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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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10-28-2007, 09:35 PM | #1 | ||
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Hello,
I've have had TOS for 2 years. I have bilateral C7 cervical ribs and now carpal tunnel as well. Pain and limitations are a part of my life everyday now. I live in Northern Canada and don't have any TOS specialist here - I travel 8 hours to see Dr Sean McFadden (thorasic surgeon) in Calgary. Great doctor, he has helped so much. I was lucky to have a family doc that new about TOS and referred me right away to the doc in Calgary. I will be going for a right side cervical rib resection in the beginning of Dec or Jan 08. I'm very nervous about the surgery and pain. I'm also nervous about the outcome - if this doesn't work, I don't know how I can live with the pain I have now for the rest of my life...it's affecting my family, my job, my friends and my happiness. I'm sure you all understand - I wish sometimes those around would understand too. I've had many surgeries (non TOS related) in the past. I've dealt with the pain and live with pain on a daily basis. I'm just not sure how the pain and recovery from the rib resection compares to those? How long is the recovery? What can I do to help recovery quicker and with a good outcome? What positions help ease the pain? I'll be a passenger in an 8 hours car ride home after I'm out of the hospital (sitting on a plane or car is painful now..scared about what it will be like after the surgery!) What about reducing the scar (dr will be not going through the arm pit - neck area instead)? Does it matter if you're in a flare-up when you're going in for surgery? Any other things that others have done to help the recovery or surgery go smoother? I'd appreciate any help or advice you have - it's difficult to find anybody in my home town that understands what it's like to live with TOS and how much I want to be "normal" again ( I miss my previous life!!) I'm really glad I found this group - I already feel better just reading the many threads...there are others going through the same thing - i'm not alone! Toby |
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