Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 01-09-2012, 01:06 AM #11
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,427
15 yr Member
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My point is that NP testing will only give a snap shot at that point in time. The recommendations from a NPA can be helpful or a total waste. My daughter was assessed and determined to not have enough deficit to qualify for help even though she was up to 2 grades behind. The variables in performance at such a young age is wide. Many tend to defer to letting time show the difficulties.

Since I have lived through this age with PCS, I know the struggles from the inside. Neither my mother nor I were told anything about concussion. I had to just survive on my own. My mother just sat back and wondered what was happening to her brightest child as my grades roller coastered and my personality changed. I remember trying to find a way to end the academic and social pain without upsetting others or becoming an invalid.

I would have cherished some help with my struggles.

Chachi, You have an excellent opportunity to help your son deal with the struggles. The openness of your discussions and acceptance of his struggles should give him strength to tell you more.

Also, trying to direct his testing and diagnostic work can come back to bite you. Talk to his doctors or school about his struggles and symptoms. Ask if there is any testing that can be done. Ask if a NeuroPsychological evaluation could help. Be passive but interested in more understanding. Authority figures who hold the purse strings or are accountable for the spending will be more responsive with a soft approach.

The pushy mom with cyber-knowledge can quickly get labeled a problem. As my wife would say, "Please, help me understand what is happening with my son." She gets lots of good responses with the soft approach.

My best to you.
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