I AM SO IN!!!!!!!!!!!!!!!

Victoria

I'd go in a heartbeat! If we could find a place that would work for everyone it would be nice to set up. I haven't flown since 9/11 so I don't know how I would do. I have already posted that I witnessed the second plane crasing and know 2 people who died and one, who I am very close to, was in the building but escaped. Tomorrow is a traumatic day. I hope everyone takes the time to say a prayer. Linda

Vegas! That would be awesome (except for the whole multi-day gambling budget, but thats neither here nor there).

Regarding the yelling..... if I feel I am being yelled at without provocation, I tend to stop listening or deliberately slow down whatever I'm doing. Childish? yes. I try to avoid arguments because I tense up, and then I hurt like h-e-l-l. I'm a VERY type -A person, and get frustrated very easily. especially if there's small stuff that goes undone. Like the outlets that i was swapping out in the kitchen .... I did 2 of them, and messed up one of the switches. Finally, on saturday I got ticked off, and despite that I was hurting, I re-re-re-wired the messed up one and finished the other 4.

I try not to think about what this will be in 5 or 10 years, but thats nearly impossible. I have hard time NOT thinking about that - will I be able to work, will I be able to play with my daugher, will I still be on all the friggin medication. Too many unknowns, and that scares the crap out of me- it wears me down mentally to the point of a breakdown every couple of weeks.

sorry for the rant/ramble... time to go do stretches since I feel like I'm being choked (AGAIN )

I can`t either dabbo.....

I just get depressed and I too am type A and cleaned my kitchen up last night as usual with a toothbrush around the sink...etc...yeah I have issues...and I organized our hall closets this morning....I know stupid due to pain I already have...so adding to it...esp since heating pad conked out and now no source of heat for my sore muscles....so more diazepam.....I guess and try not to be my usual ocd person!!

take care and ONE DAY AT A TIME.......is all I can handle.

love and hugs,
Victoria

Dabbo and Victoria I have also been told by Dr. T that I am type A. But, have given up the need to keep everything clean. Just can't keep up. I also worry about next weeknext year, etc. Just trying to cope. But all is good as long as we are here!!

ahhhh the luxury of a heating pad!!!
could not live without it for one more morning of stiffness so dh and I went out to get one tonight.....(10/09) as I said type A !!!!

love and hugs,
Victoria

Pub Med results "Outcome of surgery for TOS in WA state workers" indicates that 4.8 years AFTER surgery, 72.5% of the workers are unable to return to what is considered their normal habits and that they were "limited a lot." This article concluded that the doctors are reporting better outcomes - far better - than is realistic, and that new statistics need to be obtained and analyzed. At least I can give this to my mother so that she stops accusing me of enjoying my bed status!!! Ha-ha!

This may or may not be something you want to hear. For me, I prefer the truth, and every time I read another Internet article that said "conservative PT resolves most all TOS symptoms" I'd want to ask someone to throw my monitor FOR ME...I know far too many people who relate a lifestyle exactly as "Withmore" as described - including me.

Getting family and friends to understand my limitations - as you all know - and to accept my condition and it's apparent curelessness (for me folks) - has been difficult. But lately I pull out a simple NINDS article from the Web that categorizes us as a NEUROLOGICAL disorder, and I remind them that nerve disorders similar in symptoms include MS, RA, ALS, etc. This seems to help as most people equate this with either an ortho hand or ortho shoulder problem, which is site-specific, and a lot of our problems are brain or BP located, which is not site-specific to the pain or disability body part. Some in my family keep calling it a "shoulder problem" and ask if I've had shoulder surgery yet and gotten back to work...also, neuro problems include memory, choking, phantom or moving symptoms, etc.

Currently I have spiking pains in my left and right foot, and my left thumb and right forefinger. My ankles have a bone-aching problem. Then there's the usual TOS pains, as well as some RSD that moves around (superficial but severe burning, pins, etc.) I do have more mobility right now - but everything good is in bunches of just a few days, so I do not get all excited, but just accept whatever I am able to do in that day - or not do. And yes, when I've had 3 weeks of severe, off-the-charts pain, unrelenting, I do get down!

Hang in there all. And if you haven't checked Web articles in a year or so, it's "interesting" to see how they've changed their language, statistics, treatment, diagnosis or added new articles that we never had before. I fear TOS is on the rise...!!!

let me know as I can get access to the full article for you.

just give me a hoot.....that is if you don't have access yourself.....pubmed is not always the best place to look I just found out that they do the same thing as google in that the most popular articles come up first and then the others....but so long as you know this ....it is power in our hands....

take care,
love andhgus,
Victoria

Far be it from me to pass up an opportunity to add my rant....Today I went before the judge for the first time in 4 years. But did I get to say everything I wanted and do I have any type of conclusions as to when I might get a normal life again..haha....not hardly.....Apparently there had been an offer to settle last month that no one even told me about...and the guy this time said he didn't know what it was either and we had to go to trial since the opposing lawyer did not have authority to remake or reoffer whatever the hell he had previously. That has been the most frustrating part of all this-that I never got a voice! Noone wants to hear what I can't do or even try to help. Especially since my mom's gone now. I told the lawyer today that Since I haven't received TTD since the middle of march that the money I inherited is almost gone-and that I don't have any one else to die....which may seem hard-hearted or strange but it just means I have no one to help me....
A couple of days ago I cried just because it was the first day of the state fair. My mom loved the fair. We always took the grandkids and moms who didn't have to work with us. My daughter performed and sang 0ut there for so many years that it feels so strange not even going, but the funny thing is-I don't want to go I just want to have my mom back and feel better MYSELF so we have a choice to go or not.
I hate TOS and what it takes from us....
And so I sit and wait until they let me know what they've decided to do about my life.......
The IC lawyer asked me if I took any trips during all this time. I said yes, then he asked me if I went on a cruise. I said yes. What the hell difference does that make. My sister paid for it and I did get sick while I was gone and had a medical bill. My lawyer told me later, so what, if he asks what you did, tell him you ATE, that's what most people do on cruises. I'm still really good at that.

Sandy

Wow I've killed another thread just by commenting....