Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 01-09-2011, 12:57 AM #1
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default Insomnia

We have had lots of post about insomnia. I have lightly mentioned learning to relax but last night my wife and I got talking about it. She has observed how well my brain responds to music in preparation to go to sleep.

Have any of you with insomnia problems tried to find soothing music to help settle your brain's rhythms? Many people say they do not like slow or 'boring' music but it is worth taking some time to experiment with different tempos and genres of music.

I have a few that can lullaby me to sleep if I just remember to turn them on. Diana Krall's "The Look of Love" can settle me from the worst over-stimulating crashes/panic attacks. I also do very well with Celtic Woman. I have listened to foreign language music too. Sarah Brightman sings some like "Time to Say Goodbye" The languages that I do not understand ( all but English and un pokito of Espanol) allow me to not connect to the words cognitively.

It help for me to have heard the music many times before. That way, my mind knows what to expect.

I have tried white noise, rain sounds, waves, etc but they are too abstract. I need my brain to follow the music at a simple level cognitively. The simplicity of quality arrangements does wonders for me. I can even get refreshed from just listening without actually falling asleep.

Back in my youth, I used to fall asleep to Chicago, Blood Sweat and Tears, or Three Dog Night, etc. What a difference 40 years and PCS makes.

Hope you can use this to find a way to get better sleep.

My best to you all.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Klaus (02-17-2012), SpaceCadet (02-16-2012)

advertisement
Old 02-16-2012, 11:19 PM #2
SpaceCadet's Avatar
SpaceCadet SpaceCadet is offline
Member
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
SpaceCadet SpaceCadet is offline
Member
SpaceCadet's Avatar
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default

Wow, sorry to resurrect an old threat but...

I started taking Mirtazapine a little over a month ago. It's an anti-depressant with some sedative effects at a low dosage. It's also used off-label for sleep disorders. It was working wonders for me and I thought it was the solution to my sleeping problems. Well, my dosage has been increased and the sedative effects aren't as strong anymore...and just a few days ago my insomnia returned.

I know that insomnia is a common symptom for people with Post-Concussion Syndrome. I'm wondering, besides medicine, what you guys have been doing to get yourself to sleep? I downloaded a "Relax and Sleep" app on my Android phone that has different "white noises", sounds of waves crashing, nature sounds, city sounds, etc. but I couldn't find something to help me sleep.

I tried music once before but it didn't work. I'm going to try again tonight with the music that Mark suggested.

Any other advice would be great.

Thanks!
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
SpaceCadet is offline   Reply With QuoteReply With Quote
Old 02-17-2012, 12:18 AM #3
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
Default

I listen to soundscapes (soothing music) on my tv and set it on a 20 minute timer. I then do Healing Touch on myself by touching certain points on my body that helps the body and mind to go into relaxation mode. Its called a Chakra Connection....you start at the feet and work your way to the top of your head. I usually fall asleep before i even reach my head! I wake up in the morning refreshed and pain free!!!
__________________
Suffered a TBI with PCS on April 25th 2011 from multiple blows to the head from falling, unconscious for 12 hours with no memory of event. Hit the back of my head, and above right eye. MRI and CT negative. Symptoms included constant headaches (migraine, pressure, tension, icepicks), dizziness, tinnitus, visual changes, photophobia, fatigue, "spacing out", word finding difficulties, depression, and emotional lability.
Began Healing in November 2011 after starting acupuncture and Healing Touch (a nurturing energy therapy that promotes relaxation and pain relief). I went back to work in February 2012. Ive been symptom free since July 2012. Very happy, positive, energetic and working out every day, doing yoga, and living a normal life again!
I also began taking Healing Touch classes in November 2011 and completed 5 Levels of Healing Touch Certificate Program that included a 1 year mentorship to become a Healing Touch International Practitioner in June 2013. I am so pleased to offer this wonderful healing therapy to my patients, friends, and clients.
nightnurse30 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SpaceCadet (02-17-2012)
Old 02-17-2012, 09:34 AM #4
leebeemi leebeemi is offline
Junior Member
 
Join Date: Jan 2012
Location: Way UP North, Michigan
Posts: 19
10 yr Member
leebeemi leebeemi is offline
Junior Member
 
Join Date: Jan 2012
Location: Way UP North, Michigan
Posts: 19
10 yr Member
Default

Ah, insomnia, my old friend! I have suffered from insomnia since before my PCS. Actually, I've had it since I was a child. Not every night--intermittently. Sometimes related to hormones, sometimes related to stress, sometimes not related to anything. Ironically, my PCS has made the insomnia easier to deal with--I don't fret over it. "Mind race" has always been my problem, but my PCS insomnia is just being awake.

I have learned some techniques over the years to deal with the mind race, but have come to realize one fundamental thing: insomnia is fickle. I have to let it lead me to the solution, and my solutions may not work for everyone.

That said, here are some things that have worked for me:
* Don't fight it--get up and do something if you can--I used to make pancakes & freeze them for breakfast, or fold laundry and iron. Something mindless that can be done with out thinking.

* Try to distract your brain--music may work, although I have better luck with guided meditation. Before the concussion, I'd do long division in my head or count, visualizing the numbers in a specific color or style--that technique is troublesome now, as it can give me a headache.

* White noise or nature sounds can be very soothing. The reason music doesn't work for me is that it's too complicated--since my concussion, I hear music differently, it doesn't blend. But the sound of the ocean or rain works.

* Remember some pleasant memory from beginning to end--my wedding or the birth of my kids, my first day on a tropical vacation. If I can't remember something, I simply write something pleasant in, not worrying about the "truth."

I can't suggest guided meditation enough. The very act of someone telling me to let the thoughts go the way they come has helped me learn to clear my mind. Instead of keeping them out, I can let them in, and then I can let them go.

Last night I had trouble with restless legs (I also suffer from restless leg syndrome--yay). I have several guided meditation apps on my iPad, and I used a long one (20mins) to try to relax. I don't even remember the end of it--the urge to move my legs didn't go away, but my need to follow the urge did. I slept like a baby.

I think, though, that for insomnia the key is to not feed its power. Give in to it if fighting it doesn't work. Let it run its course. Yes, the next day after a sleepless night is hard. It's awful. But worrying about it doesn't help--it actually makes it worse. We have much more important things to worry about, right? Of course it's easier said than done, but it does sometimes help to put it in perspective.

And, you can always call me if you aren't sleeping--chances are I'm awake too.
leebeemi is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Drifting (02-17-2012), SpaceCadet (02-17-2012)
Old 02-17-2012, 10:39 AM #5
TooStressed TooStressed is offline
Junior Member
 
Join Date: Feb 2012
Posts: 60
10 yr Member
TooStressed TooStressed is offline
Junior Member
 
Join Date: Feb 2012
Posts: 60
10 yr Member
Default

I use a Marpac Sound Screen white noise generater to lull me to sleep. It has two volumes, loud and louder. Amazon has them for a little over $50. Well worth it. Pure blissful white noise!

Taking Amitriptyline has been great for my headaches but as a side effect it gives me bad acid reflux. I take a dose an hour before bed so the heartburn I get results in insomnia. I try to take my dose with a good natural antacid like a banana. But if I'm out of bananas, I have to try and sleep in an inclined propped up position so my digestive tract isn't strained. It's pretty hard to get a good night sleeping in this position, even with the white noise. Often I'll go in and out of sleep throughout the night. Sleep for a few hours, wake up for several minutes, then back to sleep repeating the cycle.

I can tell what little sleep I may get is good quality REM sleep because I always have very vivid dreams. Sometimes in my dreams I'm in there recalling other dreams. Dreams within dreams...Freaking weird! I wake up in the morning thinking, "Wow, the Amitripyline packs a punch!"
TooStressed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SpaceCadet (02-17-2012)
Old 02-17-2012, 08:14 PM #6
AllAmericanAmy AllAmericanAmy is offline
Junior Member
 
Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
10 yr Member
AllAmericanAmy AllAmericanAmy is offline
Junior Member
 
Join Date: Jul 2011
Location: Southwest Michigan
Posts: 57
10 yr Member
Smile

Quote:
Originally Posted by leebeemi View Post
Ah, insomnia, my old friend! I have suffered from insomnia since before my PCS. Actually, I've had it since I was a child. Not every night--intermittently. Sometimes related to hormones, sometimes related to stress, sometimes not related to anything. Ironically, my PCS has made the insomnia easier to deal with--I don't fret over it. "Mind race" has always been my problem, but my PCS insomnia is just being awake.

I have learned some techniques over the years to deal with the mind race, but have come to realize one fundamental thing: insomnia is fickle. I have to let it lead me to the solution, and my solutions may not work for everyone.

That said, here are some things that have worked for me:
* Don't fight it--get up and do something if you can--I used to make pancakes & freeze them for breakfast, or fold laundry and iron. Something mindless that can be done with out thinking.

* Try to distract your brain--music may work, although I have better luck with guided meditation. Before the concussion, I'd do long division in my head or count, visualizing the numbers in a specific color or style--that technique is troublesome now, as it can give me a headache.

* White noise or nature sounds can be very soothing. The reason music doesn't work for me is that it's too complicated--since my concussion, I hear music differently, it doesn't blend. But the sound of the ocean or rain works.

* Remember some pleasant memory from beginning to end--my wedding or the birth of my kids, my first day on a tropical vacation. If I can't remember something, I simply write something pleasant in, not worrying about the "truth."

I can't suggest guided meditation enough. The very act of someone telling me to let the thoughts go the way they come has helped me learn to clear my mind. Instead of keeping them out, I can let them in, and then I can let them go.

Last night I had trouble with restless legs (I also suffer from restless leg syndrome--yay). I have several guided meditation apps on my iPad, and I used a long one (20mins) to try to relax. I don't even remember the end of it--the urge to move my legs didn't go away, but my need to follow the urge did. I slept like a baby.

I think, though, that for insomnia the key is to not feed its power. Give in to it if fighting it doesn't work. Let it run its course. Yes, the next day after a sleepless night is hard. It's awful. But worrying about it doesn't help--it actually makes it worse. We have much more important things to worry about, right? Of course it's easier said than done, but it does sometimes help to put it in perspective.

And, you can always call me if you aren't sleeping--chances are I'm awake too.
Hmmmm - have you been tested for Hasimoto's thyroid disease? You sound very much like myself undiagnosed - insomnia and restless legs are part of my issues when my thyroid levels are off. Do you have dry skin? Fatigue? You need to have your TSH levels tested, not simply a thyroid panel. Google it and you can get more info.

Just a thought!
__________________
Blessings to you...
AMY

Wife of 54 year old hubby who sustained TBI January 2011 downhill skiing.

Hubby is: Machinist, off work since injury. 70% of the time feels really, really rotten (better! Used to be 99% of the time) 30% of time he just feels bad but can push thru to do something.

Current Symptoms: Light & noise sensitivity, brain fog (lessened by Zoloft), extreme fatigue, balance issues (walks with cane), cognitive problems (slowed & more difficult thinking), overwhelmed easily. Difficulty falling asleep but then could stay asleep for 12 hours or more
.
(Uses CPAP machine while sleeping due to apnea NOT caused by TBI)

All symptoms increased by stress, fatigue & crowds. Jostling movements (walking briskly, bumpy rides) are VERY bad & cause severe set-back


Seems to help: Taking 150mg Zoloft at night for symptom control, especially helps with "brain flips / swishing when walking" and brain fog (helped). 300 mg Gabapentin (100 3xdaily) for headaches (works pretty well. Minor headaches are eased by combined Acetaminophen & aspirin). Xanax for anxiety, but also seems to slow the overstimulation feeling when out-and-about. Feels best while lying down (vertical position seems to bring on symptoms)

Misc: Clear EEG, clear MRI'S (2 of them). No cut, bump or bruise after accident - all damage internal
.
Oddly enough, he's not bothered at ALL by tv
.
Praise the Lord he has NO difficulty driving.
AllAmericanAmy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
leebeemi (02-17-2012), v-lo (02-17-2012)
Old 02-17-2012, 09:41 PM #7
leebeemi leebeemi is offline
Junior Member
 
Join Date: Jan 2012
Location: Way UP North, Michigan
Posts: 19
10 yr Member
leebeemi leebeemi is offline
Junior Member
 
Join Date: Jan 2012
Location: Way UP North, Michigan
Posts: 19
10 yr Member
Default

Thanks Amy. I have been tested for thyroid issues, and everything is normal. But it's always good to mention it! Thanks.
leebeemi is offline   Reply With QuoteReply With Quote
Old 02-17-2012, 11:23 PM #8
kayley kayley is offline
Junior Member
 
Join Date: Jan 2012
Location: Ontario, Canada
Posts: 42
10 yr Member
kayley kayley is offline
Junior Member
 
Join Date: Jan 2012
Location: Ontario, Canada
Posts: 42
10 yr Member
Default

I've been taking Melatonin for almost three weeks now. Helps me fall asleep and because it's a supplement not an anti-depressent (I tried Apo-Amitrypiline previously) it doesn't make me groggy in the morning which is good.
kayley is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Eowyn (02-18-2012), SpaceCadet (02-18-2012)
Old 02-18-2012, 08:53 AM #9
Eowyn's Avatar
Eowyn Eowyn is offline
Member
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Eowyn Eowyn is offline
Member
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Default

I have been having troubles with thermal regulation in the night. I thought it was because I was sleeping with my husband, who is a furnace, but the past couple of nights I've been sleeping by myself and am still having the same problem. I'm very cold, then I'm very hot, then I'm very cold.

I wake up in the middle of it all and have trouble falling back asleep. Regular wake-ups around 1 and 4.

Anybody else experience this? Medication side effect? Hormones out of whack?
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With QuoteReply With Quote
Old 02-18-2012, 08:21 PM #10
xxxxcrystalxxxx xxxxcrystalxxxx is offline
Member
 
Join Date: Oct 2011
Location: USA
Posts: 225
10 yr Member
xxxxcrystalxxxx xxxxcrystalxxxx is offline
Member
 
Join Date: Oct 2011
Location: USA
Posts: 225
10 yr Member
Default

Quote:
Originally Posted by Eowyn View Post
I have been having troubles with thermal regulation in the night. I thought it was because I was sleeping with my husband, who is a furnace, but the past couple of nights I've been sleeping by myself and am still having the same problem. I'm very cold, then I'm very hot, then I'm very cold.

I wake up in the middle of it all and have trouble falling back asleep. Regular wake-ups around 1 and 4.

Anybody else experience this? Medication side effect? Hormones out of whack?
I have problems with temp. Hot, wake up. Cold, wake up. I take 100 mg of the amitriptaline and a clonazipam..still sleep problems. Right after my injury I would always feel warm and sometimes my husband would comment on how hot I was. I used to always be cold.
xxxxcrystalxxxx is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
insomnia......???? bizi Bipolar Disorder 151 10-11-2008 12:26 AM
Insomnia BrownEyedGirl Parkinson's Disease 3 03-06-2008 09:01 PM
Insomnia rd42 Parkinson's Disease 5 09-21-2007 01:43 AM
Insomnia Nikko Bipolar Disorder 9 03-05-2007 07:58 PM
Insomnia NancyM Sleep Apnea & Sleep Disorders 0 09-28-2006 03:39 PM


All times are GMT -5. The time now is 01:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.