Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-04-2007, 03:11 AM #71
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we do too, dabbo.

I bet your little girl would have had a great time running around with my two little ones

Incidentally (for anyone that was here) I don't even know who those kids were...mine are rarely that well behaved!!!
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Old 11-04-2007, 04:41 AM #72
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It is so nice to hear that all you were able to meet ! I think it is important for people too meet face to face, maybe all of us could one day meet ! I am so jealous and very happy for all of you that made it ! It sounds like it was a great time for all of you and some great pics too, (thank you ) Now the rest of us can get to know you all better !

Glad that everyone had a good time... Thanks for the post and I am glad that everyone had a "painfree" day !

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Old 11-04-2007, 10:07 AM #73
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Oh,
I am so bummed that I couldn't be there...
At One O'clock I knew the party was starting and from the pictures I can see it was a great get together...
I'll be at the next one no matter what...
Thanks Johanna for posting the Pics. It's so nice to have that connection when your posting to someone...
Many Hugs to ALL the TOS'ers that made it to the party and I am hoping that you are all feeling low pain today...
&
Dawn
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Old 11-04-2007, 11:50 AM #74
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Looks like everyone had a fabulous time! I am so jealous I couldn't make it but glad Victoria was there to represent us Canadians! It's nice to put a face to the names...I will have to dig up a picture...or can we start maybe a picture thread on here so we can all share 'who we are'?
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Old 11-04-2007, 01:06 PM #75
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Seeing the photos of all of you happy, beautiful, and brave ladies, has made my day!

Wish I could have been there!
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Old 11-04-2007, 01:08 PM #76
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They are all beautiful, aren't they?

There is something about getting everyone together in one room that is so beneficial - and I do wish the doctors could see us all together, so they stop making stupid generalizations about TOS...

The group is clearly (as a whole) such a gathering of brains, beauty and fun-loving characters!

gosh, I wish I had been there, but I am thankful for prior times, and hopefully there will be more...for everyone...
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Old 11-04-2007, 03:43 PM #77
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Thank you Johanna for the beautiful party. I am amazed how you could do it all.
It was so great to meet everyone.
I truely don't feel so alone anymore in my stuggle.
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Old 11-04-2007, 11:36 PM #78
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hi guys,

WOW what a great time! I loved the care and attention to detail that Johanna the hostess with the mostest.....Cyndy said it well!!!

I had a great time but am paying for it......or maybe it was the movie we went to last night and out for dinner at universal citywalk...then movie...American Gangsters....great flick....VERY UNCOMFORTABLE in the theater,....but that is a given......anyhow off topic,....sorry

Thanks guys for all who were there and there in spirit. It was a great meeting of the minds hearts and souls....and the food rocked!!!! How to keep a Canadian happy .....great people....great food and lots of laughing and relating to each other and now Marc gets it!!!!!!!!!!!!

much love to all,
Victoria
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Old 11-05-2007, 06:25 AM #79
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Women with TOS ROCK!!!!

And so do two men with TOS ROCK!!!!

And several spouses without TOS but with ROCKIN' LOVE - THEY ROCK!!!

WE ALL ROCK!!!





WE WILL DEFINITELY ABSOLUTELY ROCK

ROCK YOUR WORLD

TOS WORLD, THAT IS

Last edited by tshadow; 11-05-2007 at 06:26 AM. Reason: I TOOK AN AMBIEN AND I'M FEELING LIKE BUSTIN UP THE JOINT
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Old 11-05-2007, 12:46 PM #80
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Johanna, I just want to express a huge thanks to you for hosting such a fabulous get-together. Like the others, I really can’t say enough about what a PERFECT hostess you were. And I am not using that word lightly. The welcome could not have been more gracious; the wonderful Italian food could not have been more delicious. To borrow Tamara’s word, you really “rock!” And it was great meeting your family too. Please thank them again for me.

I know I sound as though I’m gushing—well, I guess I am. But with good reason. For those of you unable to attend, you just have to know that Johanna in “real” life is just like Johanna on the forum—warm and enthusiastic….and she just never stops giving.

It was so great seeing old friends and meeting new ones. The only way in which the day could have been any better would have been if Alison, Dawn, Shelley and Tamara--and the rest of you --could have joined us.

Finally, I just wanted to share what my husband said after the party….that he was impressed with what an extremely intelligent, accomplished, and interesting bunch of women the other TOSers were. And believe me, he is DEFINITELY not one to use such words lightly. I have to say that when he said that, I felt proud….but also so sad, thinking about how TOS has ruined the lives of so many incredible people.
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