Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-31-2014, 09:36 AM #11
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Quote:
Originally Posted by Galaxy1012 View Post
Same here. I think I will always live in the fear of hitting my head again and going through it all over again! Don't know how soccer players just go about doing anything from jumping, running, crashing into each other and head striking the ball over and over again after one concussion.
I played soccer for about 20 years.. looking back, there is a good chance I had a few concussions but it NEVER had an effect on me like this one... I was normally fine within a few days and back at it...
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily.

Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well.

Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off)

Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture

Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath
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Old 08-31-2014, 03:55 PM #12
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Yep, same here. i am terrified of anyone hitting their head
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-31-2014, 07:41 PM #13
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Terrified...keep thinking if it happens again I'll be in a mental hospital blubbering, no joke.

Not good to think these thoughts but can't help it when driving with someone in a car.
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Old 08-31-2014, 09:00 PM #14
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We bought a sturdy car with side curtain airbags to reduce the risk of a head impact in a vehicle collision.
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"Be still and know that I am God" Psalm 46:10
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Old 08-31-2014, 09:04 PM #15
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Sitke, i'll meet you there if i hit my head again. ironically, just after i posted my other comment, i talked to my sister who got a mild concussion surfing when a heavy wave crashed on her. nausea and fatigue for a few days.

and of course, as the big sister i now have another worry to add write on a post it and put it in a tuperware in my freezer. sounds like i've finally lost it, but that is an exercise my therapist gave me. i write "hitting my head" and "cancer" and "not getting better" almost every day.


Quote:
Originally Posted by Sitke View Post
Terrified...keep thinking if it happens again I'll be in a mental hospital blubbering, no joke.

Not good to think these thoughts but can't help it when driving with someone in a car.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel.

Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements.

Just started vision therapy, waiting on some blue-tinted prism glasses.

"You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou
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Old 08-31-2014, 10:54 PM #16
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at this point it might knock something back into place for me
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Old 08-31-2014, 11:47 PM #17
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sitke and others,

There is a big difference between having a mental illness/disorder and having cognitive challenges. Please do not associate the cognitive impairments from concussions/mTBI with mental illness. There are plenty here with cognitive impairments who work diligently to maintain sound mental health.
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Old 09-01-2014, 12:14 AM #18
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Quote:
Originally Posted by Mark in Idaho View Post
sitke and others,

There is a big difference between having a mental illness/disorder and having cognitive challenges. Please do not associate the cognitive impairments form concussions/mTBI with mental illness. There are plenty here with cognitive impairments who work diligently to maintain sound mental health.
Unfortunately, at least in the beginning, the injury manifests with anxiety and depression in many cases. I don't think people are equating cognitive challenges with mental illness. I think they are equating head injury with the mental illnesses of anxiety and depression. I think that is a rational fear.

Also, losing feeling of one's old self can cause anxiety and depression. Again, not unwarranted.

I know this pulsating tinnitus is causing my anxiety issues. Everyone has a different threshold of what they can adapt to and how quickly they can adapt, without outside help.
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Old 09-01-2014, 02:03 AM #19
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We have little or no control over the cognitive challenges from a head injury but we do have ways we can deal with the anxiety and depression with meds and other therapies. That is what I meant by diligently working to maintain sound mental health. Yes, I need outside help to maintain my mental health.

Sitke's comment "Terrified...keep thinking if it happens again I'll be in a mental hospital blubbering, no joke." is taken to be in response to the cognitive challenges since they can cause one to sound like they are blubbering.

After being locked in solitary in a medical room for 2 nights next to someone having a psychiatric crisis and hearing what it was like for a family member that was locked up in a mental/psychiatric facility, I am very sensitive to how these issues are discussed.

We play a big part in how our anxiety and depression symptoms are treated.
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Old 09-01-2014, 02:23 AM #20
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Mark,

Some people are more anxious to begin with so having a head injury and residual problems for a long time, in some cases years, afterwards is obviously something that can raise the anxiety levels.

It's in my opinion no different from having cognitive issues post concussion. But that's just my view.

I really dislike the term "mental illness" as if it's a separate entity and not organic.

Genetics plays a huge part in how we manage life with or without anxiety or panic or depression or whatever it is. Unfortunately I can't go and get some sort of genetic modification.

The worse my vertigo the more anxious I am of falling again.

The better my vertigo the less anxious I am of falling again.

It's not unreasonable for people who have suffered after a fall to fear another fall. It's how we humans work.
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