Do you guys have a symptom that neither your neurologist nor doctor recognized? I'm curious, because there's a symptom I have that seems bizarre according to the number of doctors I've visited and neurologist I've been seeing... My neurologist said she's never heard of it, even though she's had her career for about 30 years.

I apparently developed allergies after my concussion.

Sareth,

What is your bizarre symptom? I have had all kinds of weird symptoms but I have not focused on them.

I seem to have developed a craving for watermelon - which I only ate to be polite before... That's probably not what you're looking for

Mine is not quite so out there, but my headaches have ADHD they do not sit in one place, they jump all around from here to there 10 min in front, 15min on Left, 20 in the back...they all scratch their heads when I say that

I can eat way more sugar than I used to : ) yum! I used to have much worse hypoglycemia and had to almost entirely avoid sugars including fruit sugar without coupling it with a copious amount of protein.

Well, someone from another forum (suffering Schizophrenia, not PCS) described it best:
"I keep having the sensation that my body parts are disintegrating and disappearing into the air! Oh my God. Over and over and over again. I'm constantly feeling my arms and legs but still it feels like it even though I'm looking at them and they're still there. I had this terrible sensation that my arms were gone and only my hands were there, hanging uselessly in the middle of nothing! I've been poking myself with a pencil and scratching myself, because then I know I'm not disappearing because I can feel the pain."

Anything like this? (The Man Who Fell Out of Bed)

http://www.c 3.hu/othercontent/linkbudapest/site9802/frames/9801/english/story6.htm

(I've broken that link as I'm not sure what sort of site it comes from - the story is the right one though)

Clearly not exactly the same as what you describe, but it's about a guy who doesn't recognise his leg as his own - he assumes it's someone else's and so tries to throw it out of bed (of course he follows it).

It's from a book called 'The Man Who Mistook His Wife for a Hat' by neurologist Oliver Sacks. His books are full of this sort of weirdness, including a lot about other sorts of bizarre disorders affecting how people percieve their own bodies (see particularly 'the disembodied woman' and the chapters on phantom limbs). You might want to consider having a look at some of his stuff as you might find something you can identify with that helps you explain such symptoms to people.

One thing's for sure - he believes that stuff like this and what you're describing can be the result of organic neurological issues (ie physical changes to your brain such as what might happen after a brain injury) affecting perception and so don't necessarily mean that the person is psychotic (ie hallucinating).

Hope that's helpful and good luck with it

That's interesting; I was just given an allergy blood panel and they discovered I have a wheat allergy and I don't think I had one before the accident I was in that gave me a concussion almost a year ago. I insisted on getting the allergy panel because I felt like I was reacting to something I was eating.

Thanks! I've been struggling to identify this problem. It sounds alot like what I'm experiencing, just my symptom isn't as intense.

I still find it odd though how I have this horrible symptom even though I've taken every brain injury test out there and had gotten normal results....