Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 06-04-2013, 11:09 AM #1
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Jazzy,

I know articles similar, and have been in similar situations as you.

Have found articles of interest like that one, and have remembered to go back because I forgot to bookmark it and could not find it again. That is one reason I am forever online re - searching tbi, mtbi, Brain injury, concussion, pcs, etc.

I dig and dig into anything from NIH, BMJ, and anywhere else I might find bibliographies for information.

Docs on my side of the fence agree that my history is full of the Multiple Injury Syndrome picture, as why my issues are dragging along as long as they are at my age, but the Insurance folks don't want to believe there is even one concussion/pcs issue here...

I feel for all folks facing Multiple Injury issues.....

Best wishes..............
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GirlFromNorway (06-04-2013)
Old 06-04-2013, 03:03 PM #2
Mark in Idaho Mark in Idaho is offline
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Jazzy,

DTI, Diffusion Tensor Imaging, is beyond the research level. The problem is that it can give a diagnosis but does not change the fact that there are limited treatments. It is also difficult to find an imaging center with a radiologist and neuro who understand the technology.

Multiple Impact Syndrome can be a struggle. After each successive impact, less recovery is possible. In time, the brain has used up all of its 'reserve' ability to recover. I am in the 'reserve is used up' state. My neuro was shocked to see how dysfunctional my brain is.

There are plenty of work-arounds to go on with a full life. It may be a different full life than originally planned but it can be full never-the-less.
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JazzyLM (06-05-2013)
Old 06-05-2013, 09:40 AM #3
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Originally Posted by Mark in Idaho View Post
Jazzy,

DTI, Diffusion Tensor Imaging, is beyond the research level. The problem is that it can give a diagnosis but does not change the fact that there are limited treatments. It is also difficult to find an imaging center with a radiologist and neuro who understand the technology.
The research part I was talking about, and I have to rely on my faulty memory, was the part about the recurring symptoms and the movement of the fluid. If I remember right, it was still being researched because a new DTI had to be done in 6 month intervals and the study was only about 18 months old. I believe they said they wanted about 5 years worth of data on the same subjects to be conclusive.

I wish I could find the article. I'm pretty feisty so I'm sure I will.
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