Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 02-15-2013, 06:57 PM #1
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Default Tinnutitis

Hey guys,
You all say you have Tinnutitis. Is this when you hear music that you know is not real or buzzing, ringing noises? Or is that auditory hallucinations? Whatever it is I have that to. Oh well, at least it is rock music I hear. Thank the lord for small favors. If I had Willy Nelson or something going off I would be insane.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 02-15-2013, 07:12 PM #2
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Tinnitus is the common ringing in the ears. You will hear it after a very loud sound. Many of us with PCS have chronic tinnitus. My ears have been ringing for decades. I have even gone so far as to determine the pitch. On a piano keyboard, my tinnitus is just above C6# or C#6 About 1000 htz

The only remedy is to learn to ignore it. Getting annoyed only makes it worse as the mind focuses on it. Sometimes, it will lessen or even go away. Mine only varies in volume. Sometimes, it is very loud, especially right after I have consumed a cool liquid.
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Old 02-15-2013, 07:39 PM #3
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Default Music

Do you hear music too sometimes?
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 02-15-2013, 08:52 PM #4
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Some sounds of Tinnitus:

Tinnitus

Mine is a treble combination of 3 ranges mostly... quiet, but when stressed will override even loud radio on Led Zeppelin.
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 02-16-2013, 01:11 AM #5
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I have tinnitus 24/7 since my accident and I also hear music from time to time. It is apparently quite common but people don't want to admit it in case others think they are....'crazy'. It is the same thing as tinnitus, where the brain creates sounds that don't exist. I don't get Willie Nelson...some classical and differentiated pop! It is weird, but I enjoy it more than the constant high pitch I have.
Have downloaded an ipad desensitization aop which is based on new research from Germany. Desperate, I guess!
Good luck!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 02-16-2013, 01:17 AM #6
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Thank goodness it's not just me. I hear things no one else does. People talking, music, and oddly enough a squeaky toy. I do feel odd saying that because it doesn't sound normal. But to me none of my symptoms are normal. I still haven't accepted how I am. I think it's beginning to hit me and I want to freak out at times.
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Old 02-16-2013, 08:30 AM #7
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Default Thanks you guys I was wondering if I am crazy

Thanks. I to hear people talking sometimes. It is always like old conversations my mom and sister had. They always talk real loud on the phone and it bothers me. I was afraid to mention that part because of the crazy factor. Yeah, the music is the best. At least preferable to buzzing, ringing or conversation of mom and sister. It makes me really nauseated.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-12-2013, 07:26 AM #8
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Along with many other symptoms, I too developed tinnitus after my car accident. An ENT recommended that I try Lipo-Flavonoid. It helped to reduce the episodes of tinnitus. This supplement did make me feel agitated and irritable, but I continued with the treatment for several months, as I was seeing some results from it. I discontinued it after the tinnitus subsided. I still get occasional episodes when I am very tired, over-worked, or don't get enough sleep, but I don't have the tinnitus 24/7 anymore.
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Old 03-12-2013, 09:56 AM #9
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LOL about Willie Nelson!

Mine seems to be more like Mark's moderating in intensity based on sleep, stress, and other factors. It's normally at a low level that I can ignore, but for me when it starts to really ramp up, I know to stop whatever I'm doing and rest or I'm headed for a migraine and a few days of recovery.

I think it would be cool to hear music! The odd tonal noise I have is not very interesting haha.
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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Old 03-12-2013, 11:25 AM #10
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Default I thought I would test out the tinnitus

A few days ago I thought I would test out the tinnitus with a cup of coffee!!!Ooo no NEVER again ears were burning,ringing,and face was hot and swollen!I hurried up and flushed with three bottles of water.

On a good day I just hear like my ears are covered in sea shells....but we will see tomorrow another long MRI and probably have screeching heart beat!

at one time I had the beat of Ice Ice baby stuck in my ears....It was horrible lol
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What Happened: In 2011 I was in a MVA
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Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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