Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-02-2012, 07:38 PM #1
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Quote:
Originally Posted by kkupka View Post
I am not sure where the bleed was in my brain, I am not sure if the told me. They could have told me but I have forgotten. I fell backward so my guess is the back part of the brain? Not sure. Our symptoms do sound very similar. I have not heard of too many people having walking issues though, I wonder whats that all about.
I had trouble walking the first month of my recovery. I needed a walker in the hospital the 3 days I was there, or someone to help me to the bathroom. When they released me I spent most of my time in bed the first few weeks...it was hard to walk and everything just hurt.

I'm not a doctor but I'm sure you will be recovering your walking ability soon. Your going to hear this a billion times during your recovery, but, everything takes time. Try not to spend too much time on the computer or watching TV...your brain isn't healing when its being used. I made the mistake of playing video games, browsing the web and watching TV throughout my recovery. Big mistake.

Good luck, keep in touch.

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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kkupka (04-03-2012)
Old 04-02-2012, 07:54 PM #2
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I forgot to mention...I was assaulted from behind. I was actually hit in the back of my head. My brain bounced off the front of my skull...and gave me a frontal lobe contusion and hematoma. So, just because you hit the back of your head, doesn't mean that's where the damage occured ...

...I find it strange they didn't tell you where the bleed occured. Maybe you should head down to the hospital and pick up your medical records. That way you can have a better understanding of your injury.

BTW, if your going to pick up your medical records...tell them its for Social Security Disability. They should give them to you free of charge.

Also...speaking of Social Security, you should probably start an application with them just in case. I made the mistake of thinking I was going to get better fast...and didn't apply until things got rough in December. Now I'm disabled, broke and awaiting approval for a SSI check when I need it the most.

If you miraculously recover and go back to work before they approve you...you can always cancel your application.

Good luck and keep in touch.

Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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kkupka (04-03-2012), MommaBear (04-04-2012)
Old 04-03-2012, 12:26 PM #3
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The complication I mentioned in my previous post is called increased intracranial pressure or iicp for short.

It may have further damaged my brain after the initial injury.

After the initial injury I was able to walk, but not as fast as I was before the injury. After only a few weeks or a couple of months (I can't quite remember, but I have it all written down in an extensive journal) I was unable to walk without assistance and even that was very arduous. I remained that way for several months until the iicp was relieved with a spinal tap six months after the accident that caused it to occur.

Then for several weeks I had to walk with a walker and used work-arounds I was taught in the hospital to maneuver stairs, curbs and the like. (The spinal tap wasn't done correctly and caused more complications and because of it I was hospitalized for almost two weeks.) I think my muscles all atrophied from the several months of not using them and I was not expecting that. You see, the iicp caused me to be in such severe pain for so many months and that's a part of why I think I was degrading and unable to walk - I thought once the pain went away that I would be able to walk with no problems, but I wasn't able to at all. I was also very dizzy and had a lot of trouble determining space - like a room seemed a lot larger to me than it actually was and that sort of thing - so it was hard for me to reach for things and that sort of thing and that went away after the spinal tap too. Although the dizziness remained and comes and goes, it's nowhere near as bad as it was.

But even though I'm nowhere near the person I was before the accident, I'm still doing a lot better than I was just a year ago. And I'm hopeful that I'll continue to improve. My Dr. recently gave me a very good prognosis, but she wasn't able to do that until recently and the accident I was in was 20 months ago! Brain injuries just take a long time to recover from.

Before the accident, I was a very independent, practically hyper-active and very healthy 33 year-old. So I had no use of a walker before the accident.

So, who knows what cause you to need to have walking issues... it could have to do with the damage in your brain from the bleed, or the PCS, or maybe the bleed caused iicp and that made you need a walker or ... ? have your Dr.'s explained to you why you need a walker? Have you asked them?

Anyway, other people have walking issues too. Every head injury is different, but at the same time, we can all relate with one another and our symptoms are similar.

I've had a great deal of speech trouble since the accident I was in too - I even went to months of speech therapy and that helped me. It's been getting better on its own too.

As has everything else. It's just painfully slow for me. I am not a patient person and I had 33 years of being a very capable person so this has been very difficult for me. I imagine your path of recovery won't be a day in the park either.

Just try to keep calm and carry on.
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