at midnite i woke up and noticed sm needed to go potty, so she uncovered herself and laid there waiting for me to notice. yes she has a bell but she can't remember she has it. helped her on commode, helped her off, struggled with her panties, helped her drink. made chipped ice, spoonfed her, went to bed.

4 am heard a knock thot i was dreaming, but it was sm potty call again. this time we had a struggle she asked me to lower bed and since it is already as low as it goes i could not comply. managed not to let her fall. same as above but after i went potty too and cried in bathroom.

5am sm potty call. 7am sm potty call. 8am made commode same height as bed. put two atlases under her feet so she could reach floor. decided to lower it one notch. hooked up iv to pic line. changed g tube bandage soaked with puss. ate breakfast. lay down for 5 minute nap. gave dad a computer lesson. agreed with him that
computers are evil (its easier to agree). discussed plumbing project.

Caregiving is hard when you need care. Just a note about potty chairs. Do you line the bucket with small trash can liners, trash bags. Put three or four on at a time. No mess or clean up unless... well, you know.

It's also a good idea to put chucks (those blue lined pads) under the bed in case they don't make it to the potty chair in time. Just use your foot because your hands are usually on the patient. Pulls out quickly on slick blue side.

You're a good person to help out.

Last EMG showed I hacve plexus in left and bad ulnar nerve in left. Also worried about cervical problems in neck. Also said minimum Carpat tunnel/median nerve impairement.(It sure feels worse then that.)BUT is also showed that right Plexus has normalized.

How can that be?

My right shoulder is still frozen and I have pain in right side shoulder area. I don't believe that.

Theses tests are a pain in the neck.(Pun not intended)

Billy027 - EMG's are the worst. I have had 2 and a recent doctor suggested another. I don't think I could do it. I think you could use them as a military aid to get information from prisoners. I know I would tell all!

Di - Yes, the economy has really been a problem with our business. Heating and Air conditioning is seasonal but people will put off anything that is not necessary. Also, they are shopping around for the cheapest prices and we can only go so low on a price without loosing money. Our overhead is very high with insurance, gas, mortgages on two buildings, trucks, etc. I am cheap labor! We have one other girl in the office and she is working well. The others who were there were extremely over paid and not doing a good job. We used to catch one playing games or watching movies on the computer! The worst part was she was being paid too much and a relative! I didn't hire her my husband did. Also, Dr. S. said that it is not fibromyalgia and not to let any doctor tell me it is.

Kids are great. Oldest daughter (18) is in college in Manhattan, David had 4th surgery on his leg but has improved greatly, Dan in 8th grade and little one in kindergarten! I am all over the place. She has her first father/daughter dinner dance in 2 weeks. My husband has to start all over! He is excited also though. Di - I hope you are doing ok.

To everyone else, have a great weekend - Mark - haven't heard from you in awhile, I hope you are ok. Dabbo hope you are feeling better - Tam - I am going to pm you about my surgery. Thanks, Linda

was on my way home from work and totaled my car. The 2002 silver chevy camaro z28 that i love is a total loss. It just wasn't my day- my lane was ending, so i was trying to merge over, but traffic was backed up because of a wreck about 0.25 to 0.5 miles ahead, and then - SWERVE BRAKE SMASH then...? both airbags deployed, etc. Thank God I was wearing my seatbelt, I sit far away from the steering wheel, keep my left (bad) arm on a pillow, but almost on top of my leg. Also, the seats in the car were sized right for me, and didn't allow much body movement. got to go the ER, no concussions or broken bones thankfully. I'm startgng to feel less sore/stiff from the wreck. The more i look at those pics, the more i realize what a miracle it is that i'm not really hurt.

totally unrelated, i went to the doc the 2nd week of march because i was in some hellacious flareup. everything hurt, and my the muscles on top of the forearm that help raise your hand were so tight that i had a hard time keeping a pen on paper to write. so, in addition to scalenes, traps, and back, we injected my forearm w/ botox. so far, so good.
anyways, here's what the 2002 Z28 looks like now:

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I really can't complain about my day after seeing those photos.
Glad you're alright. That looks painful. I'm surprised it didn't flare you up... yet...

~ Jenny

i REMEMBER WHEN I BABYSAT my great grandmother and for the life of her she couldnt empty her bladder. she apologized to much to me, and I just said, Mama, no, don't feel bad, you've done so much for me growing up this is the least I can do for you. We'll just keep trying, ok?

Caring for a terminal cancer patient is as if you are a helium baloon that is slowly deflating. My mother in law, when I happened to see her at the final service for my day, had actually gone down to 87 lbs.

God never promised life on Earth to be perfect, as this world has free choice with the devil. But Heaven, I pray, and I am told to believe, is where I will be reunited with my loved ones in some manner, and there is only love.

My illness had definitely caused me to question my beliefs, but, in the end, I still talk to God about 99 percent of the time...so I must believe if I'm having this ongoing conversation with God, huh? haha.


Tied, I am so sorry for all that your family is going through.

Dabbo, the "last car" we purchased and knew we could - a new Lexus one - a lady rear-ended it and shmashed the car into an accordion.

Fiance was LIVID. But I said, at least no people or animals were hurt, and we still have the old Lexus SUV.

Sometimes our best-laid plans...

I don't take bad luck or crisis as well as I did when I was well. In 2002, (and before, while I was well) I was SO strong and fearless. I thought I could make ANYTHING happen, if I just took the right path and fought hard. I viewed work almost like slashing through a jungle, and I was the HERO.

Strange how things have changed.

Got my taxes filed today. Took advantage of the fee tax help the AARP offers to disabled persons. I feel much better now
If you want to find out if there's an AARP tax aid office near you check this link
https://locator.aarp.org/vmis/sites/...de_locator.jsp

Thank you angels for keeping Dabbo safe!!! OH I can't believe the damage and that you were not more damaged!!!!!!!
love and hugs,
Victoria