Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-22-2013, 08:32 AM #11
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Quick note about amantadine...it is one of those drugs which when administered for flu to peole with parkinsons, they noticed significant improvement in parkinson symptoms.
For pcs / tbi, researchers are trying many drugs which work on the brain in some way in the hope that they will find the magic pill. The dopamine bit is very important in many brin injuries as it is a neurtransmittor, and many injuries have made the neuro transmission process faulty. That is why a lot of supplements are suggested here..they enhance neurotransmission. We need all the help we can get to make the brain work more efficiently! It can help with the fatigue which follows injury.

Hang in there. Good day today!!!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-22-2013, 09:11 AM #12
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Originally Posted by DFayesMom View Post
Thanks for making me laugh! I need as many laughs as I can get. I think it's because I'm doing sooooo well in terms of overcoming my other symptoms that I'm having such a hard time dealing with other things. I felt really depressed last night! So I'm just going to try to do better today at fighting the inertia but try to be more forgiving toward myself!

I think my lack of creativity is what is really getting to me. I just keep myself in a deadened, numb state of mind, which makes creativity impossible. I can be creative when I try, but I can't seem to try. That will be my primary goal for every day this week. Housework will come second. If I talk to my husband about how I'm feeling instead of hiding it from him, maybe that will give me the push I need to do what's best for myself?
I think it's important that you should never, ever feel like you need to hide your feelings from the people you love. There is nothing weak or lazy or what have you about what you're going through-- in fact, I'm with MsRriO; you are a total boss for bringing it up here.

And with the creativity, again, validate your small steps! You signed on here and wrote several extremely eloquent posts-- which requires creativity to do. Mission accomplished, +500xp, level up!

there's a great quote I'm trying to hang on to at present-- maybe it would be useful to you too

“Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow.” ― Mary Anne Radmacher
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Adventures in PCS: Loose brick, stumble, fall, wheelchair ramp, tilt forward, faceplant on asphalt. So graceful!
.
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Old 04-23-2013, 06:14 AM #13
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Crazy Thanks, guys!

Thanks to those that responded to this. I had a good day yesterday that included reading for two hours straight. I also decided to finally go through the large Rubbermaid container on my front porch full of things taken from the Honda that I totaled in my August 28th car accident. It's been sitting there for the last 8 months as a reminder of that day. I don't know why I just let it sit there. Maybe I was waiting for my husband to deal with it? I don't know. But now, it is all cleaned out and I also cleaned up my porch so I can actually sit out there and enjoy the sunlight from behind sunglasses and under baseball hat.

Though I only wrote in my journal yesterday, reading instead of watching tv was a step in the right direction for me. The only trouble was that my eyes were KILLING ME by the end of the day. I couldn't do all of my eye exercises. I guess I'll try to space the exercises out through the day rather than try to do them all right at the end of the day!

The other good thing that happened was my husband came home from work early before picking our daughter up. We talked about how we were both sad and anxious and that it was okay and to be expected. We recently found out my husband is losing his job end of August, and we most likely will have to sell our house and move to wherever he gets a new job. So we both got laid off within 9 months of each other! My husband had just won an award for his work performance, so it was particularly unexpected. I'm mentioning this now because I realize this has also had an effect on me I've been choosing to ignore. Denial again! I hope I can go back to my self-aware self instead of constantly having to call myself out on my own bs!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-23-2013, 08:29 AM #14
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How terrible about the job loss(es)! What an enormous stress that must be on top of your injury. Can't imagine. But hopefully you can still focus on healing and on the really important things in life...most of us value love, peace, beauty, etc. Material things like a nice place to live and some tech toys also help

Good you had a better day. I had a good day yesterday too. One day at a time! And slowly you will heal.

I agree about the creativity. In terms of eye strain and writing, I am dictating more and more. The apple products (and maybe others) have an amazing dictation ability....so accurate and easy to use...I am doing my journal that way). Long emails too...and I should do this using that method too, know that I think of it

Enjoy the day!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-23-2013, 11:48 AM #15
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Wow that is a LOT to handle. Woah.

I'm glad to hear you're cutting yourself some slack and being kind to yourself!

One thing I thought of when reading your post - did they tell you when to do your eye exercises or do you just choose? I ask because I was told our eyes are most relaxed in the morning and that was when to put my prism glasses on for a few hours each day until I could tolerate them all day. Just thought this info may help?

Hope you're deep breathing and having a good moment when you read this.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 04-23-2013, 01:15 PM #16
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Quote:
Originally Posted by MsRriO View Post
Wow that is a LOT to handle. Woah.

I'm glad to hear you're cutting yourself some slack and being kind to yourself!

One thing I thought of when reading your post - did they tell you when to do your eye exercises or do you just choose? I ask because I was told our eyes are most relaxed in the morning and that was when to put my prism glasses on for a few hours each day until I could tolerate them all day. Just thought this info may help?

Hope you're deep breathing and having a good moment when you read this.
They said I could space it out during the day but that would be up to me. I chose to try to do it all at the end because they make my eyes hurt a lot and I didn't want it ruining my whole day! Bad idea. Lesson learned!

I'm doing okay today. I'm keeping track of what i'm doing so I stay self aware, because having a set schedule hasn't been working well, nor has flying by the seat of my pants (as my pants seem to be Velcroed to my recliner). If I keep a record of my day, it makes me aware of how much time I'm wasting not enjoying life or at least being productive. Today, I can proudly say I've only wasted 50 minutes of time staring blankly and wishing I could get up and do something. It's an improvement. I'm going to do a little vacuuming and then reward myself with some time out on my front porch reading and writing before my daughter gets home! Then my husband and I are going to take my daughter outside to ride her trike at a local park.

Even when things aren't going my way, I still have to embrace happiness wherever I can find it. Depression isn't a choice, but how I cope with it is up to me. I am choosing to fight it tooth and nail!

I hope everyone has a good day!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-23-2013, 01:27 PM #17
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Quote:
Originally Posted by DFayesMom View Post
They said I could space it out during the day but that would be up to me. I chose to try to do it all at the end because they make my eyes hurt a lot and I didn't want it ruining my whole day! Bad idea. Lesson learned!

I'm doing okay today. I'm keeping track of what i'm doing so I stay self aware, because having a set schedule hasn't been working well, nor has flying by the seat of my pants (as my pants seem to be Velcroed to my recliner). If I keep a record of my day, it makes me aware of how much time I'm wasting not enjoying life or at least being productive. Today, I can proudly say I've only wasted 50 minutes of time staring blankly and wishing I could get up and do something. It's an improvement. I'm going to do a little vacuuming and then reward myself with some time out on my front porch reading and writing before my daughter gets home! Then my husband and I are going to take my daughter outside to ride her trike at a local park.

Even when things aren't going my way, I still have to embrace happiness wherever I can find it. Depression isn't a choice, but how I cope with it is up to me. I am choosing to fight it tooth and nail!

I hope everyone has a good day!
I too have been struggling with some depression due to my TBI. It has completely changed my lifestyle. I can't do the things I love to do anymore: lift weights, run, socialize, go out for some beers with my friends, etc. My fatigue keeps me from accomplishing much else. In the end I am trying to stay positive because I know I will not be like this forever and I will get better. I refuse to give up and let my TBI keep me from everything that makes me happy.

Good luck to you!
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I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect.

Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings.

Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on.

I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms.
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Old 04-23-2013, 02:31 PM #18
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Default feel 4 ya

But, that tv is a killer, all the crap, endless info, drama, more needless info. you are bombarding your brain.
A little doesn't seem to bother me, but only what I choose to watch in advance.
Before my 6th concussion, I was a personality, nothing stopped me, had many hobbies, now well I have to understand that if I am able to do anything enjoyable today, it is to be celebrated. Even if it is just enjoying a beautiful cloud.
That feeling sorry for myself thing is hard to kick, but when I realize that it is based on self centeredness it helps me to reject it.
Try some kind of simple hobby, I made a little sand thing that I put rocks in and rake, like the japanese concept, seems lame for a strapping strong doer like I was, but it is kind of soothing.......
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Old 04-23-2013, 03:07 PM #19
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Quote:
Originally Posted by DFayesMom View Post
no energy, no motivation, and very little stamina.
That sounds very much like me, until recently that is. Question: Do you feel refreshed in the morning?

I can only relate may own experience here... I did not sleep well for many, many years. That is until I was diagnosed with, and treated for, Sleep Apnea.
I now have more energy, I'm motivated and I have much better stamina.

Think about it...
Jamie
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Old 04-23-2013, 04:41 PM #20
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Smirk No sleep apnea here!

Quote:
Originally Posted by thedude58 View Post
That sounds very much like me, until recently that is. Question: Do you feel refreshed in the morning?

I can only relate may own experience here... I did not sleep well for many, many years. That is until I was diagnosed with, and treated for, Sleep Apnea.
I now have more energy, I'm motivated and I have much better stamina.

Think about it...
Jamie
My dad has it, so I'm very familiar, but I don't!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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