Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-29-2007, 10:05 AM #61
watsonsh watsonsh is offline
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YAY!!!! Thats awesome Mucker!! I pray that it continues for you
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Old 09-29-2007, 01:44 PM #62
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Thumbs up

Mucker it sounds like you are progressing a lil more each week. I hope this continues, don't overdo on those good days. You must have your postop appointment coming up soon? Make sure you take a list of all your questions. If you're anything like me, I forget once I get in there.
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Old 10-01-2007, 11:03 AM #63
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Hay well i saw Doctor Bethune this morning and he is now sending me to a neurologist and a physical medicine and rehabilitation doctor and i have to go back to him in three months. He is sending me to a neurologist to see why i am still having tremors and why i get like a shock sort of feeling in my neck and head at times. He also told me that i just need to keep resting and keep trying to do a little more each day but if it hurts to stop right away. He said that because of it taking so long to have the surgery it well take time to see what well heal. He also told me to remember i well probably have some permanent nerve damage. I asked him about the strange feeling i was having in my upper arm i didn't quite know how to describe it and he gave a little laugh and said would hypersentive fit. That was the perfect description any ways he said that happens because they some times have to cut that nerve to make room and some times they are able to stretch it any ways this is the feeling you feel he said it should go away in time. So as far as getting my left arm done he said well talk about it when i see him in three months. Oh and he is sending me to the other doctor just to check and see if the tos release has helped at all with my carpel tunnel. Just another check up to see whats going on with the nerves so he doesn't think i have rsd just need some more time for healing. So all in all not bad news and not good news ether i guess it well be more time god i am starting to hate time and a few more doctors to see and i hope they well answer the questions and i can start living again. Bye for now hope you all had a good weekend
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Old 10-01-2007, 12:25 PM #64
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Heart sensitive arms...ick!

mucker- i had the super sensitive upper arm on the left side (my surgery in May) and it has pretty much subsided...at least enoguh that i don't notice it anymore except on rare occaisions. For a few months i was just sticking a lidoderm patch on it...maybe that would help yours?


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Old 10-03-2007, 08:13 PM #65
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Well i am soand my man is and even my puppy what a week so far. The boy got a head cold last week so of course by Monday i started to come down with it then by late afternoon on Monday Chico's ear's where red and when i went to touch them he started to cry. So off to the vet and he has a ear infection so the house is full of sickos ya. Last night i was woken up from really bad pins and needles in my right hand and part way up my arm the only thing missing was the burning i found that very strange i am wondering now if this could be just from my carpel tunnel. I find it hard to believe that it would have anything to do from the tos being that it has now been 5 weeks since surgery. Yes i still have symptoms and i know it well take time to heal but i can't wait to see just where the numbers are for the carpel tunnel. If they have changed at all and i am now getting rather excited to get in and see the neurologist to see if this doc can find what is causing my tremors. I find it funny in one way that a doctor can just think that all of a persons symptoms are caused by tos in this case but then when they have done surgery and you still have the same symptoms and in my case the tremors which have gotten stronger since the surgery. It must be something else causing them so why didn't he try and find out a long time ago. I had carpel tunnel release done back in 05 when i went back to the doc who had done them. He was furious with the fact that it did not work on my right hand he went on and on that it was impossible he has never had one that did not work. He went on like this till i left the office he had sent me to another doc to do emgs and other test and he was the first to say i had tos and carpel tunnel. When i went back to the hand surgeon he wasn't so upset any more he turned hes clean record to it has been 11 years since he had a failure and he still wonted to blame all my problem's on the tos then. I just hope that doc B is not thinking the same way oh well i guess i well find out more when i get in to see the other doc's ha ha well bye for now.
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Old 10-05-2007, 09:38 PM #66
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Hi hope every one is doing ok. I went to my family doc yesterday and we talked about lowering my long lasting hydromorphone i told her that i am not ready yet i am still having pain in my right and i still suffer from tos in the left side i don't wont to start playing around with my meds just yet. So we agreed to wait another two months and see how i am feeling then. I feel like just because the surgery is over they wont me to be on my way like they forget this mess is not over yet. Any way i let her know i was now off the break through pills and i told her what had happened she just shook her head and said i told you to slowly go off them. Oh well it is done now and i well not let that happen again. We also talked about the tremors i still have and about the shocking feeling i get in my neck and head when i walk. She had no ideas and she thought it a good idea to see the neurologist she also told me to make sure he does a MRI on me. Does any one else suffer from tremors in a arm or arms? After i saw the doc i met with my new worker for my schooling and she showed me the plan and they have me doing six months of home schooling then on march 3rd i well be attending a school. I told her that when i spoke to comp she told me it would be revue in six months and they would decide then but on the plan its not written in there. So i guess i well have to do some writing to them now. I told the worker i don't even know if i well be driving by then and for all i know i could be in having surgery done. the tuition for the school is $9750.00 Just to attend from march to august 29th of 08 it is cheaper for my 2 year environment technology diploma which the tuition is $4000.00. The worst part is that this plan states that if i should fail to complete courses payment for repeat will be my responsibility. So i have some protesting to do on this one it will be the day i pay for school because i had to take time off for surgery because i was hurt at work. And it is comp who is making me do this so ya know where they can go well that's enough ranting for now chat later.
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Old 10-10-2007, 07:01 PM #67
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Hey Mucker; Just wondering how your feeling? Any changes in your symptoms or pain levels? Hope this message finds you feeling better.
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Old 10-11-2007, 02:59 PM #68
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Hi it has been a while since i have posted but i have been trying to write a appeal letter to wsib about my schooling. So i have been very busy with that and my hands are very sore. I haven't had any burning in a while my hands have just been staying cold. It has now been six weeks since the surgery and i can only say for sure that i no longer have a problem with the blood being cut off when i raise my right arm. the left arm still gets the blood cut off though. Other then that things are still the same at this point i am still awaiting to hear when i well see a neurologist which i hope wont be to long of await i am very curious as to what may be causing the tremors if it has something to do from my job or if this could be something that would have happened any ways. As far as i know there has been no one in my family with or have experienced tremors before right now i am assuming that this would have to do with nerves some how. I can keep guessing but wont know till i get some testing done and then i suppose there is no guarantee that the doc will find out what it is. I am just happy that it has been documented all the way so if it is something else and my job made it happen then i can get comp to add to my case. well bye for now chatt later
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Old 10-14-2007, 06:44 AM #69
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Hi there hope every one is doing fine. I finely got one of my doctors appointment i go see doctor Loane November 20th to have a nerve conduction test done. So at lest i will find out about the carpel tunnel if it has gotten any better or not. I know one thing it really does not feel like it my hands and wrists sure have been driving me crazy. The funny thing is that my hands feel the same like they ache at the same time and the same kind of pain and coldness. And i only have carpel tunnel in my right hand my left has been border line this whole time even after the carpel tunnel releases. So when they said that i had bilateral tos i just assumed that that was why my hands felt the same and i am sure the doctors did to but now that i have had my right side done. Every thing is still the same i don't get it. I am back to fighting with comp about my LMR plan i spoke with this woman who has been taking over for my regular adjudicator well he is off. She has to be one of the biggest b*^$#@% i have ever had the joy of speaking with. I tried to talk to her about my plan and she told me she would not change it and that i would just have to take her word on any changes if there are any. I told her that i really don't care what she tells me the only way i will sign a contract is if there are some changes and they put in writing because when it comes down to it her word means nothing because it will be hers against mind. By then i was so mad i said this is the real world i live in not the one you come from. Then she gave me the old threat of if you don't do as your told you will be cut off. I just laugh at her and told go a head if you think you can. Oh these people get me so ****** they think there so superior then us ok that's enough of that hope every one is enjoying there Sunday. bye for now
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Old 10-14-2007, 07:03 AM #70
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You have been through so much.

that's all I wanted to say. And give you a BIG HUG.
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