Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 05-03-2012, 05:17 PM #1
Concussed Scientist Concussed Scientist is offline
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Default Hyperbaric Oxygen treatment

I have also tried hyperbaric oxygen treatment 80 one hour treatments at either 1.5 or 2 ATA.

I think that it helped me and there is even some recent evidence from a clinical trial:
http://www.hyperbaricmedicalfoundati...rchJan2012.pdf

I was advised to do the treatment without too much time in between treatments in order to get a cumulative effect, preferably 5 or 6 times a week. I actually only managed 3 or 4 times a week and felt that that was enough for me.

Linda, I see that you were only trying twice a week. This may not have been frequent enough to get the best effects. I do completely accept that different things work for different people, but perhaps your daughter might benefit from trying again, doing the treatments more frequently. I was lucky in being able to get HBOT at a much cheaper rate than you were paying, but I do sympathize with the expense. However, 40 treatments five times a week might be better than 40 treatments twice a week.

I know that you said that you didn't see any benefit. But it is perhaps difficult to know what a 13 year old girl is feeling. Younger people are not always quick to express what they are feeling to their parents, particularly if they have had a brain injury. It would be hard for a parent to know whether or not a treatment was of any use. The communication part, at least, might be better now that your daughter is 18.

All the best to you both.
CS

Quote:
Originally Posted by LindaMartino27 View Post
Hi,

My daughter's injury was in Jan 2008 at age 13. She did oxygen therapy in Nov and Dec 2008. She did 40 treatments - 2x per week. We spent $7,000 on this. I did not see any improvements. The doctor wanted to do another 40 but I just could not justify that money.

It wasn't until March 2010 when we did QEEG guided neuro-feedback with Dr. Walker, a neurologist, in Dallas, TX that we have had significant improvements. She completed 212 treatments in Dec 2011 and she has had no more seizures, no more fatigue, less headaches, less severe headaches and recovers faster. She can tolerate noise for about an hour before she gets a headache. She can now read for 20 minutes 4x per day. So she is still very limited but life is more bearable. She just started vision therapy and that is spiking migraines. It is hard very hard to see her like this she is 18 now. She missed high-school. I wish I had better news.

I'm would like to try acupuncture I've heard several had improvements with that. Dr. Bynum in Dallas, TX had a TBI and she became an acupuncturist because of it. We did meet with her when we were in TX but my daughter doesn't feel comfortable with the needle idea.

Our neuro-psychologist recommends osteopathic treatments - cranial sacral but that really set off a terrible migraine.

Everyone seems to get help from different treatments. Don't give up. I'm not. Magnesium helps her.
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Old 02-23-2013, 11:36 PM #2
Trier Trier is offline
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Default Has Worked Incredible Well

Hello!
Yes, hyperbaric oxygen therapy has worked so well for me. I have had four concussions. I have tried many helpful things and many not so helpful things. I never found one that made me feel like myself again. My most recent concussion was in November of 2012. Within two days half of my face was bright red hot and tingly feeling, a terrible headache, super slow speech and motor skills, and I was having a hard time functioning and even thinking.

After getting out of the HBOT, for the first 10 minutes I could see clearly and talk well. Then it all slowed down again. Every session after that, I continuously felt progress for longer periods of time. I am now doing my second set of 40 treatments. Although I am down to my last dollars on my last credit card, I have no doubts as to whether I should be investing in this or not.
Rocky Mountain Hyperbaric Institute in Louisville, CO has a non-profit that can help. They are an incredibly experienced, honest, and caring group of people. These treatments are definitely worth asking anyone you know if they can pitch in some money so that you can get better.
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Old 02-24-2013, 04:53 AM #3
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Default

Trier,

Welcome to NeuroTalk. Your experience with HBOT is not common. You are fortunate to be getting good results. Are they doing 1.5 atmospheres " What oxygen percentage ? How long are sessions ?

The VA is doing a study right now. Most studies have been anecdotal and done by HBOT organizations. The most promise is shown with TBI patients who are comatose. It speeds return to consciousness but has not improve long term outcomes.

What other things have you tried that helped and did not help ?

We are always interested in new ideas.

How old are you and how did you get your concussions ?
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"Be still and know that I am God" Psalm 46:10
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