Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-06-2013, 11:21 AM #31
DFayesMom DFayesMom is offline
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Default Medication?

You aren't taking Topamax, are you? That made my face twitch and I had to lower my dosage. Just checking!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-06-2013, 11:25 AM #32
GirlFromNorway GirlFromNorway is offline
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Default

Nope, not taking Topamax. I take no drugs besides nutrition supplements, but I have started to think that some of the supplements may have caused the twitching. The twitching started right after I started with that for a little over a week ago.
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Old 06-06-2013, 11:52 AM #33
Mark in Idaho Mark in Idaho is offline
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GFN,

I had the twitching and ballistic movements (the arm just takes off in a ballistic trajectory when all I tried was a small movement). I found that I needed to protect my neck. Minor inflammation would interrupt the nerve functions and strange things would happen. ice your upper neck and relax in a straight posture. No tilting the head forward or to the side.

The inflammation usually take 10 to 20 minutes to start to interrupt nerve signals. I take gabapentin (prescription) before bed to help these problematic nerves from disrupting my attempts to sleep.

Yes, you can take the higher dose of B-12. A 1000 or 2000 mcg dose per day should be OK. Some people do not absorb B-12 well. They need a methylated version of B-12. Methylcobalamin is the preferred version. Check you B Complex to see what kind of B-12 is included.

If you are concerned about the supplements causing your twitching, list the ingredients and dosages. Maybe there is something odd in your supplements. Do you drink coffee or caffeinated beverages ?
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"Be still and know that I am God" Psalm 46:10
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Old 06-09-2013, 12:32 PM #34
GirlFromNorway GirlFromNorway is offline
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Thanks Mark. There are so many ingredients in my supplements, so I have to do that a day I have more energy. However, I have tried to take as "clean" as possible nutrition supplements.

I drink very little coffee. Only less than half a cup in the morning. However, it happens even though I do not drink coffee at all.

My doctor could not say anything about my tremors, but he has sent me to a neurologist - I will probably not get an appointment before about two weeks. I will ask the neurologist if I can get some medication for the tremors.

Mark in Idaho: I've had this for the past two weeks. It happened after I had been crying a night. Now the tremors only gets worse, but the other symptoms are much better. Do you think the tremors are permanent, or is it something that will go away after a while, like the other symptoms normally do? I am really worried about this.
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Old 06-12-2013, 02:56 PM #35
GirlFromNorway GirlFromNorway is offline
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Default Just an update

Now I have almost completely recovered from my little concussion 1 1/2 months ago (I am very sensitive after more serious concussions in 2008). Now I have no symptoms except from muscle twitching. However, the twitching in my head, neck, shoulders and arms are extremely irritating and sometimes they make me get a headache (because my head is sometimes twitching really hard).

I will see a neurologist on Monday. I will ask her to do an EEG (as Concussed Scientist tipsed me about) and some medications. I will tell you all if she has some good tips (that hopefully some others here can benefit from).

Quote:
Originally Posted by GirlFromNorway View Post
Thanks Mark. There are so many ingredients in my supplements, so I have to do that a day I have more energy. However, I have tried to take as "clean" as possible nutrition supplements.

I drink very little coffee. Only less than half a cup in the morning. However, it happens even though I do not drink coffee at all.

My doctor could not say anything about my tremors, but he has sent me to a neurologist - I will probably not get an appointment before about two weeks. I will ask the neurologist if I can get some medication for the tremors.

Mark in Idaho: I've had this for the past two weeks. It happened after I had been crying a night. Now the tremors only gets worse, but the other symptoms are much better. Do you think the tremors are permanent, or is it something that will go away after a while, like the other symptoms normally do? I am really worried about this.
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Old 06-12-2013, 04:10 PM #36
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Default Good to hear!

GFN,

Glad you are feeling better. That is good news.


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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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