrance
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[SIZE="3"]My mother, my daughters and everyone else in my family has stopped interacting with me. Even though I send birthday cards, baby gifts, etc., it is as if I am a dead person.
My friends had the reaction that I am a liar and just don't want to work. (This after 11 years) Two of my friends, when I asked them to tell me the truth, said, "yes, I don't believe you have an injury. I doesn't make sense that sometimes you can talk and sometimes you can't." So much for "good days" and trying so hard to be positive to them, happy for them, supportive of them, and not talk about my sickness all of the time. My one friend called my husband (after 5 years) and said she was wrong, and could he please get me in touch with her. He said, only if you don't hurt her like last time. She promised. Then, when I was having a terrible time with a home aid - she was stealing, not getting food or water for me, I called my friend in tears and she said, "don't ever call me again - you are a spoiled brat and I don't want to hear that you don't have an 'assistant' that you like. You are a loser." Have any other people had the freeze out, after you have been so generous to them? Should I keep trying? And what of my adult children? They are adults now, and I thought they would grow through it...but no, I am persona non-grata. Thanks for any help. [/ |
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09-08-2013, 11:55 PM | #2 | ||
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Junior Member
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i'm sorry u are being treated like that. i understand what you are going through. Even if they don't believe you, u have so many on here that knows what you r going through. Don't allow someone else opinions to affect you. For me, i consider everyone on here my family and friends, because we're all fighting the same battle. Please know that GOD loves you, and he knows what you are going through, so you are not alone. Forgive them, because if you don't, u are going to feel worse, and your pain is going to get worse. Forgiving them will allow you to heal inwardly, and outwardly.
Keep in touch, and i'm praying for you. |
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09-10-2013, 09:53 PM | #3 | |||
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Community Support Team
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It's so sad to hear about this, but I think it happens often.
When things are riding high and easy good times, everyone is happy, or so they think...but when times get tough they forget all that and don't appreciate or have any empathy..
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"Thanks for this!" says: | arline (09-17-2013) |
09-11-2013, 12:14 AM | #4 | |||
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Member
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Quote:
hang in there. at least you know who your friends are now. karma is real and they will need unquestioning compassion in their life at some point |
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09-16-2013, 07:28 AM | #5 | |||
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Hi Tam, so sorry to hear your problems continue.
To help you navigate these troubling situations, a psychologist or therapist would help you to *at least* cope in your mind. I am sure that I have been helped "in here" (pointing to brain). Medicare is covering a huge chunk of my therapy. It doesn't change the reality of my situation, it doesn't change the attitudes of others. It just changes how I respond to the lack of empathy or consideration I get. sending good vibes, Anne
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. "It is what it is." |
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"Thanks for this!" says: | DiMarie (09-17-2013) |
09-17-2013, 01:30 AM | #6 | |||
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Magnate
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My best friend, not in my real life is my counselor. The perspectives, insights, and support really clicked. Plus I keep far too busy or my physical needs. What I lack in support from siblings, parents are gone, I receive in the consulting work I do.
I drag myself out of the recliner to help people. Tam, with your brain, and talent sometimes using what assets you have overcome the things you lost in family and frind's. I always felt, and still can't reconcile the way my dd was treated by family. I am tortured with the memories of the past, and present. But, I can help people with investigative things. I work consulting as needed for SIU, and do genealogy when I am up to it. I carry huge abcess of toxic hate for my siblings, it makes me ill to even see them, how they treated me. But, I make myself ill filling my day with it. I only have so mnay spoons to use a day, I don't want to use them up on toxic people. My life is not all roses, balloons, and miles. It's struggles, but I work at doing hings myself even if I have to crawl to do it.my house is a wreck fom he once nicely cared for one, but if I make it easier for ome one else, I feel uplifted. I need my husband to do the physical work, but I can still o he consulting reports. Are there delivery services for food, and a big water dispenser your husband can keep close to you? Make an area of your home your own, a sanctuary of escape great photos, comfy place to rest. If you let go, and some thing is loved and released, they will come back to you. Feel good about one thing that makes you feel good for yourself. I never found funds or help, could never trust anyone, so I've been downsizing. My ex dil comes when she needs money, does a heck of a job, but I am not a priority, or expect I am to anyone. Even dh acts like I am just sore, not disabled.
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. Pocono area, PA . . . |
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"Thanks for this!" says: | astern (09-28-2013) |
09-17-2013, 02:47 AM | #7 | ||
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New Member
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That is so true people who I thought were my true friends don't call any more or visit and some that do ask do you really hurt when you walk even though I walk in a back bend and family has to help support me when i walk even with a walker and i have tremors to go with it, or they talk like im not there at all and these are pople i gave my heart to freely but I keep sayingmaybe they were havinga bad day .someone told me they wonder could they keep a smile on there face and have all these things happen to them in just over a year. True friends are gems and I found i had a lot of rocks
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09-17-2013, 11:37 AM | #8 | |||
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Senior Member
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people dont take my hand numbness seriously, even doctors, its so frustrating
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last felt my fingertips august 2010 . |
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09-17-2013, 04:09 PM | #9 | |||
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Grand Magnate
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and since when did you haveto answer to anyone other than the Almighty FATHER absolutely not yet it is hurtful i do not understand does a person have to loose a body part well guess what i did no one can see my cancer yet i had both breasts taken off oh i get it alright and because all i have to do for seven years is take my chemo pill Tamoxfin you are not alone i wish you weren't lonely too i'm sorry i just jumped into your life may i ask do you have that special love in your life i don't all is the way it is in my life i believe is exactly so sometimes so we can truly look at it alone may your journey in a positive direction as you empower the only way is to be true someone who cares
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someone who cares eva |
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09-19-2013, 09:46 AM | #10 | ||
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Member
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Quote:
http://teamdoctorsblog.com/2012/08/0...-dc-chapter-1/ http://teamdoctorsblog.com/2013/07/1...ents-with-tos/ |
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"Thanks for this!" says: | Titus (10-06-2013) |
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