Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-12-2009, 08:06 PM #11
tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
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tshadow tshadow is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 1,002
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Quote:
Originally Posted by vender View Post
This is strange I came to this forum today because I too am at my end. 4 years and I've had enough. What can we do? Is the 1st rib surgery worth it? Do we just live in pain and take pills? I am in Michigan and if anyone could recommend a doctor or treatment..... I need to end the pain.
Thanks
Mark
Mark,

I thoroughly researched my surgery issues and I fought work comp to have surgery done by Dr. Annest in Denver. It did not cure my TOS, but it stopped the headaches for over a year, and totally erased the RSD which was going all over my body. One doctor would not do surgery on me because of the RSD, but Dr. Annest and I felt that with better circulation I would have less symptoms. He was right. I still have horrific pain and need a pain management doctor, an internist and I go to the ER because of difficulty breathing every six months...(they infuse me with morphine and calm my stomach and breathing down. My last stay was about 9 days?) I've had TOS 6 1/2 years.

It seems like men have better results than women on surgery. We've had two guys who were cured by Dr. Sanders and Dr. Brantigan in Denver.

These are my honest opinions, and you'll find others...

Advance search my name for the thread on TOS testing, as you need to make sure you have TOS and nothing that mimics it, like MS or cervical issues.

God bless.
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Old 03-15-2009, 09:11 AM #12
LinJane LinJane is offline
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Location: New Jersey
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LinJane LinJane is offline
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Thanks for the humor! I am happy I have come back to the site. I am sorry why I and all of you are here but atleast we understand each other. Humor is the only way to get through this. Comedy movies and goofing with my kids is a big help. If I stayed in bed and felt sorry for myself it wouldn't help.

I try to delegate things around the house but find it still doesn't get done, or I yell at everyone and end up crying because I yelled! Since my daughter went to college it's alittle harder. She was more of my helper then my sons. They try but don't quite understand.

Today we're having cold misty weather in NJ and it is not helping the pain. I would love to be on a nice sunny beach right now! We had been in Antigua in January for 6 days and it was 80 degrees and sunny! I try to close my eyes and pretend I'm back drinking rum punch on the beach!

Everyone have a great day and close your eyes and pretend your on the beach drinking rum, especially you, Victoria! Thanks for being there everyone! Linda
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