Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Reply
 
Thread Tools Display Modes
Old 02-07-2012, 11:48 PM #21
EsthersDoll EsthersDoll is offline
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
EsthersDoll EsthersDoll is offline
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post
I think a big part of people not caring is that they have their own lives that are stressful and too busy. When they even do understand our condition, they realize that they are helpless to help us. Only those with serious commitments to us take the step to learn how to support us. The rest just go on with their lives without us.

I doubt many even consider the reciprocity issue. There is a saying, "You'll worry less about what people think about you when you realize how seldom they do." This is considered by many to be a truthful fact of life.

Unless we empower them with a way to help us, they will never make an effort to help us.

Very few people have the integrity to stay around long enough to make a difference in our lives even when they do know how to help.
Mark you reminded me of a quote I used to say over and over again when I was doing very poorly cognitively:

“Those who mind don't matter, and those who matter don't mind.”
― Bernard Baruch

I think I'll add it to the thread where we are putting encouraging quotes.
EsthersDoll is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Klaus (02-08-2012)
Old 02-08-2012, 04:53 AM #22
Klaus's Avatar
Klaus Klaus is offline
Member
 
Join Date: May 2011
Location: England
Posts: 302
10 yr Member
Klaus Klaus is offline
Member
Klaus's Avatar
 
Join Date: May 2011
Location: England
Posts: 302
10 yr Member
Default

Quote:
Originally Posted by xanadu00 View Post
I have tried to come up with explanations as to why so many people are so bad at showing genuine concern and offering any sort of helpful advice for others who are suffering The best I can come up with so far is that most people either don't care, or do care but just have no idea what to say, perhaps because they've never dealt with serious suffering and misfortune.
Over in the UK we have a very influential and poisonous tabloid press which I think contributes more than people realise to a culture of suspicion and mistrust in many areas of life. Some of its regular targets are workers who take sick days and people who are on incapacity benefit, so there are constantly outraged headlines picking on some individual who has been found to be lying about their illness, or denouncing swathes of the population as 'benefit cheats'.

They love to secretly film people or tap their phones, trying to catch them out doing something which their stated illness might preclude them doing - and there's never any acknowledgement that people can have good and bad days, or a limited amount of tolerance for certain activities.

It leads to a general attitude that if someone says they are sick they are probably either lying, hypochondriacs or just lazy. Whenever someone sees me doing something vaguely challenging I feel like I have to go on and on about how I'm having a particularly good day today and about all the opther problems I'm having, otherwise I'll be compared to some stupid tabloid story about some guy who was off work with a bad back but has been found to be a trapeze artist in his spare time.
__________________
mTBI March 2011, spent around a year recovering.

Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
Klaus is offline   Reply With QuoteReply With Quote
Old 02-08-2012, 09:06 AM #23
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
Default

Quote:
Originally Posted by Mark in Idaho View Post

I doubt many even consider the reciprocity issue. There is a saying, "You'll worry less about what people think about you when you realize how seldom they do." This is considered by many to be a truthful fact of life.

Unless we empower them with a way to help us, they will never make an effort to help us.

Very few people have the integrity to stay around long enough to make a difference in our lives even when they do know how to help.
I was referring to reciprocity in a broader and more abstract sense, such as the belief that people get what they deserve and reap what they sow. Perhaps 'reciprocity' isn't quite the right word for expressing that point. In any case, I can come up with no other explanation as to why so many people, without any evidence, just assert that if someone is suffering, then he or she must have done something bad to deserve it. Not only can I think of no other explanation, but what I was saying about some people's inability to accept undeserved suffering (either their own or others') explains this behavior nicely.

It's also interesting that many people will think the same thing about themselves: If they are the victim of a tragedy, they will think that they must have done something to deserve it. In fact, I think that most of us have a tendency to at least sometimes wonder whether we are being punished in response to something we did. This is a widespread, cross-cultural phenomenon that seems to have deep roots in the human psyche.

In any case, Mark, I appreciate your less cynical perspective (than mine) on how we should understand others' lack of concern, and what we can do about it.

Pete
__________________
Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
xanadu00 is offline   Reply With QuoteReply With Quote
Old 02-10-2012, 08:58 PM #24
SpaceCadet's Avatar
SpaceCadet SpaceCadet is offline
Member
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
SpaceCadet SpaceCadet is offline
Member
SpaceCadet's Avatar
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default

My mom always talks in a very stern tone and constantly yells all the time about everything...this makes it hard for me to talk to her. I've told her over and over that I can't talk to her if she's gonna argue or talk to me in that tone...she says:

"I don't even want to be around you...I can't be normal around you."

Awesome.

When I explained to her how an argument can screw me up for days, she says "That only happens because you think it..if you don't think it it won't happen."

I want out of here so bad. This house is a huge stress ball.
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
SpaceCadet is offline   Reply With QuoteReply With Quote
Old 02-10-2012, 09:17 PM #25
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
xanadu00 xanadu00 is offline
Member
 
Join Date: Jan 2012
Location: Minnesota
Posts: 239
10 yr Member
Default

Sorry, man. It doesn't sound like there's an easy answer to this one. Do you know any friends you can move in with? Can you find a cheap studio apartment somewhere?
__________________
Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
xanadu00 is offline   Reply With QuoteReply With Quote
Old 02-10-2012, 09:25 PM #26
SpaceCadet's Avatar
SpaceCadet SpaceCadet is offline
Member
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
SpaceCadet SpaceCadet is offline
Member
SpaceCadet's Avatar
 
Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default

Pete,

Not really asking for help...just thought I'd continue to share some of the hurtful things people have said to me. I'm working on getting out of here...it's just rough right now being disabled and collecting Unemployment.
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
SpaceCadet is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
When There Are No Words Alffe Survivors of Suicide 7 05-22-2011 07:54 AM
any last words....? jennyk38 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 09-01-2007 09:32 PM
The welcome words at the top Alffe Community & Forum Feedback 5 01-11-2007 07:25 PM


All times are GMT -5. The time now is 01:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.