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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-07-2013, 01:09 PM
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Anger HAS TAKEN OVER!!!I get in a MVA in 2011 And I am just now getting a COSTLY
 diagnosis in Nov OF TBI/PCS from going to a level that has turned on me and seems pretty **** worthless for me....I am left to do ALL MY WORK TO GET TO MD'S I NEED,REHABILITATION THAT I NEED,GET MYSELF BETTER,TRY TO TAKE CARE OF HOME, GO BROKE AND NO FUNDS TO GET THE REHABILITATION!!!!I AM PRETTY MUCH CORNERED AGAIN IN SAME SITUATION AS BEFORE BUT I GOT A DIAGNOSIS!!!!POINT IS I AM TIRED!!!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ Last edited by Kitty; 02-07-2013 at 05:01 PM. Reason: Edited over Mod edit / NT guidelines on language |
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02-07-2013, 02:50 PM
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I am in the same boat.
Since 7/2012 my pcs, ptsd, convergence insufficiency, bppv and all felt like it was a manageable and slow process of recovery. I am reeling after getting a virus/flu/crud that has had me out for a week. I watch my husband run himself tired caring for our 3 boys and going to work. I feel humiliated, sad, and worried. And awful physically. It is hard to stay positive and focused on each moment, doing what we must for ourselves to rest/recuperate and hoping for the good brain days. I have found a lot of grace and solace from everyone here. It really is about staying in the moment (not racing to the past in anger or running from the future in fear), just doing what you can to bring relief, peace, and calm to yourself. It can be so simple and so complicated to do so, but I think it is essential. I hope you find some moments of calm today! |
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| "Thanks for this!" says: | Brain patch (02-17-2013), MiaVita2012 (02-07-2013), Mokey (02-08-2013), SmilinEyesMs305 (02-10-2013) |
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02-08-2013, 10:04 AM
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Thank you so much for the response Berkeley.I got the same advice yesterday from my pshyc about staying in the moment!Don't look back or ahead....just stay in the moment.So as Im spazzing out on poor guy the phone rings...the call I needed for cognitive therapy!were both smiling and I have state coming to my house @10am today for assessment
 I sent apologize to all the MDs & people I spazzed out on.....but this is a prime example why I need this therapy besides my impairments I apologies to this group for the negativity...I have been trying really hard to stay positive lately but we all know how frustrating this can be! Quote:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-08-2013, 04:39 PM
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I'm glad to hear that you found an opening to focus on being good to yourself.
I think we all feel your anger. This is a very hard and frustrating process. The money and time are important material constraints, but until you heal, there can be no work. So it really is important to feel everything (anger to pity to hopelessness to fear) and then to return to a place of being kind to yourself. Each journey begins with one step....(some Chinese saying) and reminds me that we all need to begin somewhere. |
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| "Thanks for this!" says: | MiaVita2012 (02-09-2013) |
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02-10-2013, 08:18 AM
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Oh girl, we've ALL been there! Don't be sorry. And even a "typical" person would be angry with have to fight all the red tape!
My boyfriend works for a major insurance company. When I had my accident, and realized that I would have to make multiple, long phone calls a day fighting for services (and then calling people and begging someone to find time to take me to various appointments since I couldn't drive), I began to get really really upset. I told him that since the other party's insurance would have had to cover a rental, they should instead cover a chauffer and a secretary. I swear if I had had either of those opportunities, and could have just focused on rest and my rehab, I would have been better so much faster. Now, even with a lot of my rehab work done and trying to get back to my life, I still have to spend hours each week making phone calls. This week was a fight to get a medication authorized that I've been taking for almost 2 years because of my injury, that the insurance company just randomally decided not to cover anymore. Thank God, it seems after 6 weeks of phone calls I've finally got it taken care of. But there are many others that see my doctor who haven't been so lucky. Its so exhausting to fight the red tape, when you don't have the energy to do even the most basic things. And what's worse is once you make the calls, you are so anxious and stressed, at least for me, you are done for the rest of the day. You are not alone! I am glad you were able to get your assessment appointment. Let us know how it went! ((hugs))
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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| "Thanks for this!" says: | MiaVita2012 (02-10-2013) |
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02-10-2013, 10:36 AM
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Smilin~You sure can relate!!!I am stuck in a "medical web"that's why state is even in place.The meeting went great and the lady was great and she said under her assessment I qualify!
Now it just needs to move on to State whoever and I will then find out. It blows that I had to wait a month and many follow up calls to cognitive therapy to find out I was in this "medical web"payment blahhh. I see how they would like me to take this break to do all the work to get rehabilitation lol.I see it is a blessing in disguise and to make me stronger for future!It is sad though because you could lose strength a lot faster than keep strenght...I had to stay strong after a year of fighting for diagnosis...I had no choice but to keep staying strong!Oh well if I yelled and cursed on the way!I MADE IT!!!  Quote:
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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