Hi, broke clavicle when young. It never healed right but caused no problems. Then at about 40yrs old had DVT in arm. Had DVT removed, subclavian vein damaged stent put in. Ortho docs plated clavicle to stabilize it. Nerve problems since then. Has gotten progressive worse. Stent broken and bad blood flow in arm but vascular says that is ok my real problems are from nerves and have TOS now. Sometimes it isn't too bad other times excruciating going into my neck down arm into hand, wrist, chest. Worse pain starts in middle of collarbone, the scalene actually feels sore to the touch, pain goes up side of neck into face up to left eye. Horrible. It all seems to have to do with movement usually it is all the small things that get it going crazy. I could never do an exercise class or anything because my arm would become very heavy and tired and painful. My arm hurts just carrying the weight of my dogs poop bag while walking here! If I could spend life sitting with something holding the weight of my arm at just the right position and don't move it I would be ok. Anything sound familiar here?

I wish this could be fixed but I'm scared. Dr's say to do anything is complicated and dangerous. I don't want a rib removed or scalenes cut because this problem with all the nerves etc didn't happen until steel hardware, wire and cadaver bone struts were put in to fix a 35 year old clavicle break. I've heard of surgery where they remove part of the clavicle. Did anyone ever have that? Does all this sound like TOS or what? Thanks for reading all this stuff and any thoughts, experiences others can share. Thanks.