Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 04-01-2009, 04:05 PM #1
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Default Has anyone had an angiogram of the clavicle?

Well my Agreed Medical Exam was not to happen as least yesterday with Dr. Ahn! All he said was did I have the angiogram and I said NO, both my physician's told me not to have it. He had is helper do these tests on me Dec. 08 one tortured me cause I had to have my arms up over my head laying down on the table. He then put a blood pressure cuff on each arm, one arm first then the other, moving the cuff up and down my arms taking different readings. After this test Dr. Ahn said I have a blockage in my left clavicle area when my arms are up. He said he needs to do an angiogram up to my left clavicle to see if it is from my age 64 or my work injury. My pain medicine physician and my heart physician say to me not to have anymore invasive tests or surgeries. I had 6 surgeries, 5 on the left all by Dr. Aaron Filler when I got a staph infection from the operating room that left me with more scar tissue and more pain than I ever had, the last surgery on my left was just to irrigate the area out leaving the surgery all in vain. I just want my case to be over after 19 years. I'm curious if anyone had a test like I did from Dr. Ahn? Thanks for all your responses. Jackie
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Old 04-01-2009, 08:22 PM #2
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Sounds like you've been through enough already. Maybe this will be your last hoop. 19 years is a marathon. that's a long time for a decision...

No. never heard of it but I can see why they could do it. sorry you had to endure that. sounds painful to a TOSer.

Closest thing I had to torture was a wrist and thumb MRI. Put my arm over my head and fixed it that way for a while. caused a lot of increased pain and exacerbation, for weeks. So treat appropriately if you can.



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Originally Posted by jacqueline64 View Post
Well my Agreed Medical Exam was not to happen as least yesterday with Dr. Ahn! All he said was did I have the angiogram and I said NO, both my physician's told me not to have it. He had is helper do these tests on me Dec. 08 one tortured me cause I had to have my arms up over my head laying down on the table. He then put a blood pressure cuff on each arm, one arm first then the other, moving the cuff up and down my arms taking different readings. After this test Dr. Ahn said I have a blockage in my left clavicle area when my arms are up. He said he needs to do an angiogram up to my left clavicle to see if it is from my age 64 or my work injury. My pain medicine physician and my heart physician say to me not to have anymore invasive tests or surgeries. I had 6 surgeries, 5 on the left all by Dr. Aaron Filler when I got a staph infection from the operating room that left me with more scar tissue and more pain than I ever had, the last surgery on my left was just to irrigate the area out leaving the surgery all in vain. I just want my case to be over after 19 years. I'm curious if anyone had a test like I did from Dr. Ahn? Thanks for all your responses. Jackie
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Old 04-05-2009, 03:24 PM #3
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Default I have

I had the angiogram. It is where they of course put you into provocative positioning to see if the blood flows to the areas it should or if the tos is what is causing the compression. It did hurt as the arms were overhead but it did discover I had a 90% occlusion on the right side and 60% on the left side...no symptoms on left only on the right.

I can't say it was that bad......just holding the arms in the superman position sucked the big one for me...hell pain....but that's what I had to do to get my diagnosis pure and simple as vascular tos!

take care hope you make the best decision for your own health

love and hugs,
Victoria
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