Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-25-2012, 08:12 PM #1
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SpaceCadet SpaceCadet is offline
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default Does it ever get better? (and stay better)

I'm just wondering...

...My symptoms have been progressively getting worse every few months. I'm trying to just accept that I have a brain injury and the way I feel all the time, so I can move on with my life and find work-arounds, etc.

But, its hard to do that when things are constantly getting worse.

My days are never good. I'm screwed up 24 hours, 7 days a week. Its just a matter of how tolerable they are. How can I explain it...a good day for me is a bad day that I tolerate well. Today, not tolerable at all. I find work-arounds and accept my disability...then I start to move forward with my life, and then I wake up and things are worse than they were the previous day/week...and they stay that way for a long time(weeks/month). This whole month has been terrible.

What I struggle with is all cognitive and psychological problems. I have other issues but they are nothing compared to how horrible my thinking is. I have trouble expressing myself. Words and sentences don't come out right...and sometimes, they don't come out at all. This is a constant problem for me...I have a work-around that Mark taught me. Its called "Stop to think". This works on my tolerable days but doesn't on days like this.

Does it ever get better?

Do the symptoms ever just stabilize?

Or, is this roller coaster something I'm going to be riding for the rest of my life?

I just want my symptoms to stabilize so I can attach some work-arounds to my tool belt and get on with my life.

Okay, sorry for the vent slash ramble. I just felt it was necessary for me to get over the problems I'm having today.

Nick
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.

Last edited by SpaceCadet; 03-25-2012 at 08:59 PM.
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