Today is the day I found my son almost dead and got him to the ER just barely in the nick of time... exactly a year ago this very moment he was in surgery getting a slice of his brain frontal cortex cut out from being so badly bruised. The start of a lifelong vigil for me, and different new lives for both of us.

I would still just like to crawl under a tree and die myself... soooooo very, very sad today, mourning the loss of my son's very wonderful old personality. So different from who he is today. I still cherish every tiny moment I get to spend with him, it is truly a Gift from God, extra granted dispensation of LIFE.

But big parts of him are so very gone... it is a both a blessing and a curse that he is so lacking in self awareness; it's a blessing that he remembers none of it and thinks he's fine, a curse because he will likely never be able to understand enough to advocate for himself.

I do think that when one of us "goes", the other will soon follow.

I always used to tell him "When you're 90 years old and I'm STILL 29, you'll still be my baby!" May we both reach that age.

Thank you for sharing, this post is so sad and so beautiful all at once.

My heart is breaking for you and your son. But it sounds as if you are both so lucky to have each other. Wishing you courage and strength. Day by day.