Thanks so much everyone! I have bilateral neurogenic TOS and have tried physical therapy for four months now with no relief - it has actually made things worse. I have also had Botox to scalenes and pec minor with minimal relief. At this point I can't work or even hold my one year old son. I met with Dr. Donahue and he did a ct scan that showed elongated transverse processes of c7 and said that this anatomical abnormality would make it unlikely that I would improve with conservative therapy esp since I have already tried it. I am waiting to hear on a surgery date.

I was hoping for those who have had surgery with Dr. Donahue if I could talk to you. I am terrified of the surgery but at this point I don't have many options as I am running out of time to return to work and this has caused severe marital strain. I have read the forum posts about Dr. Donahue but hearing from someone would be deeply appreciated and so helpful. Thank you so much!

Hi
I had sx for 8 yrs bf being dx. So 3 mos. is not long for tos, which is controversial/very hard to dx. My advice would be to take it slow, get has many opinions as u can & Emg/Ncs tests which usually are normal w tos, but u could have compression at the elbow or nerve comp. at c-spine. I had an Ulnar n. release in 2008 and C-5/6 discectomy/fushion in 2011, and a shoulder decompression in 2010. Then I found Bilateral tos w/extra C-Ribs w Dr D. I found in on my own. I was shocked I actually had this problem.
Ill finish later dont want to lose this!

I had surgery done at John Hopkins Hospital Baltimore,Dr. ying wei Lum
It worked !!!
**Yana