Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 07-05-2011, 11:11 PM #11
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Tooth nerve pain. I banged my front left tooth 10 months ago w/a thick glass late one night while on Naproxen. Went to the dentist who said I don't need a root canal.

When it is bad, it is hated more than the headache.

Heck, it might be the only thing messing w/my brain, or vice versa.

Chiro & accupuncture have helped a bit, but I don't have a doctor, and no one outside of Dr. Amen (expensive, but famous) may have a clue. There's NCR for $650... but some have said to avoid it.

Guess I can wait this out, or get a nerve yanked out after another year(?)
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Old 07-06-2011, 04:00 AM #12
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Quote:
Originally Posted by Sareth View Post
Thanks! I've been struggling to identify this problem. It sounds alot like what I'm experiencing, just my symptom isn't as intense.

I still find it odd though how I have this horrible symptom even though I've taken every brain injury test out there and had gotten normal results....

Glad to help. Just remember that despite all the fancy sounding tests and big words we actually know very little about the brain and how it really works.

In his books Sacks (who is actually a neuropsychologist, not a neurologist my bad) usually just flags up these interesting symptoms, sometimes talks about ways in which they were mitigated, cured or went away of their own accord, but very rarely can he explain exactly why they occur or what tests might find evidence for them in a 'this part of the brain is damaged, therefore this has happened' type way.

The brain is just too complex, and every thought, memory, action or perception tends to take place in many different parts of the brain at the same time. I've heard it said that if the human brain was simple enough for us to understand, we would be too stupid to understand it.

So it's not unusual that such a weird symptom as this won't show up on tests - however it is documented that such things happen and there are people out there who will work with you on it, if you can find them. Good luck!
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Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
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Old 07-06-2011, 11:14 AM #13
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Chiro & accupuncture have helped a bit, but I don't have a doctor, and no one outside of Dr. Amen (expensive, but famous) may have a clue. There's NCR for $650... but some have said to avoid it.
What does NCR stand for?
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Old 07-06-2011, 12:44 PM #14
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NCR stands for NeuroCranialRestructuring. The therapist does some testing of the proprioceptive nerve system then determines the solution. He inserts balloons into different areas of the nose and inflates them until they supposedly move the bones/plates of the skull. It is very controversial. The wide range of conditions it is supposed to help leaves me with a voodoo impression of it. It may help with some facial skeletal deformities and the related physiological conditions but I can't see how it can help with Alzheimer's Disease or ALS.
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Old 07-07-2011, 03:39 PM #15
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I get these occasional, subtle twitches of my head and neck (and sometimes other body parts) when I lie down. It's not terribly worrisome, but is sort of curious. Not sure what causes this - maybe some sort of slight realignment, or just muscles or other tissue gradually releasing in the wake of the injury (or in the wake of bodily tension from moving around cautiously and slowly all the time).
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Old 07-07-2011, 07:25 PM #16
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Originally Posted by greenfrog View Post
I get these occasional, subtle twitches of my head and neck (and sometimes other body parts) when I lie down. It's not terribly worrisome, but is sort of curious. Not sure what causes this - maybe some sort of slight realignment, or just muscles or other tissue gradually releasing in the wake of the injury (or in the wake of bodily tension from moving around cautiously and slowly all the time).
That's interesting that you mention that, because I have the exact same thing. Sometimes my head just twitches on it's own and it feels like my neck is all tensing up, but I've noticed I've had alot of neck pain along with it. I think you're right though, it just being caused by the whole body being tense from being still and slow all the time.

Last edited by Sareth; 07-07-2011 at 08:05 PM.
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Old 07-11-2011, 11:06 AM #17
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Default weird symptoms..

My personality changes to alittle kid, I hear myself and cannot stop/control it.
when I try to speak normally, lower my tone use appropriate vocabulary, my voice goes really slurred as though that is the way my brain has decided I should be for that moment and going against it makes it worse...
Also my periods started again after a 9 month cessation... Neurologist going, "Hmmm, never heard of that!" doesn't fill one with confidence....
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Old 08-15-2011, 04:00 PM #18
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so no-one else turns into a younger version of themselves...
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Old 08-19-2011, 12:02 PM #19
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Neurologist going, "Hmmm, never heard of that!" doesn't fill one with confidence....
Doctors and neurologists can be pretty unreliable sometimes... My neurologist who has 30 years experience hasn't heard of half the list of my symptoms, she doesn't even know what Second Impact Syndrome or Intracranial Pressure is!
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Old 08-21-2011, 09:21 PM #20
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I would be extremely scared of a neurologist who didnt know what intracranial pressure is!!! We monitor ICP's on patients who have had certain brain surgeries, and neurologists follow these patients along with the neurosurgeons. I would say you should try and find another neurologist!!! SCARY!

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Doctors and neurologists can be pretty unreliable sometimes... My neurologist who has 30 years experience hasn't heard of half the list of my symptoms, she doesn't even know what Second Impact Syndrome or Intracranial Pressure is!
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